1. < Melanoma & Skin Cancer

Looking for success stories for Uveal Melanoma Metastasizing to liver?

Posted by Marlene Eckert @me1229, Aug 4, 2024

I was diagnosed with OcularUveal Melanoma in 2023I had successful radiation treatment. My recent scan of the abdomen shows 8 highly suspicious lesions in my liver yet none are big enough to biopsy. My next scan is 8/9 and I see an oncologist 8/12. I also have a 2nd opinion scheduled at MD Anderson in Jacksonville, Florida, my hometown. I am trying to remain positive that I can beat this. I have changed my diet to reduce all sugar, trying to eat very healthy, walking, and trying to reduce stress. I have 2 books, one I just finished titled How to Starve Cancer and another The Metabolic Approach to Treating Cancer. Anyone out there with advice or success stories they can share with me? Do’s and Don’ts ?

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leigha67 | @leigha67 | Feb 15 11:47am
In reply to @me1229 "@leigha67 I’’m still great. My next round of scans will be March 4th. I’m praying I..." + (show)
@me1229

@leigha67 I’’m still great. My next round of scans will be March 4th. I’m praying I just remain stable with no growth in the lesions.

Where was your radiation done and who is your oncologist. Make sure you write down all your questions before going to them.

When you had your radiation last year did you have them do a biopsy to determine the likelihood of metastasis? I opted for that biopsy and results indicated a 50/50 chance of spreading so I came out on the bad side of the 50! LOL.

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Hello @me1229, I'm so happy to hear from you. I have been so terrified and just speaking (typing...) to others in this boat is such a blessing. YAY at no lesion change. I'm so happy to read you're stable! My radiation was done in Boston. I live in Tucson and begin seeing an oncologist at U of A next week. I have a retinal oncologist who diagnosed this. I didn't opt for the biopsy as I was too frightened of poking the bear (possibly releasing more cancer cells) and I was told in Boston that treatment was the same regardless. When I saw my retinal oncologist yesterday morning, he became quite angry, raised his voice and almost shouted that was why he'd sent me to Boston in the first place, said that it was proven that having the biopsy wasn't dangerous, and that treatment was different depending on the results. I've been in tears since. I wish that he were more compassionate, but at least he has given me good recommendations so far and I'm grateful for that. I'm currently reading 'how to starve cancer'. I'm determined to fight this with all my might. I'll lose weight, do intermittent fasting, read everything I can find, juice, eat healthy, take supplements...I have people who depend on me and want to be there for them, as I'm sure most of us do. That's enough of my moaning. I'm sure we've all felt the same things. How has your experience been? Have you read good things that are helpful? What things work best for you and bring you peace, if I may ask?

REPLY
1 reply
leigha67 | @leigha67 | Feb 15 11:37am
In reply to @sszantay "Hi Marlene, I’m the sszantay, Sue, mentioned above. I believe you are doing everything you can..." + (show)
@sszantay

Hi Marlene, I’m the sszantay, Sue, mentioned above. I believe you are doing everything you can to ward off “cancer”. What we’ve been told most of our lives, “what we put into our bodies will decide how well our body takes care of Us”. I can only speak for myself but I’m not all in on that saying. I don’t think we did anything wrong to get uveal melanoma.
I believe it’s ok to be a “sponge”…..use, talk, share whatever you need to get through the tuff times. I personally think the word “ Suspicious” scares everyone but I’ve found that others who have this word in their scans comes back just fine. Don’t assume the worst until it hits you in the face. Go out with friends, family etc and laugh & enjoy because today you don’t have liver “c” .
Your in my prayers!

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Sue, I apologize for commenting on a post that wasn't directed toward me, but your words are so encouraging. I'm just beginning this uveal melanoma journey and so frightened, which I know isn't good for the body, but I'm beginning to read and research and becoming more and more determined to do everything I can to fight this. Your advice and sharing touched my heart and makes such sense. Thanks, Leigha.

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leigha67 | @leigha67 | Feb 15 11:34am
In reply to @gisellef "Good advice from @sszantay Enjoy every day and build resilience for anything that might come up...." + (show)
@gisellef

Good advice from @sszantay
Enjoy every day and build resilience for anything that might come up. Do exercise regularly, stay hydrated, eat healthily and reduce exposure to harmful toxins. Try and reduce stress and get good sleep. Your chances of navigating this successfully is much improved by taking excellent care of yourself. That goes for every one of us regardless whether we are dealing with cancer or not. Read “Outlive” and you’ll learn a lot about how disease takes root from an oncologist who has become tired of dispensing medicines and treatment protocols for existing conditions and is proposing ways for us to avoid or address conditions at an early stage. What you do every day can have an impact but by the same token, don’t obsess over it. Enjoy life and embrace every moment. You will prevail.

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I'm sorry to butt into a conversation that wasn't directed at me, but these words are so encouraging and just starting this cancer journey, I read them and they brought me some hope this am. Thank you.

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Marlene Eckert | @me1229 | Feb 15 10:13am

@leigha67 I’’m still great. My next round of scans will be March 4th. I’m praying I just remain stable with no growth in the lesions.

Where was your radiation done and who is your oncologist. Make sure you write down all your questions before going to them.

