Low Platelets: Diagnosis to be confirmed

Hi Colleen I have been getting injections for over a year now and I saw the oncologist on the 15th. Tomorrow I go in for blood work and an injection but I really don't expect any big changes although I am hoping to have a better platelet level fingers crossed

Hi Mary, that does sound frustrating. I'm sure this frustration sounds familiar to fellow members like @rockitman @hlmcneely @elenarey77 @lulujuice @emcdanie2006.

How long have you been doing the weekly injections? Have you been to see the oncologist since your last reading on Nov 15?

I have been dealing with a low platelet cont for the past two years my doctor tells me that they don't know what the cause of my ITP is. Started out with infusions and moved to promacta when that didn't work I started receiving weekly injection shots. As of November 15 my platelet count was at 8000 and fluctuates every time I see my oncologist. This is very frustrating not knowing what in the world is going on with my body.

Hello all, I have been dealing with a very low platelet count for the past year now, currently at 11,000. Been on prednisone and when at 50 Mg count has gone up as much as 140 but very time the dosage is lowered count goes down significantly. My platelet count was 340,000, got COVID shot then 30 days later developed bruising and blood test revealed platelet count at 19,000. A year later prednisone seems to be losing its affects and count not going up. Dr is starting me on Rituxmab next week. 4 -8 weeks. As of today I'm developing symptoms i never had before such as blood in my nose and on the white of my eyes. Getting nervous. Dr didn't seem alarmed at my count of 29 so just waiting the week until i start the Rituxmab. Hoping someone has had similar experience and the Rituxmab worked. I was 48 and perfectly healthy before i got the vaccination, Now a year later i was forced to retire and getting worse

My cousin (31 year old female) has had a very low blood platelet count for over 2 months now. She got down to 6k and was hospitalized for 3 days and they are not telling her anything other than it could be chronic or a one time thing. She has taken steroids to boost her levels back up but the moment she stopped, they dropped back down to 26k within a matter of a few days. She has had numerous labs and testing and they aren't fixing her problem and seem to not even have an inkling as to what is really going on with her. Any thoughts or ideas on what we should do next?

My cousin (31 year old female) has had a very low blood platelet count for over 2 months now. She got down to 6k and was hospitalized for 3 days and they are not telling her anything other than it could be chronic or a one time thing. She has taken steroids to boost her levels back up but the moment she stopped, they dropped back down to 26k within a matter of a few days. She has had numerous labs and testing and they aren't fixing her problem and seem to not even have an inkling as to what is really going on with her. Any thoughts or ideas on what we should do next?

Hello, I have reoccurring TTP. I have had 4 bouts, the first was in 2009. I was treated with Rituximab (Rituxin) through IV and it is a series of 4 treatments. Prednisone will also affect your blood sugar levels, possibly making them higher so please monitor. I was also treated with plasmapheresis (frozen platelets) to increase my platelets. My body shuts off the Adams T13 enzyme that makes platelets. I am wondering platelets should be between 150,000-400,000. My lowest was 6,000 and below 11,000 there is concern for internal bleeding! So I am confused with you number 17!
I hope you find answers! Blessings always!