Long COVID and breast size changes: anyone else?

Posted by jeindc @jeindc, 1 day ago

I swear it happened "overnight" - that I'd not noticed with monthly self-breast exams that one breast is significantly smaller and one significantly larger. I had a mammogram (an ordeal because I use a wheelchair and can't stand for more than a few minutes at most. They had to arrange for a "special" appt. to have what looked like a combo giant high-chair/wheelchair on which to sit!) and "something" was seen in the much smaller breast. Oddly, the larger one that hurts (maybe because it's so much bigger now? it's like my youth when it would ache monthly) showed no abnormalities. Going back for more extensive testing. Why tho' are they not concerned about the size changes? Of course all my long-time docs retired in 2019 so the new ones, bec of COVID and lock down, have no real history with me.

I did a search here and generally and here there are some previous discussion about breast cancer post-COVID and not this specific issue. The left one gets in the way now and I'd like to find it amusing and I do not.

Anyone else?

It's been almost monthly since April 2023 and COVID that new symptoms are added. If I were a scientist I would investigate me!

Thanks.
JE

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ewilson1960 | @ewilson1960 | 1 day ago

Hi, You’re the first person I’ve heard of that had that happen. Except me. Lol. I had covid in November 2021. Then the vaccine in April 2022. That’s when things went haywire. The first “symptom “ was breast changes. I went from 34A to a 36D in a couple of weeks. The left one hurt in
My armpit area. At the time none of my docs connected anything to long covid. Said I was getting older (I was 62 at the time and very athletic and slim). My boobs hadn’t been that big since the day after giving birth. Had all the mammograms and scans. Nothing.
I’ve been taking Low dose Naltrexone for about 5 months now and almost all of my symptoms have decreased big time. Breasts are now 34B. Finally feeling closer to myself than I have in a long time as well as getting lots of energy back. The only thing I can attribute the change to is that my hormones (even thyroid) went totally crazy. So now off of thyroid hormones as well as estrogen/progesterone/testosterone I was taking.
I hope this helps. You’re not alone!

pdoubrava | @pdoubrava | 1 day ago

I have said it to so many drs...you should be studying me. I am a medical puzzle. Plez care!!

jeindc | @jeindc | 4 hours ago

In reply to @ewilson1960 "Hi, You’re the first person I’ve heard of that had that happen. Except me. Lol. I..." + (show)

@ewilson1960 is it too exuberant to say I LOVE YOU?! When I read this Thurs. 10/23, I was flabbergasted. .. like you were with my post.

I hadn't posted because it's still new and all that I searched did not tie it at all to COVID, long COVID, or vaccinations - only to hormones, aging, weight change, and other conditions, none of which I have. LONG past menopause at 78, I had early onset puberty (not quite 9) and early onset perimenopause (in my mid-30s) and menopause in my 40s. On and off HRT, I've been back on because I continued to have horrendous hot flashes and in my then profession (I retired in Dec. 2024) they were not an option not to mention how miserable I felt.

Please clarify for me:
- you WERE on thyroid replacement? On HRT?
- had you had COVID when this occurred or only the vaccinations? IF COVID, when and how long after did your breasts change?
- which vaccinations had you had before this occurred?
-From what you wrote about size, it sounds like both breasts changed at the same time, yes? One of mine has grown dramatically and the other shrunk dramatically. It's the shrunken boob [sounds like the name of a great and sarcastic band!]that on the mammogram 2 weeks ago showed "some abnormality". Nothing shown on the left - the one that hurts - aches - as does the underarm. It feels like I remember pre-period pain.

I read a bit about Naltrexone and it sounds like it will conflict with other medications I'm on. I have a slew of docs treating me and now not treating me. (It is horrible when THE specialist - an infectious disease doc who is considered one of the best in our area, affiliated with a well-respected med school and hospital, dropped me, saying there was no more she could "find" and not enough research for ALL my post-COVID symptoms. I have docs treating other symptoms, COSTCO tested my hearing and yes, it's 70% gone from COVID so hearing aids, and the list goes on. NO one but me coordinating all of it.

So...does Mayo allow us to someone communicate privately if you are willing? I do not want to bore everyone with our boobs!

Thank you for seeing this and responding. It allows me for 11/3 and the super-duper whatever they are doing mammogram or other imaging to say "it's not just me"!

Gratitude in abundance.
JE (Joan)