Loss of My Life, My Future Because of Alzheimer’s.

I don't want to give you false hope but I have a relative (that I moved a long way to be near) who has dementia and was told by doctors and dementia professionals years ago it would be progressive and unfortunately that was the way it would be. There would be no reversal. Well, my relative is far better in all respects than they were years ago. I believe this had to do with the fact they went into assisted living where they got the right medication, professional care and all day stimulation. No one can explain it, one exceptional caregiver knew that it was possible, and expects more improvement, and I am totally amazed each time I visit. They wear me out each time I go as they want to walk around the facility, inside and out, for literally hours and socialize along the way with anyone we come across. When they arrived at the assisted living facility years ago they were unintelligible, could barely walk and the prognosis was dire! So you never know!

@gingerw thank you.
Denial. The game we’re playing right now is hide it under the carpet and maybe it’ll go away. That’s my family not me. I acknowledge my disease every time I meet somebody and they need to know I do however my family that’s too much they are still looking at me like really are you kidding me? You’re fine. I feel like I have to prove to them that I am really sick. It’s frustrating.

My biggest problem right now is Ataxia. That is causing me more problems than anything else. I cannot walk without a walker and my balance is so bad that if I don’t have the walker, I crash into the walls. I just had to get eyeglasses for the double vision. It’s just not a pleasant disease either so both of them mixed together. Gives me quite a job every day to stay sane.

Ah, but my sanity remains in place when I place my troubles into the hands of Jesus Christ. He is the rock on which I stand. He will neither leave nor forsake me. I am blessed.

I can relate to the first poster. I have been diagnosed with MCI and an MRI confirms vascular dementia changes. I was not surprised as I could tell I was having cognitive issues for quite a while. It is a lot to deal with. I am going to check out the DAA website.

@gingerw thank you.
Denial. The game we’re playing right now is hide it under the carpet and maybe it’ll go away. That’s my family not me. I acknowledge my disease every time I meet somebody and they need to know I do however my family that’s too much they are still looking at me like really are you kidding me? You’re fine. I feel like I have to prove to them that I am really sick. It’s frustrating.

My biggest problem right now is Ataxia. That is causing me more problems than anything else. I cannot walk without a walker and my balance is so bad that if I don’t have the walker, I crash into the walls. I just had to get eyeglasses for the double vision. It’s just not a pleasant disease either so both of them mixed together. Gives me quite a job every day to stay sane.

Ah, but my sanity remains in place when I place my troubles into the hands of Jesus Christ. He is the rock on which I stand. He will neither leave nor forsake me. I am blessed.

I am sorry to hear of your issues with Dementia. There are 5 children in my family, we're all past 60, I'm 77. Four have Dementia, my youngest sister thinks she may have it, just not diagnosed. I have no symptoms, but I'm Stage 4 Kidney disease. When my oldest sister, to whom I was closest to, announced her dementia, I was definitely guilty of hide and go seek. Deny & she'll be better was the way I hid the disease at first.
As it progressed, the symptoms came out very loud & clear. She didn't know me. Now those of us in town have breakfast together once a month with time racing against us. I am using what I learned with my now deceased older sister to support my brother when we're together. I pray for cures for healing this terrible disease.

DAA looks good, but it looks like something DOGE will or has taken funding away from. Does anyone know? I don't want to get started and then have funding stopped.

SusanEllen66 I Was just diagnosed with MCI this past year. Family members say the same "you're okay". My answer is you don't live with me. My husband knows differently. The future scares me when I think of what may happen but Christ is indeed in control. We are blessed. This Mayo Clinic Connect has helped me but has also opened my eyes as to what might be ahead for my husband in caring for me.

@SusanEllen66 Reading your introductory made me wish I could be there to give you the biggest hug ever. I have tears in my eyes. I've experienced this with family and friends. Know that you are special, your life has meaning and those of us on here, who don't know you personally, care. I hope you can feel my big Norwegian hug!