Long Time Survivor With Concerns re Metastasis
I had surgery at Jacksonville Mayo 12 years ago to remove a section of my upper intestine and a pile of tumors in my abdomen. They told me that my condition was metastatic, although my pain and other symptoms "magically" disappeared. Their advice was to see a local oncologist for regular check-ups, which I did for a while. I saw the Mayo oncologist 10 years ago because I was having minor symptoms, and he told me that none of their imaging tests would show anything because remaining tumors would be too small to show up. He did say that I surely had tiny tumors remaining, because they knew they were unable to get them all. those symptoms have mostly dissipated, so I appear to be cancer free, but I know I am not.
My question is to others who have metastatic conditions but remain fairly healthy. Do you have regular blood and urine tests to check the 5-HIAA and blood markers? Is there an advantage in having these tests done occasionally? For my own peace of mind, I am thinking of going back to Mayo for a complete check-up, but am not sure they would think it is necessary. Meanwhile, I am grateful that I have not had the issues that many of you have, and I appreciate your sharing your journeys with this group