Anyone taken low-dose short-term IV steroids for autonomic neuropathy?

@runnergirl, @2011panc has previously mentioned low-dose short-term IV steroids here: https://connect.mayoclinic.org/discussion/3rd-stage-kidney-disease/?pg=9#comment-205104

Another member @cehunt57 also shared their experience here and may be able to come back and share more with you: https://connect.mayoclinic.org/discussion/happy-transplantiversary/?pg=2#comment-149951

While we wait to see if they are able to join you, can you share if this was a recommendation by your Neurologist or if this is something you've been researching independently?

Thanks Amanda for the mention. @runnergirl in regards to your question on autonomic neuropathy & steroid use, I have a history of autonomic neuropathy, specifically gastroparesis. It is a complication of my diabetes. I have never heard of the use of steroids associated with this.

Thanks for the info, @cehunt57 - sorry to hear you're struggling too. Mine is idiopathic and widespread throughout my body. I'm still reluctant to go down the steroid rabbit hole.

@amandajro, thanks for researching for me. My neurologist mentioned it, as did my hematologist. But, I've been searching for help since my symptoms started in 2007. I believe they're just trying to find anything to help me, which I appreciate. But, I'm reluctant and would rather find the root of the problem.

Have to be careful with steroids as they can exacerbate diabetes / greatly increase blood glucose levels

@govisri, thankfully I do not have diabetes, but yes, this is just one more reason I'm reluctant. Thanks for the input.

The long term damage that steroids can do is well documented in literature. It is for this reason that I’ve never had lumbar spine injections of cortisone for my OA, spinal stenosis or extremely neuropathy. I’ve never heard of this type of procedure except maybe in a critical care unit. You are smart to stay clear.

Thanks, @jenatsky, for both the support and for sharing your personal experience.