Lumbar stenosis and C spine stenosis
Hi, I’m new so I’m going to give this a go. I have lumbar stenosis and recent decompression at L3,L4.I was at a large University hospital in Florida with a complex spine surgeon. I also have C spine stenosis and was told I needed fusion of c5-6 and 6-7. I have pain over shoulder blade but my biggest concern is severe weakness in my arms and legs. I was told To do lumbar spine first follow with C spine. I had 3 hours of L3L4 surgery and discharged the same day. I had no therapy ordered and no follow up up appointment until the day the doctor would sign the note to return to work. I did okay for 2 weeks, then developed an overwhelming fatigue, severe low B/P when standing. I was on 3 B/P meds at the time. I then became dehydrated. On week five I developed neurological issues. Balance walking, mental cognitive function , difficult using hands. Severe sleep problems. Not due to pain. The decompression did nothing for the pain I have while sitting but I was hopeful it would help the weakness. Every message to the physician who is two hours away was a very typical “it’s not related to surgery call your PCP” They give you this book that says call for any reason. I drive 2 hours to see the doctor and he has his hand on the doorknob. Start to mention the neck surgery as in I am not well enough to proceed and wanted to wait for summer. He quickly interjected “oh , I looked at your x-rays, their not that bad, you don’t need a c spine fusion” I mentioned the severe weakness in my arms and legs and he says the surgery is not meant to help that. I’m kind of at a loss because these were all the things we talked about at consultation. So now I’m no better from the surgery which I accept happens. I know he is an exceptional surgeon as he was the 4th I saw. My GI doctor at the same University hospital got me in to him because I was told neck surgery can cause problems with swallowing and I already have that problem. So, today I see my general Orthopaedic surgeon that did my knee replacements. I hoped he could direct me to a physical therapist and my PCP could right the order. He then told me he thought L3,L4 was not enough surgery. I should have had L3,L4, -L4, L5 decompression. He felt the severe weakness in my legs was coming from the problem in my C spine. I trust his opinion as he was the first to diagnose this over a year ago. So now I’m stuck. I don’t think another neurosurgeon in Tampa where I live will take me on because I had neurosurgery 6 weeks ago by a top complex spine surgeon in the state. I don’t think at this point I can survive another surgery. Nothing has changed. My pain that the neurosurgeon said he was treating was pain while sitting that feels like my pelvis is crushing the nerve into the chair. I don’t know where to turn at this point. My weakness is going to continue and my quality of life is no better. There’s a spine center on every corner here. After reading so many people got no relief, or for that fact they are worse leads me to believe this is just the way things will be. Any input is welcomed. Thank you.