Low grade ureter and renal pelvis kidney cancer diagnosis.

My husband has low grade upper utherial kidney cancer also now spread to the bladder. Tumors removed through research study laser therapy, but cancer returned to papillary and bladder. Dr. now wants to start the Jelmytin therapy through the neph tube still intact. Do we get a second opinion to see if this can be done closer to home rather than 600 miles away for the 6 wks course?

Also yes I am a nurse at Mayo Clinic in Rochester.

Most people don't have severe side effects. Only one patient has had "severe" side effects that I know of. We haven't treated a lot of patients yet. Jelmyto has been only approved for a little over a year. I don't have the success rate maybe Dr. Potretzke does. It would be best to consult with him.

Bevers89. Are you a nurse at Mayo? Sorry to learn about the potential side effects you are seeing with the use of Jelmyto. Question: Are the side effects frequent and severe? How many cases have you folks treated with Jelmyto? What has been the complete response success rate for the patients you folks have treated with Jelmyto?

I am one of the nurses who instill Jelmyto and we have had a mix of side effects. Some individuals have no side effects and others have nausea, diarrhea, etc. Dr. Potretzke is the doctor who performs this treatment.

So sorry to learn of your diagnosis. Have you sought a second opinion? Any type of chemo treatment discussed such as JELMYTO or GemDoce infusion drip into kidney that drains thru ureter?

I was recently diagnosed with an aggressive squamous cell tumor of my lower third of ureter. They did the diagnosis by biopsy. Now Uretrectomynis scheduled for Monday. Kidney will be left in as I have stage three kidney disease.
Praying for the best outcome.

@concerneddaughter — How is your dear mother doing? This forum has been silent for a long time. I hope everyone is OK.

@pcondon How are you doing with the Jelmyto treatments? Any side effects?

Hi there! I posted on November 3rd that I had my ablation on 10/25. It went well and I’m feeling good. My urologist thinks he got the tumor out and wants to go back in around March to take another look. After the surgery, he told me that I was NOT a candidate for the Jelmyto treatment after all because of where my tumor was and the consistency of the tissue that he removed. I plan on picking his brain about that when I see him in March. I hope you are doing well with your treatments!