Low LDH Muscular Dystrophy?

Posted by cmmichaela @cmmichaela, Feb 12 10:42am

I have had multiple health issues over the past 12 years with sporadic periods of "health" and about normal function. Most of my health issues started with a severe EBV infection with Hepatitis, Hashimotos and Papillary Thyroid Cancer, bouts of leg paralysis with no physiological explanation (nothing but peripheral neuropathy detected on nerve conduction testing and normal EMGs) these
episodes were followed by about a month of
leg weakness each time these episodes occurred. The latest strange episode is a single four-day long period of extreme hip joint pain that went away but left me unable to walk normally, or for any real distance other than shuffling around my house. I was just a week ago finally diagnosed with Celiac Disease, which very well be the cause of my troubles all this time... But I was tested for LDH and Aldolase and both of these are lower than normal. I wonder if my Celiac enzyme deficiencies could be causing this? I have my doctors stumped and they aren't sure who to send me to. I have seen on the Muscular Dystrophy website that low LDH can be a reason for exercise intolerance, which seems
to accurately sum up what I am currently experiencing. Can anyone tell me how low of an LDH can cause these types of issues? What further testing is needed? (My nerve conduction and EMGs are only showing peripheral neuropathy and Brain/Spine MRIs from last year are normal). Does anyone have any recommendation on what type of doctor to see and where to go? (I'm willing to travel!)
Sorry for the lengthy and thank you for any advice you can give!

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