@embersonia, I hope things go well for you tomorrow. I can certainly understand your disappointment with the first-line treatment. We don't always get to choose our treatments, but it's time to look forward to one that will work. Wishing you well. Let us know how things go.
My history was generally similar. 4 months in my doctor added Cyramza to Optivo and Yervoy and 4 months later my PET scan shows the cancer has basically disappeared
Hi. My Diagnosis was in August. Treatment started in Sept. Cancer is stage 4. When started treatment it was 4 x 4 cm. Scan in Dec. showed it had increased to 7 x 7.
Huge increase even on Tagrisso.
Starting Chemo on Jan. 3.
So disappointed the Tagrisso didnt work.
@embersonia, I hope things go well for you tomorrow. I can certainly understand your disappointment with the first-line treatment. We don't always get to choose our treatments, but it's time to look forward to one that will work. Wishing you well. Let us know how things go.
My history was generally similar. 4 months in my doctor added Cyramza to Optivo and Yervoy and 4 months later my PET scan shows the cancer has basically disappeared
Hello @embersonia, I'm sorry that the Tagrisso wasn't effective for you. It can't work for all variants of the disease. This discussion may be helpful as you begin your next treatment regimen: https://connect.mayoclinic.org/discussion/carboplatin-plus-permetrexed/
How long ago were you diagnosed? I'm also stage IV, 4 1/2 years ago, ALK positive.
Hi. My Diagnosis was in August. Treatment started in Sept. Cancer is stage 4. When started treatment it was 4 x 4 cm. Scan in Dec. showed it had increased to 7 x 7.
Huge increase even on Tagrisso.
Starting Chemo on Jan. 3.
So disappointed the Tagrisso didnt work.
Hello @embersonia, I'm sorry that the Tagrisso wasn't effective for you. It can't work for all variants of the disease. This discussion may be helpful as you begin your next treatment regimen: https://connect.mayoclinic.org/discussion/carboplatin-plus-permetrexed/
How long ago were you diagnosed? I'm also stage IV, 4 1/2 years ago, ALK positive.
@nursed2075- Welcome to Mayo Connect. Yes, we have a lung cancer group. I am the mentor for lung cancer and health. I do have stage 4 lung cancer. Many people in the lung cancer group do. I'm horrible on my cell phone otherwise I'd put the link here. You can access it the same way you found this group.
Why are you interested in stage 4 lung cancer patients? Have you been diagnosed with it?
I have single cell carcinoma in both lungs stage 4 with no symptoms. I had my first round of Chemo 3 weeks ago with no side effects. Just last night my hair started to fall out. Next week I start my 2nd round.
Does anyone else have what I have and if so, how are you faring?
I have single cell carcinoma in both lungs stage 4 with no symptoms. I had my first round of Chemo 3 weeks ago with no side effects. Just last night my hair started to fall out. Next week I start my 2nd round.
Does anyone else have what I have and if so, how are you faring?
Hi @jeannedale, based on your profile it sounds like you've been through a lot in the past few months! I'm glad the chemo has been tolerable, hopefully that continues for you in these next rounds. Don't be afraid to ask for help with the side-effects if you start experiencing more. I am sorry to hear that you are losing your hair. It's certainly harder for some people than others. I didn't lose mine, but my targeted therapy has changed it from straight to curls. That's been a challenge and an ongoing learning experience.
Is the single-cell carcinoma in the lung a separate cancer from the meningioma? Or is it spread from the meningioma?
Welcome to Mayo Connect @lezelle. There are many people here living full and longer lives with stage IV lung cancer. I'm stage IV with an ALK mutation, diagnosed over 4 years ago. I'm on a targeted therapy to keep the cancer at bay.
When were you diagnosed? What treatments have you had?
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Had first chemo today. Went smooth. Hope the next 2 days go as well.
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1 Reaction@wgbethel, What a great response to treatment!
What stage are you? How long will you continue those treatments?
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1 Reaction@embersonia, I hope things go well for you tomorrow. I can certainly understand your disappointment with the first-line treatment. We don't always get to choose our treatments, but it's time to look forward to one that will work. Wishing you well. Let us know how things go.
My history was generally similar. 4 months in my doctor added Cyramza to Optivo and Yervoy and 4 months later my PET scan shows the cancer has basically disappeared
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Helpful -
Hug
1 ReactionHi. My Diagnosis was in August. Treatment started in Sept. Cancer is stage 4. When started treatment it was 4 x 4 cm. Scan in Dec. showed it had increased to 7 x 7.
Huge increase even on Tagrisso.
Starting Chemo on Jan. 3.
So disappointed the Tagrisso didnt work.
Hello @embersonia, I'm sorry that the Tagrisso wasn't effective for you. It can't work for all variants of the disease. This discussion may be helpful as you begin your next treatment regimen: https://connect.mayoclinic.org/discussion/carboplatin-plus-permetrexed/
How long ago were you diagnosed? I'm also stage IV, 4 1/2 years ago, ALK positive.
Yes was on Tagrisso, but it did not work for me. Am about to start Pemetrexed and Carbopltin every 21 days.
Hi, checking to see if your computer or phone's autocorrect changed signet cell to single cell?
Hi @jeannedale, based on your profile it sounds like you've been through a lot in the past few months! I'm glad the chemo has been tolerable, hopefully that continues for you in these next rounds. Don't be afraid to ask for help with the side-effects if you start experiencing more. I am sorry to hear that you are losing your hair. It's certainly harder for some people than others. I didn't lose mine, but my targeted therapy has changed it from straight to curls. That's been a challenge and an ongoing learning experience.
Is the single-cell carcinoma in the lung a separate cancer from the meningioma? Or is it spread from the meningioma?
Welcome to Mayo Connect @lezelle. There are many people here living full and longer lives with stage IV lung cancer. I'm stage IV with an ALK mutation, diagnosed over 4 years ago. I'm on a targeted therapy to keep the cancer at bay.
When were you diagnosed? What treatments have you had?
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Helpful -
Hug
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