Anyone out there living with stage 4 lung cancer?

@gprior , As if one person with cancer wasn't enough in your family. I hope you have some help and support. Are his doctors looking to relieve some pressure on the brain? Has targeted radiation been ruled out?

2 weeks ago my husband was diagnosed with stage 4 lung cancer with mets to brain, spleen and pelvic bone, the tumours in his brain caused brain bleed and swelling, he started having seizures, his mobility and cognitive functions are impaired, the drs are talking brain surgery!! Anyone out there in a similar situation?? It's very distressing as I myself am fighting cancer. Any advice appreciated .

Welcome! I’m living with stage 4 lung cancer which nodules had spread to liver and stomach. Did chemo treatments (Carbopltin, Pemetrexed , pembrolieumab) for 7 or 8 months. Tough road so went on Keytruda and have stayed the same since except do not get sick. Have blow out for a day and half and than feel good till next treatment. (Every 21 days). So far so good.

@gprior Please consider starting a new thread. It will get more attention that way.

Very sorry for this diagnosis. I've known several people who had craniotomies for their brain mets and see them doing well at patient conferences.

I pray that you both have the best possible outcomes from your treatment.

2 weeks ago my husband was diagnosed with stage 4 lung cancer with mets to brain, spleen and pelvic bone, the tumours in his brain caused brain bleed and swelling, he started having seizures, his mobility and cognitive functions are impaired, the drs are talking brain surgery!! Anyone out there in a similar situation?? It's very distressing as I myself am fighting cancer. Any advice appreciated .

update March 9th results of Feb 28th scan...see below.

Re-posting the status of my cancer... ... I have Adenocarcinoma Non small cell lung cancer stage 4.. PDL-1 less than 1% with no mutations... I was diagnosed in December of 2018 but did not begin treatments until late February 2019 by the time they finalized my PET scan, sending my biopsy to Toronto to see if I qualified for immunotherapy etc... my oncologist said that the information came back from Toronto that I did not qualify for immunotherapy so they began my therapy with two different chemo drugs... CARBOplatin and Premetrexed (aka:Altima) I was given the combo of the two chemo drugs for 4 infusions every 3 weeks... then just premetrexed for the next 7 infusions every 3 weeks.. I was told by my oncologist that in Oct 2019 that the chemo drugs were no longer shrinking my tumours.. so They began giving me infusions of Nivolumab (aka: Opdivo) every 4 weeks, my last infusion to date was on Feb 13th, 5 infusions so far... I will not know if the immunotherapy is working until I have my next scheduled CAT scan this Friday, Feb 28th.. will get the results from my oncologist on March 9th. I am praying for a miracle to hear NED... I know this drug has done wonders for many people... The only thing that confuses me at this point is why I was told I did not qualify for the drug when I was first diagnosed and now they are giving me the drug... so who knows.. I will be asking my new oncologist on my March 9th appointment that question and will let you know the outcome either way... Please feel free to share your journey in hopes that other people will learn from it or find out there is hope ... and never accept the diagnosis of there is nothing more we can do for you... ALWAYS SEEK A SECOND OPINION and never give up hope...

OKay.. .here are the results of my scan after 5 infusions of Novolumab (Opdivo) from Feb 28, 2020 scan... guess its kind of stable.. 2 steps forward and one step back...The tiny nodules identified within the right lower lobe the lung have almost completely resolved tiny nodules noted within the right lower lobe the lung measuring 2 mm. The subsegmental atelectatic changes with some degree of speculation identified involving the right lower lobe the lung have also significantly improved, on the prior examination speculated area measured 1.2 x 0.6 cm in size the current examination measures 1.2 x 0.4 cm in size less nodules are noted in this location. Multiple nodules noted involving the left upper lobe the lung have also resolved. Of note however, there is a larger mass identified involving the left lower lobe the lung measuring 1.4 x 1.5 cm in size, on the prior examination measuring 0.8 x 1.2 cm in size is also a new nodule identified involving the lower aspect of the left upper lobe the lung measuring 0.5 cm x 0.5 cm in size.

@janlanderz- Actually that's fine that he set up a separate appointment to answer your questions. He might have been very busy the day you saw him. I have had lung cancer for 22+ years with 2 types of cancer. I am stage 4 with no metastasis. I have asked every darn question know to mankind (lol) and have found a lot of them can't be answered. Have you googled your question? Can I ask what your question is so that I can help you understand more?