Lymph Node cancer left axillary. Stage 4

Welcome @pdrago1955, some types of chemotherapy are known to cause neuropathy (not all). I understand your decision to choose surgery over chemo since you had pre-exiting neuropathy.

What type of cancer did you have? You had raditation to the shoulder?

I had "poorly differentiated squamos cell carcinoma."
More to my story is the fact that when the surgeon and his pathologist went in they removed some nodes abd tissue that they thought were cancerous and could not find a trace of cancer. I believe it was prayed away! The primary was never found either. I am a walking miracle, praise God🙏

Hello @pdrago1955

If I understand correctly your surgery and radiation was 10 years ago. Is that correct?

You said that "The primary was never found either." Were MRIs and CT scans done to try and locate a primary? Do you have regular follow-ups with your oncologist?

I have not followed up with oncologist and yes it was back in 2012. The only MRI's or CT's I had were done before surgery. After surgery I had the 5 weeks of radiation.

Since it has been 10 years, you might consider a follow up with an oncologist, @pdrago1955

Will you post again and let me know how you are doing?

Yes I suppose I should, unfortunately I have Stage 4 CKD and Uremic Neuropathy. It seems I am busy between the Neurologist and the Nephrologist lately.
Its a struggle trying to juggle things so I wont create a financial disaster.
Thanjs for your sweet concern.🥰

@pdrago1955

That is certainly understandable. You are dealing with a number of health issues and health care does get expensive.

You might consider contacting a hospital social worker to see what options might be available to you.

Will you post again and let me know how you are doing?

Managing cancer and kidney disease can be tricky. Fellow member and mentor, @gingerw knows about this all too well.

@pdrago1955 I see you have been a member here for several years, but I still would like to welcome you to Mayo Clinic Connect.

Juggling multiple conditions as you and I do, can be quite the balancing act, don't you agree? Being in Stage 4 of CKD you are probably under the care of a nephrologist, and satisfied with the care and follow-up you are receiving from them. Are they answering all your concerns? What are they saying about the uremic neuropathy as related to your kidney disease? Have you considered being placed on the transplant list?

Was the lymph node cancer a metastasis from another source? I agree with @hopeful33250 about getting an appointment to check for your cancer status. It's important to be informed where you are at now, to have a clear picture.

What I am reading sounds like you don't have much use of your left arm and shoulder. Have you considered getting a referral to physical therapy? Starting with gentle massage that might "loosen up" the area, and unfreeze the muscles, it might take a long while, but would be worth it! And to regain any movement would be uplifting for your spirits. I know it helped me before, and looking beyond the physical changes was positive.

Do you have any questions for me?
Ginger

Hi Ginger.......fortunately I have been feeling pretty well considering my health status. Getting appts at Mayo are quite difficult.....few n far between, it seems. I have constructed a long list of questions for my next visits to the Neurologist, on November 9th and an upcoming Nephrologist visit, hopefully in first part of December. I am a patient of Dr. Iasmina Craicci.
I dont remember who my oncologist was from 2012 , I will have to look at my records, I gyess. I just had a "Colo-guard" test done which came back clean.
You are very kind for taking an interest in my progress.
Thank you very much and may God bless you n yours.❤