Anyone out there living with stage 4 lung cancer?

Posted by nursed2075 @nursed2075, Mar 10, 2020

Is anyone living with stg4 lung cancer? How are they doing?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Merry, Alumni Mentor | @merpreb | Sep 14, 2023

In reply to @sstiffel64 "Do they recommend portal ? They are doing mine intravenously Any plus or minus either way?" + (show)

@sstiffel64- Good morning- I do recommend having a portal put in. As far as I'm concerned there is no plus to having an IV every time you have chemo.

Merry

jblbrad | @jblbrad | Sep 12, 2023

In reply to @sstiffel64 "Do they recommend portal ? They are doing mine intravenously Any plus or minus either way?" + (show)

I got a port for my intravenously performed treatment procedures going forward due to historically being a hard stick ( quite often several sticks for blood test etc ) seems to be the best decision for me so far!I would definitely recommend as of now ! Best of luck and prayers for you !

sstiffel64 | @sstiffel64 | Sep 12, 2023

In reply to @jblbrad "Full listed treatment combo is carbplatin,penfexy,Keytruda Had first treatment yesterday through my portal no reactions at..." + (show)

Do they recommend portal ? They are doing mine intravenously
Any plus or minus either way?

Merry, Alumni Mentor | @merpreb | Sep 12, 2023

In reply to @jblbrad "Full listed treatment combo is carbplatin,penfexy,Keytruda Had first treatment yesterday through my portal no reactions at..." + (show)

Wonderful news. All the "platins" can be rough on the stomach; keep an eye out!

Let me know if we can be of more help and I hope that you can keep us updated on his progress!

Merry

jblbrad | @jblbrad | Sep 12, 2023

In reply to @merpreb "Hello- I wish you the best during your chemo. And you are correct that everyone is..." + (show)

Full listed treatment combo is carbplatin,penfexy,Keytruda
Had first treatment yesterday through my portal no reactions at all yet. I’m prepared for side effects and I know it’s different for everyone !thanks so much for your very kind support !

jblbrad | @jblbrad | Sep 11, 2023

In reply to @lls8000 "Hi @jblbrad, I am a stage IV (ALK mutation) patient. I’ve been fortunate to have a..." + (show)

Thanks so much ! Continued Good luck to you as well ! I’m finding great strength in prayer and scripture ! Thanks again !

Lisa, Volunteer Mentor | @lls8000 | Sep 11, 2023

In reply to @jblbrad "Yes, I’m beginning treatments chemo/katruda/ etc tomorrow . I had a port installed Friday so I’m..." + (show)

Hi @jblbrad, I am a stage IV (ALK mutation) patient. I’ve been fortunate to have a targeted therapy drug that’s kept me going for the past 3 years. Good luck to you this week! It sounds like you are armed with knowledge and help, both very important.

Colleen Young, Connect Director | @colleenyoung | Sep 11, 2023

In reply to @sstiffel64 "Genetics came back from lung tumor. Men1 Has anyone else had this and any drugs that..." + (show)

@sstiffel64, if I understand correctly, genetic testing showed that your lung tumor is a genetic mutation, namely multiple endocrine neoplasia type 1 (MEN1). As you likely were told MEN1 is a hereditary condition associated with tumors of the endocrine (hormone producing) glands.

You may also wish to join the discussions in the Neuroendocrine Tumors (NETs) support group, like this one:
- Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?
https://connect.mayoclinic.org/discussion/men1/
While she doesn't have MEN1, @lls8000 also has a genetic lung cancer type.

@sstiffel64, how do the results of the genetic testing affect your treatment plan? What are next steps for you?