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Long Covid since March 2021- need to choose between Tylmos or Forteo?

Posted by mountainlover @mountainlover1, Sep 27 6:48am

Have had long covid since March 2021 with over a dozen chronic and recurring doctor diagnosed symptoms. My symptoms include moderate to severe myalgia’s, increased inflammation leading to bulging veins, headache, G.I. upset, paresthesias, and fatigue among others that are more intermittent.. The moderate to severe myalgias (just like fibromyalgia but Covid caused it) and fatigue are the most problematic and daily. I also have intermittent mast cell activation manifested as hives and itchy skin. My hips have osteopenia on Dexa but had a fragility fracture in February (thought it was muscle strain) and my spine in may had increased to -4.3. No fractures there yet but have no choice but to go this route . I have never done well with daily meds. PPI's for 9 years didn't help the GERD/LPR but docs insisted "to prevent cancer." Unfortunately they played a role in my osteoporosis. Before starting the meds Dexa was normal. Since age 16, I did weight bearing aerobic exercise daily and started weight/resistance training in my 40's. Currently I am age 73. Trying to decide between two bad options in my opinion. Could never do the fosamax drugs in the past because of GERD and newer ones seemed too scary. Anyone out there with Long Covid who has done OK with these drugs?

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gigi4 | @gigi4 | Sep 28 9:29am

If you want my regimen, I’d be happy to share but it requires a lot of explanation. send me your email if you’re interested. It is too long to put here.

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mountainlover | @mountainlover1 | Sep 28 11:40am
In reply to @paxbar "@mountainlover1 Part D Medicare limits your copay for catastrophic drugs to $2100 annually regardless of how..." + (show)
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@mountainlover1
Part D Medicare limits your copay for catastrophic drugs to $2100 annually regardless of how many catastrophic drugs your are taking. Could you explain the “2400” comment? Take care.

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@paxbar I looked up what it’s going to be for 2027. It was increased under the current administration. And cleverly on their part seniors don’t become aware of it until they sign up for part D. Their budget bill delayed some of the stuff in there not to start until 2027. Apparently in 2027 there are talks by this administration to make more cuts to Medicare and Medicaid. I just hope they don’t end the yearly cap and go back to the way it was when these daily injectable drugs were cost prohibitive for those of us on Medicare part D. It is a main reason I’m waiting until January to start taking something that I should have started this summer. I’m not gonna give them an extra $2400 a year if I don’t have to and I’m always concerned that they will undo this and go back to the way it used to be. More seniors need to be aware that this is happening and that it may well continue to happen and if they care about this talk to their representatives and vote accordingly

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paxbar | @paxbar | Sep 28 2:07pm
In reply to @mountainlover1 "@paxbar I looked up what it’s going to be for 2027. It was increased under the..." + (show)
Profile picture for mountainlover @mountainlover1

@paxbar I looked up what it’s going to be for 2027. It was increased under the current administration. And cleverly on their part seniors don’t become aware of it until they sign up for part D. Their budget bill delayed some of the stuff in there not to start until 2027. Apparently in 2027 there are talks by this administration to make more cuts to Medicare and Medicaid. I just hope they don’t end the yearly cap and go back to the way it was when these daily injectable drugs were cost prohibitive for those of us on Medicare part D. It is a main reason I’m waiting until January to start taking something that I should have started this summer. I’m not gonna give them an extra $2400 a year if I don’t have to and I’m always concerned that they will undo this and go back to the way it used to be. More seniors need to be aware that this is happening and that it may well continue to happen and if they care about this talk to their representatives and vote accordingly

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@mountainlover1
Really good information.

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