Lupron: Anyone have muscle weakness and severe leg pain?

Thailand is a land of about 70mm and smart, very smart. Most Docs go to Ausi, USA or GB for some schooling but in the latest data, USA is #33 now in healthcare but Thailand is now #13. The Lab of the outside of the prostate ie. "On the Margin" and the two close lymph nodes showed no spread what so ever. God answered my prayers and the prayers of 400 or more people daily praying for me. The Surgeon was shocked and we were shocked. NO radiation or more Lupron shots now and just do PSA test 4 times a year and if any bump up what so ever, a PMSA Pet Scan will pinpoint in where the prostate was and outside of it too so it can be targeted exactly by Beam radiation. My odds of recurrance now are only 17% the next 10 years.

My guy Russ has been taking Lupron shots also ! Leg pain in knees ! Can never get up if he has to kneel ! Has stage 4 pc metastatic in bones ! Done 6 chemos ! Taking Zytiga! Daily ! Psa is great ! He is a very strong determined man to survive ! We ride our motorcycle and enjoy life 😊 god bless u

Wow, you are having a very difficult go of it! Sorry to hear that. One thing I did not mention is that I work hard on staying hydrated. That does cause me to get up two to three times a night to urinate. Be sure you drink lots of water. May even want to add an Electrolyte like Pedialyte. You are on vitamins including calcium with magnesium correct? My PhD nutritionist has me on Now brand Red Mineral Algae Calcium 1,000 mg twice daily. He tells me it is much better absorbed than the standard CA's. Good luck on getting past this!

Got the 24 hour Allegra and took it right away. Just took my second dose…morning of day 2. Hoping for similar results to your experience. I was almost in the ER yesterday.

Thank you.

It took 48 to 72 hours. Did you take the Allegra 24 hour? You're welcome! Good luck!

How many days after starting Allegra did it take to start feeling better? I took one dose this morning. It’s late evening and I’m still in a lot of pain. My wife wondered if it would take a few days or so to see an improvement as some drugs take time to build up to a therapeutic level. Thanks so much for responding.

Thank you!!!

Thanks for the hope. It’s great to hear. I am already seeing a natural path doc. The suggestions for strength training and nutrition to build muscle is exactly what I need.
Thanks!

Oh, in addition to the antihistamines and relative to muscle weakness I hired a trainer to work with me on resistance training. After about six sessions with him I now workout from two to three times per week for a good hour - working on upper and lower body. What I did not know about resistance training and all the machines at the fitness center would have filled a book!

In addition I consulted with a PhD Biochemist, Clinical Nutritionist who has me on a number of supplements. He also recommended I speak with my trainer to get what would be as much of a total body workout in 10 minutes as possible two to three times per day. I use a 10 lbs. medicine ball and and elastic cord with handles for five different exercises. The nutritionist advised that within the first 10 minutes after the workout I should eat a small amount of dried fruit for a high sucrose dose (three or so dried dates, cherries or apricots) and follow it with 4 ounces of liquid protein. He said the exercised muscles will up take those nutrients and actually strengthen. I'm 79 YO and am now in some of the best shape ever. Also lost 20 lbs. Good luck!

Sounds like you are having the same kind of severe cramping I had shortly after my first Lupron shot. While picking up another RX at Walgreens in Durango, CO in early July I asked the pharmacist if there was anything that I could get to help leg cramps/pains. He asked me to tell him more about the leg pain. I reported my Lupron injections and also the 2nd generation drug Nubeqa that I was taking. He then told me he was a oncology pharmacist for 8 years. During his time in that clinic they studied leg cramps from Lupron - since most patients had them. However; there was a smaller group of Lupron recipients that did not. He said upon investigation of the non-leg cramps group they learned that they were all taking antihistamines. I had been taking Allegra right up to my first Lupron shot in early April, but quit since it was for a seasonal allergy. He suggested I restart the Allegra - I did and have had no leg cramps or pains since. A friend whose also getting Lupron visited me for a week about the same time and I suggested as of his second day after a night of leg cramps that he try the Allegra. His cramps also ceased and now two weeks post have not returned as long as he takes the antihistamine daily. I hope this works as well for you.