Long term side effects for gemdoce treatment for nmibc
I had the initial six weekly Gemdoce treatments, and mostly the side effects got a little stronger each time.
After a clear cystoscopy, my doctor prescribed one treatment every four weeks for a year, with a break in the middle for a cystoscopy.
I have only had 3 treatments of this year of every four weeks, and I am experiencing worse side effects each time. Two weeks after this third one, I barely feel that the side effects are much less. They seem to get worse each time and last longer.
Has anyone else experienced this? I erroneously thought that the method of putting the chemo into the bladder would mean no systemic side effects, but not true.
I am more tired and shaky each time and two weeks after the last one, I am still very tired and shaky.
It is mostly impossible to keep up well with work and home.
Anyone else go through this?
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You will find similar experiences on BCAN/Inspire. Unfortunately, we are all unique as is our response to treatments: from efficacy to (debilitating) side effects.