Completing 5 years on Anastrozole: Did you continue or stop after 5?

Posted by cashoots @cashoots, Jan 2 12:23pm

I’m coming to the end of my 5 years on Anastrozole and would like feedback on stopping or continuing with it.

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Profile picture for beyourownadvocate @beyourownadvocate

Yes, my doctor recommended it.

I thought that was strange because when I started, the protocol was ten years, possibly for my life.

But I did some research in medical journals. Data was showing that some patients who continued long term were prone to lung embolisms,

Ask your doctor what he or she thinks, do your own research and then decide for yourself.

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@beyourownadvocate

And my genetic testing supported the shorter length of anastrozole.

Like I said, do your own research, talk with your doctor and decide for yourself.

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Does anyone know the percentage of recurrence for breast cancer after 5 years of taking the Anestrozole?

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Profile picture for tisme @tisme

I did 5 years on it , then at the recomendation of the oncologist I stopped I wonder about the side effects is hair loss as a result of that or age ? ( I am 65)

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@tisme
I’m having good results with oral minoxidil for hair loss. Prescribed by my dermatologist.

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Surgery in 2017, followed by seven years on Arimidex. Hair loss, joint pain, neuropathy/toes. Oncologist said no benefit to continuing, so I quit.

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I’m just switching from letrozole to anastrozole beginning tomorrow. Pre-lumpectomy with surgery scheduled for mid-March. Conversation with oncologist is now leaning to possible mastectomy which angers me. The whole idea of taking AI was to avoid mastectomy. Because I have had the lump for over 2-1/2 years, I am frustrated and disappointed in my “care” since first alerting doctor then fighting to have ultrasound and being told “nothing to worry about !” Due to fact I had breast cancer over 20 years ago, why didn’t they do a biopsy back then??😡 Instead, after quite “accidentally” finding endometriosis from an MRI due to pneumonia hospitalization over a year later, and referred to OB-GYN who forced the ultrasound which IMMEDIATELY was then diagnosed with ILC. That was nearly a year ago and here I am. Turning 79 next week and abhor the thought of 1) a possible mastectomy after all this time, and 2) taking AI for probably the rest of my life! I’m going to fight taking my chances rather than all the side effects of AI. Quality of life vs. treating multiple side effects seems worth the chances at this point.

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Profile picture for beyourownadvocate @beyourownadvocate

@tisme

Hair loss happens as we age. But I think the drugs speed it up. I have no evidence and I’ve always had sparse hair. But I feel that the loss of hormones has to have an effect on hair, skin and body functions.

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@beyourownadvocate Absolutely. Hair loss happens with Anastrozole. No doubt about it. I'm 75, been on Anastrazole for 2 1/2 yrs, had surgery, now doc wants me to continue it for another 2 1/2 years to total 5. Probably not gonna do it. I can take the risk and live out my life without all the side effects, with little hair, aching bones, etc , and that's what I intend to do.

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Profile picture for buckokey @buckokey

I’m just switching from letrozole to anastrozole beginning tomorrow. Pre-lumpectomy with surgery scheduled for mid-March. Conversation with oncologist is now leaning to possible mastectomy which angers me. The whole idea of taking AI was to avoid mastectomy. Because I have had the lump for over 2-1/2 years, I am frustrated and disappointed in my “care” since first alerting doctor then fighting to have ultrasound and being told “nothing to worry about !” Due to fact I had breast cancer over 20 years ago, why didn’t they do a biopsy back then??😡 Instead, after quite “accidentally” finding endometriosis from an MRI due to pneumonia hospitalization over a year later, and referred to OB-GYN who forced the ultrasound which IMMEDIATELY was then diagnosed with ILC. That was nearly a year ago and here I am. Turning 79 next week and abhor the thought of 1) a possible mastectomy after all this time, and 2) taking AI for probably the rest of my life! I’m going to fight taking my chances rather than all the side effects of AI. Quality of life vs. treating multiple side effects seems worth the chances at this point.

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@buckokey
You are the one who gets to decide. No one can make you do anything. Second opinions sometimes help YOU to decide. You are the captain of your ship. It’s a difficult journey. ❤️💕❤️

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Profile picture for buckokey @buckokey

I’m just switching from letrozole to anastrozole beginning tomorrow. Pre-lumpectomy with surgery scheduled for mid-March. Conversation with oncologist is now leaning to possible mastectomy which angers me. The whole idea of taking AI was to avoid mastectomy. Because I have had the lump for over 2-1/2 years, I am frustrated and disappointed in my “care” since first alerting doctor then fighting to have ultrasound and being told “nothing to worry about !” Due to fact I had breast cancer over 20 years ago, why didn’t they do a biopsy back then??😡 Instead, after quite “accidentally” finding endometriosis from an MRI due to pneumonia hospitalization over a year later, and referred to OB-GYN who forced the ultrasound which IMMEDIATELY was then diagnosed with ILC. That was nearly a year ago and here I am. Turning 79 next week and abhor the thought of 1) a possible mastectomy after all this time, and 2) taking AI for probably the rest of my life! I’m going to fight taking my chances rather than all the side effects of AI. Quality of life vs. treating multiple side effects seems worth the chances at this point.

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@buckokey
Ughh I am angry for you. To clarify you have an ILC lump that they found last year amd its not been removed yet? I am sorry for your journey I would be so frustrated.

Xoxo

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Profile picture for beyourownadvocate @beyourownadvocate

@beyourownadvocate

And my genetic testing supported the shorter length of anastrozole.

Like I said, do your own research, talk with your doctor and decide for yourself.

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@beyourownadvocate
May I ask, what is the genetic testing? I’m almost at five years.

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Profile picture for ltlov93 @ltlov93

Does anyone know the percentage of recurrence for breast cancer after 5 years of taking the Anestrozole?

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@ltlov93
https://breast.v3.predict.cam/tool
This sight might give you more information about your situation. 💕❤️💕

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