I have single cell carcinoma in both lungs stage 4 with no symptoms. I had my first round of Chemo 3 weeks ago with no side effects. Just last night my hair started to fall out. Next week I start my 2nd round.
Does anyone else have what I have and if so, how are you faring?
I have single cell carcinoma in both lungs stage 4 with no symptoms. I had my first round of Chemo 3 weeks ago with no side effects. Just last night my hair started to fall out. Next week I start my 2nd round.
Does anyone else have what I have and if so, how are you faring?
Hi @jeannedale, based on your profile it sounds like you've been through a lot in the past few months! I'm glad the chemo has been tolerable, hopefully that continues for you in these next rounds. Don't be afraid to ask for help with the side-effects if you start experiencing more. I am sorry to hear that you are losing your hair. It's certainly harder for some people than others. I didn't lose mine, but my targeted therapy has changed it from straight to curls. That's been a challenge and an ongoing learning experience.
Is the single-cell carcinoma in the lung a separate cancer from the meningioma? Or is it spread from the meningioma?
Welcome to Mayo Connect @lezelle. There are many people here living full and longer lives with stage IV lung cancer. I'm stage IV with an ALK mutation, diagnosed over 4 years ago. I'm on a targeted therapy to keep the cancer at bay.
When were you diagnosed? What treatments have you had?
@nursed2075- Welcome to Mayo Connect. Yes, we have a lung cancer group. I am the mentor for lung cancer and health. I do have stage 4 lung cancer. Many people in the lung cancer group do. I'm horrible on my cell phone otherwise I'd put the link here. You can access it the same way you found this group.
Why are you interested in stage 4 lung cancer patients? Have you been diagnosed with it?
I have single cell carcinoma in both lungs stage 4 with no symptoms. I had my first round of Chemo 3 weeks ago with no side effects. Just last night my hair started to fall out. Next week I start my 2nd round.
Does anyone else have what I have and if so, how are you faring?
I to had no appetite for 10 days after chemo but gradually ate to get strength back. Ate foods with lots of protein. Helped me get thru the 10 days recovery and than would go back for more. Did that for 7 months and said no more as that was not living. Was put on Keytruda for 2 years. Only thing I have trouble eating is leafy greens.🥲
I’m still living with cancer. Notable to do things I used to as did number on bones. Broke 8 vertebrae s and 4 had surgery with cement to heal, otherwise good without to much exercise. Careful bending, and turning limited to 5 pounds lifting otherwise doing good.
You are so kind and strong, thank you for taking the time to reply. My biggest thing is our 13 year old boy. I’m broken as know it’s goi g to break his heart and we are not even sure what to say. For the first time I’m lost for words. I’m sure as time goes on I will feel stronger mentally but for now I just feel empty and lost 💔
I'm a doctor, but not the right type, so I don't know what is normal in Lung Oncology. I know it's not unusual for lung cancer to metastasize to the esophagus. I can imagine the reverse could also be true.
Sorry to hear about your developments. Since you're asking for free advice, ignore the timetable. I agree with Olivia Newton-John that living like you have an expiration date is no way to live. Try to forget those numbers as soon as you hear them and make every day count. Your mental health will be a lot better. I've told my Oncologist I don't want to hear a likely life expiration, and he no longer gives me an estimate.
I keep telling my other doctors that my metastatic lung cancer has not changed my plan to live forever -- or die trying. My kidney specialist lights up every time I say that.
Lastly, you, we, are not broken. We are wounded warriors. Old warriors in most cases, but warriors nonetheless. I wish you all the best.
You are so kind and strong, thank you for taking the time to reply. My biggest thing is our 13 year old boy. I’m broken as know it’s goi g to break his heart and we are not even sure what to say. For the first time I’m lost for words. I’m sure as time goes on I will feel stronger mentally but for now I just feel empty and lost 💔
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Hi, checking to see if your computer or phone's autocorrect changed signet cell to single cell?
Hi @jeannedale, based on your profile it sounds like you've been through a lot in the past few months! I'm glad the chemo has been tolerable, hopefully that continues for you in these next rounds. Don't be afraid to ask for help with the side-effects if you start experiencing more. I am sorry to hear that you are losing your hair. It's certainly harder for some people than others. I didn't lose mine, but my targeted therapy has changed it from straight to curls. That's been a challenge and an ongoing learning experience.
Is the single-cell carcinoma in the lung a separate cancer from the meningioma? Or is it spread from the meningioma?
Welcome to Mayo Connect @lezelle. There are many people here living full and longer lives with stage IV lung cancer. I'm stage IV with an ALK mutation, diagnosed over 4 years ago. I'm on a targeted therapy to keep the cancer at bay.
When were you diagnosed? What treatments have you had?
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1 ReactionI have single cell carcinoma in both lungs stage 4 with no symptoms. I had my first round of Chemo 3 weeks ago with no side effects. Just last night my hair started to fall out. Next week I start my 2nd round.
Does anyone else have what I have and if so, how are you faring?
I to had no appetite for 10 days after chemo but gradually ate to get strength back. Ate foods with lots of protein. Helped me get thru the 10 days recovery and than would go back for more. Did that for 7 months and said no more as that was not living. Was put on Keytruda for 2 years. Only thing I have trouble eating is leafy greens.🥲
I’m still living with cancer. Notable to do things I used to as did number on bones. Broke 8 vertebrae s and 4 had surgery with cement to heal, otherwise good without to much exercise. Careful bending, and turning limited to 5 pounds lifting otherwise doing good.
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1 ReactionYes that’s right. Sorry I didn’t realise it was so different 🤍
Hi @christine05, it sounds like you may have metastatic esophageal cancer rather than primary lung cancer. Do I have that right?
If yes, you might appreciate following the Esophageal Cancer support group here: https://connect.mayoclinic.org/group/esophageal-cancer/
I think you will be encouraged by the number of members we have who are living well with stage 4 (metastatic) esophageal cancer.
You are so kind and strong, thank you for taking the time to reply. My biggest thing is our 13 year old boy. I’m broken as know it’s goi g to break his heart and we are not even sure what to say. For the first time I’m lost for words. I’m sure as time goes on I will feel stronger mentally but for now I just feel empty and lost 💔
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