Looking for Hope

My husband suffered a massive ruptured brain aneurism nearly 9 months ago. They said he wouldn't wake, eat, walk, talk. Gave him a 10% shot at survival. His surgeon saved his life and told me this would be the hardest journey filled with steps forward and lots of steps back. I had to be stronger than I could ever thought would be possible. He was right. Today, he is walking, talking, cognition is coming back, eating normally … we are still dealing with memory loss (short term is the most frustrating) and bouts of ptsd that has resurfaced from childhood trauma. This is a long journey. The doctor said what you see today, will not be the same in one week, one month, one year or two and to ignore those that believe he can’t. It is tough, I won’t lie. But I have faith that every day is closer to revovery.

Thank you. Thank you so much! These are the stories I need to hear. I joined a TBI wives group on Facebook and the stories I see there fill me with dread.

Hello and welcome to the brain injury world. My injury happened 22 years ago from falling down a ladder, had a craniotomy, spent a year for speech and occupational therapy, joined a group support group, and most importantly I am still recovering. When you had your 1st child born you probably bought a book to tell you what to expect weekly/monthly/yearly. There is no such book for brain injuries. Each injury is different person to person. Keep a notebook/journal/calendar to write down good things that happened today... like "yesterday I couldn't do ???, today I did it", or maybe, "I remembered to change the cat litter box without being told". Little things are just as
important as big things. Write them down as things you gained. It's hard, but don't worry about things he can't do, love what he can do. We do get better but it takes time. It takes a lot of energy for our brains to rewire itself. And rewiring itself is exactly what is going on. See if there is a local support group he can walk in, even just once, so he knows he is not alone. Meeting other survivors helped me. Believe in him, help him believe in himself.

The brain is and amazing organ God made us to heal physically and mentally ! I believe the brain 🧠 is complex but is able to heal from mild to major trauma. It’s going to take time but continue seeing your amazing doctors and find support groups to help you on your journey . There is hope keep enjoying those good days and keep positive !

Hi all,
Having a TBI member is great to all of us and some or most has been a member from different ways close to you area or online for you And your TBI users.

For me, 13 years ago that day just before I am going to work, but exercise one block on my bicycle. Well, my bike was adding a day before to add part of the riding and it hit my new way of the professional worker. it looked and hit the top of my left top-side of my brain. My life changed. I lost my memory, understanding, walking. I spent time at hospitals and became a hole-in-the-head. That head helped and helps my water inside my brain-needs.

Today, my life is alive but I can’t understand or memories before that. It’s gone, but my memory, for the last 3 years - when started - is sorta back. Part of my memory lost what songs when I play my guitars is gone but I can play my guitar but my memory uses is not there. I loved working at my city; is gone. I was one close to my master-degree, but that ended.

Thankfully I’m happy with my great wife and the rest of my family And I’m here ♥️

Thx,
Greg D. @greg1956

I found the that BrainLine.org was very helpful articles lost and found and articles under related helped me understand what with my brain was happening. Articles like what not to say to me. Ways to help people understand what I am going through. I lost my smell,taste and more emotion been 2 years. I have my good days and bad days.

Thank you for the post 📫 it was nice to read your message. Im not a doctor just someone who had a brain tumor removed last year. Saying there are a lot of people who care on these sights and welcome to the group