Hello, can we talk? I have multinodule goiter on my thyroid and suffer from Laryngospasms & dysphagia. I have had 6 abdominal surgeries… removal of gallbladder, removal of a large Mesenteric cyst with followup incisional hernia where Marlex mesh was implanted in 2000. Since that implant… GERD and a hiatal hernia led to a nissen fundoplication 2013, which slipped within a year. Constant weight loss without trying. Lost 100 pounds somewhere. Weighed 210 in 1999, now I am 110. Hah! Constant stomach pain. When I reached the point of total despair, a friend helped find a new surgeon… he performed a toupet fundoplication, followed by another mesh implant surgery… and I haven’t been right since. Each surgery has taken extra time due to the large amount of adhesions. Sick all the time, whether I eat or not. Surgeries took away ability to throw up, so what goes in only has one way out… within 1 to 3 hours. Horrific bathroom visits. I also have positional pains in the stomach area, as well as internal pain. I get sick if I don’t eat… have passed out and hit my head twice now. I almost always get sick when I DO eat… and the list of foods to avoid has increased dramatically. I only have room for about a cup or two of food. I only drink water.
I quit my only job of 36 years to recover & revive, losing my health insurance. But I didn’t worry… Because I THOUGHT I was fixed. My husband’s job does not offer insurance and we cannot afford it on our own. Two and a half years later I am still in the same place… Misery Lane.
Afraid of food, afraid of what else is going on inside me, afraid of doctors… afraid I can’t be fixed ever.
But my will to live keeps me fighting and looking for help again. I haven’t seen a doctor for almost 3 years now. Many friends have referred me to Mayo. I know I just need to take this first step… but I am afraid. What if there is no help? Any advice would be appreciated. Has anyone else suffered from these fundoplications? Thank you!