Lymphedema of the neck: What did you do?

Posted by lilypilly @lilypilly, Jan 2 9:16am

Hello I have Lymphedema of the neck amd face following radiation/chemo for base of tongue cancer. Has anyone else experienced this? What did you do?
I get regular massage on it but I need more.
Also a very dry mouth and phlemn in the throat. Help?

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

I used a Flexitouch Plus to reduce and manage the lymphedema from the treatments. It worked quite well for me. Good luck as you move forward.

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@thomason

@lilypilly, did the machine help you at all? They say no news is good news.

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@thomason I have been using it for 2 days now. Even though the swelling doesn't look reduced, it is not as hard.
Thank you for checking in.

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@lilypilly, did the machine help you at all? They say no news is good news.

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@lilypilly, I wish you relief. Please inform if it helps!

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@thomason

Hello @lilypilly. It can be a little awkward. They do make handheld small ones that you can easily move around. The larger machine I recommended does work well for me. My neck gets hard as a rock, making it difficult to breathe and eat. It helps to move your head around until it feels comfortable, then move around so the machine gets to both sides of the neck. You can also pick the machine up and hold it, so it is easily massaging the front of the neck. They probably make newer types that are more lightweight. Mine is vintage! In addition, make sure the massaging heads are going downward, so the lymph fluid is being gently pushed downward. My machine has a switch, so the machine can massage upward, or downward. As the moderator so aptly says: "Radiation, the gift that keeps on giving!" Hey, we are alive, thank God!

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@thomason thanks again. I placed an order for the one you recommended. Should be here tomorrow.
I will update soon.

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Hello @lilypilly. It can be a little awkward. They do make handheld small ones that you can easily move around. The larger machine I recommended does work well for me. My neck gets hard as a rock, making it difficult to breathe and eat. It helps to move your head around until it feels comfortable, then move around so the machine gets to both sides of the neck. You can also pick the machine up and hold it, so it is easily massaging the front of the neck. They probably make newer types that are more lightweight. Mine is vintage! In addition, make sure the massaging heads are going downward, so the lymph fluid is being gently pushed downward. My machine has a switch, so the machine can massage upward, or downward. As the moderator so aptly says: "Radiation, the gift that keeps on giving!" Hey, we are alive, thank God!

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@thomason

This device works miracles for neck lymphedema:
Homedics Shogun Shiatsu Kneading Neck Head Massager Model SM-444 Portable Vintage

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@thomason can I use this at the front of my neck? That is where my swelling is.
TY

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@thomason

This device works miracles for neck lymphedema:
Homedics Shogun Shiatsu Kneading Neck Head Massager Model SM-444 Portable Vintage

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Wow thank you so much for the info!

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@lilypilly

Thank you so much and it really helps?
I will speak to my Dr.

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It really works great for me. I did a search on this forum and I know others use it, too. I still do daily self massage as well. I also wear a compression band at night. Right after my surgery I wore the band pretty much all the time.
https://www.designveronique.com/post-surgical/facial-wear/universal-facial-band/

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Depending on the severity, I had lymphedema of the neck post radiation, not face. I ignored it for too long which was my fault then recently started doing the prescribed massages every night and wear a compression garment to bed and I have now seen tremendous improvement.
https://www.lymphedemaproducts.com/products/reynolds-swell-spot.html
I also had and still have a very dry mouth and had terrible phlegm that I thought would never go away but it finally did. BTW I'm 6 months post treatment. All these side effects from the nasty radiation take time.

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