Thanks Colleen. Had an appointment with my cardio Dr this afternoon with more good news. He’s pretty sure my breathing problem is not heart related, even though I have a stint, but we scheduled a stress test to completely rule it out. In the past when I’ve been on this high a prednisone dose I’m wound up as tight as a tick and sleeping has been difficult, Last night I slept a full 8 hours. This will make my neighbors happy as I won’t be awake mowing their driveway with a weed whacker at 2am LOL.. All positive.. Dutch
Thanks Colleen. Had an appointment with my cardio Dr this afternoon with more good news. He’s pretty sure my breathing problem is not heart related, even though I have a stint, but we scheduled a stress test to completely rule it out. In the past when I’ve been on this high a prednisone dose I’m wound up as tight as a tick and sleeping has been difficult, Last night I slept a full 8 hours. This will make my neighbors happy as I won’t be awake mowing their driveway with a weed whacker at 2am LOL.. All positive.. Dutch
Hope I’m on the right site and place for a update on my NSCLC Stage 4 in my right lung, lymph nodes, head, spine & ribs. My oncologist in Arizona didn’t seem to think there was any concern for my severe breathing difficulties following 14 radiation treatments in Dec/Jan for a small 2.5cm tumor in my left lung. We returned to our home State 10 days ago and already had 1 appointment with my oncologist, a CT scan and 2 appointments with my pulmonary Dr. The CT scan shows the right lung, head, lymph nodes, spine & rib are still clean, cancer free, ALL GONE. The radiation treatments caused radiation pneumonitis in the left lung leaving me with only 30% lung capacity. They put me on 60mg of prednisone daily, temporarily suspended my immunotherapy, Keytruda, until the breathing improves and I’m weaned down to 10mg or less prednisone per day. After 3 days I feel like the prednisone is starting to alleviate some of the breathing difficulties. The fluid in my right lung is still persistent and we drain about 500cc off every 3 days. I can live with that and am not considering pleurodesis. Like my Dr’s agree, “you’ve beat the odds already, so why take a chance of not getting off the operating table?”. So, it’s all good news, I’m feeling very positive and encourage everyone to never give up!!! Dutch..
Hope I’m on the right site and place for a update on my NSCLC Stage 4 in my right lung, lymph nodes, head, spine & ribs. My oncologist in Arizona didn’t seem to think there was any concern for my severe breathing difficulties following 14 radiation treatments in Dec/Jan for a small 2.5cm tumor in my left lung. We returned to our home State 10 days ago and already had 1 appointment with my oncologist, a CT scan and 2 appointments with my pulmonary Dr. The CT scan shows the right lung, head, lymph nodes, spine & rib are still clean, cancer free, ALL GONE. The radiation treatments caused radiation pneumonitis in the left lung leaving me with only 30% lung capacity. They put me on 60mg of prednisone daily, temporarily suspended my immunotherapy, Keytruda, until the breathing improves and I’m weaned down to 10mg or less prednisone per day. After 3 days I feel like the prednisone is starting to alleviate some of the breathing difficulties. The fluid in my right lung is still persistent and we drain about 500cc off every 3 days. I can live with that and am not considering pleurodesis. Like my Dr’s agree, “you’ve beat the odds already, so why take a chance of not getting off the operating table?”. So, it’s all good news, I’m feeling very positive and encourage everyone to never give up!!! Dutch..
I had my second chemo treatment and that was the first time they used my port, when giving me the keytruda towards the last of the injection I had sharp pains going down both my arms and then across my chest, they gave me my steroid injections and it went away has anyone ever felt this ? what happened to the other site ?
@loula- YAY for you! There are all sorts of weird things that you can feel during infusions. I also had to have an infusion before my port was put in and the chemical (or force of it) blew out a vein.
This is an updated Connect, fixing all sorts of blips! Don't you love it?
I had my second chemo treatment and that was the first time they used my port, when giving me the keytruda towards the last of the injection I had sharp pains going down both my arms and then across my chest, they gave me my steroid injections and it went away has anyone ever felt this ? what happened to the other site ?
I had my second chemo treatment and that was the first time they used my port, when giving me the keytruda towards the last of the injection I had sharp pains going down both my arms and then across my chest, they gave me my steroid injections and it went away has anyone ever felt this ? what happened to the other site ?
Hi!, A lot has happened, I’ve found that I’m ALK positive, and started taking oral alectinib on Saturday. I had additional scans done on Friday, and compared to those taken in March, things are progressing. I’ve been hanging in there while the symptoms were progressing too. So, I’m excited to get started with treatment and get things headed in the right direction. Take care!, and have a good week.
@lls8000- It's always so hard to hear that treatments aren't working after getting our hopes up. How is it going with oral alectinib? Have you had any side effects yet?
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@loula- Good morning. I'm wondering how you are doing with your treatments. I hope that where you live is bright and sunny for you to enjoy.
Merry
@dutchw, I'm glad to see your sense of humor has remained completely intact.
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1 ReactionThanks Colleen. Had an appointment with my cardio Dr this afternoon with more good news. He’s pretty sure my breathing problem is not heart related, even though I have a stint, but we scheduled a stress test to completely rule it out. In the past when I’ve been on this high a prednisone dose I’m wound up as tight as a tick and sleeping has been difficult, Last night I slept a full 8 hours. This will make my neighbors happy as I won’t be awake mowing their driveway with a weed whacker at 2am LOL.. All positive.. Dutch
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2 ReactionsThis is the perfect place for an update, @dutchw. While it's not a cake walk, your news is very encouraging.
Hope I’m on the right site and place for a update on my NSCLC Stage 4 in my right lung, lymph nodes, head, spine & ribs. My oncologist in Arizona didn’t seem to think there was any concern for my severe breathing difficulties following 14 radiation treatments in Dec/Jan for a small 2.5cm tumor in my left lung. We returned to our home State 10 days ago and already had 1 appointment with my oncologist, a CT scan and 2 appointments with my pulmonary Dr. The CT scan shows the right lung, head, lymph nodes, spine & rib are still clean, cancer free, ALL GONE. The radiation treatments caused radiation pneumonitis in the left lung leaving me with only 30% lung capacity. They put me on 60mg of prednisone daily, temporarily suspended my immunotherapy, Keytruda, until the breathing improves and I’m weaned down to 10mg or less prednisone per day. After 3 days I feel like the prednisone is starting to alleviate some of the breathing difficulties. The fluid in my right lung is still persistent and we drain about 500cc off every 3 days. I can live with that and am not considering pleurodesis. Like my Dr’s agree, “you’ve beat the odds already, so why take a chance of not getting off the operating table?”. So, it’s all good news, I’m feeling very positive and encourage everyone to never give up!!! Dutch..
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2 ReactionsThanks but I figured it out !
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2 Reactions@loula- YAY for you! There are all sorts of weird things that you can feel during infusions. I also had to have an infusion before my port was put in and the chemical (or force of it) blew out a vein.
This is an updated Connect, fixing all sorts of blips! Don't you love it?
@loula, can I help you find something? You asked "what happened to the other site?" What are you looking for?
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1 ReactionI had my second chemo treatment and that was the first time they used my port, when giving me the keytruda towards the last of the injection I had sharp pains going down both my arms and then across my chest, they gave me my steroid injections and it went away has anyone ever felt this ? what happened to the other site ?
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Helpful -
Hug
1 Reaction@lls8000- It's always so hard to hear that treatments aren't working after getting our hopes up. How is it going with oral alectinib? Have you had any side effects yet?