When you had your radiation last year did you have them do a biopsy to determine the likelihood of metastasis? I opted for that biopsy and results indicated a 50/50 chance of spreading so I came out on the bad side of the 50! LOL.

REPLY
1 reply
leigha67 | @leigha67 | Feb 15 4:59am

I was diagnosed with metastatic uveal melanoma in Nov, 2024. Had radiation in 12-24. Scan of liver was clear then. Going to begin seeing an oncologist. Terrified. Glad your lesions were stable. Wondering how you are doing?

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1 reply
sszantay | @sszantay | Aug 12, 2024
In reply to @me1229 "Great news, the scan reveals the lesions remain stable. I’m thankful that it shows no growth,..." + (show)
@me1229

Great news, the scan reveals the lesions remain stable. I’m thankful that it shows no growth, still 8 lesions with max size 5mm. Thanks for asking.

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Keep the faith!🙏

REPLY
sszantay | @sszantay | Aug 12, 2024
In reply to @gisellef "Good advice from @sszantay Enjoy every day and build resilience for anything that might come up...." + (show)
@gisellef

Good advice from @sszantay
Enjoy every day and build resilience for anything that might come up. Do exercise regularly, stay hydrated, eat healthily and reduce exposure to harmful toxins. Try and reduce stress and get good sleep. Your chances of navigating this successfully is much improved by taking excellent care of yourself. That goes for every one of us regardless whether we are dealing with cancer or not. Read “Outlive” and you’ll learn a lot about how disease takes root from an oncologist who has become tired of dispensing medicines and treatment protocols for existing conditions and is proposing ways for us to avoid or address conditions at an early stage. What you do every day can have an impact but by the same token, don’t obsess over it. Enjoy life and embrace every moment. You will prevail.

Jump to this post

Words to live by for everyone. 🙏

REPLY
gisellef | @gisellef | Aug 11, 2024
In reply to @sszantay "Hi Marlene, I’m the sszantay, Sue, mentioned above. I believe you are doing everything you can..." + (show)
@sszantay

Hi Marlene, I’m the sszantay, Sue, mentioned above. I believe you are doing everything you can to ward off “cancer”. What we’ve been told most of our lives, “what we put into our bodies will decide how well our body takes care of Us”. I can only speak for myself but I’m not all in on that saying. I don’t think we did anything wrong to get uveal melanoma.
I believe it’s ok to be a “sponge”…..use, talk, share whatever you need to get through the tuff times. I personally think the word “ Suspicious” scares everyone but I’ve found that others who have this word in their scans comes back just fine. Don’t assume the worst until it hits you in the face. Go out with friends, family etc and laugh & enjoy because today you don’t have liver “c” .
Your in my prayers!

Jump to this post

Good advice from @sszantay
Enjoy every day and build resilience for anything that might come up. Do exercise regularly, stay hydrated, eat healthily and reduce exposure to harmful toxins. Try and reduce stress and get good sleep. Your chances of navigating this successfully is much improved by taking excellent care of yourself. That goes for every one of us regardless whether we are dealing with cancer or not. Read “Outlive” and you’ll learn a lot about how disease takes root from an oncologist who has become tired of dispensing medicines and treatment protocols for existing conditions and is proposing ways for us to avoid or address conditions at an early stage. What you do every day can have an impact but by the same token, don’t obsess over it. Enjoy life and embrace every moment. You will prevail.

REPLY
2 replies
Marlene Eckert | @me1229 | Aug 11, 2024
In reply to @colleenyoung "Welcome, @me1229. I encourage you to read this hopeful and helpful post by @sszantay about their..." + (show)
@colleenyoung

Welcome, @me1229. I encourage you to read this hopeful and helpful post by @sszantay about their journey with uveal melanoma.

How did your scan appointment go? Thinking of you for your appointment with the oncologist on Monday.

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Great news, the scan reveals the lesions remain stable. I’m thankful that it shows no growth, still 8 lesions with max size 5mm. Thanks for asking.

REPLY
1 reply
Marlene Eckert | @me1229 | Aug 11, 2024
In reply to @sszantay "Hi Marlene, I’m the sszantay, Sue, mentioned above. I believe you are doing everything you can..." + (show)
@sszantay

Hi Marlene, I’m the sszantay, Sue, mentioned above. I believe you are doing everything you can to ward off “cancer”. What we’ve been told most of our lives, “what we put into our bodies will decide how well our body takes care of Us”. I can only speak for myself but I’m not all in on that saying. I don’t think we did anything wrong to get uveal melanoma.
I believe it’s ok to be a “sponge”…..use, talk, share whatever you need to get through the tuff times. I personally think the word “ Suspicious” scares everyone but I’ve found that others who have this word in their scans comes back just fine. Don’t assume the worst until it hits you in the face. Go out with friends, family etc and laugh & enjoy because today you don’t have liver “c” .
Your in my prayers!

Jump to this post

Thank you so much for your encouraging note. I have a great family and close friends support group. The amount of diet information is overwhelming. I’m taking some baby steps now to have an eat healthy, which I should have done years ago. I am keeping a positive attitude but sometimes slip but your note made me happy today. God bless you and Thanks again.

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