long covid

Posted by carmelbythesea @carmelbythesea, Jul 26, 2023

I have been having problems ever since I got my first two covid shots over 2 years ago. I have the typical brain fog and fatigue but also extreme sweating and chills. I am covered in sweat 24/7. So I noticed that some of my symptoms are similar to the people with long covid and I am trying some supplements to see if they will help.

This is a brutal thing to go through and the doctors do not have any answers.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Just google the following article in the Wall Street Journal :

"Think you've never had Covid 19 ? Think again."

This is a real eye opener.

REPLY

I’m so sorry. This is a world that you do NOT want to enter, I’m sure! But— you can get help thru this chat. I sure did. My drs had said: “ that’s not a symptom of long haul” or “your labs look great!”— (which means nothing is wrong.) Have you had drs not help you yet?
I’m sure you have.
It’s validating to hear others say I’ve changed my pj’s 4x a night because of sweating… no, it doesn’t help, I know. But now you KNOW you’re not crazy! There’s a chat thread talking about sweating. You should read it. And I’m warning you now: people will SWEAR by this fix or this drug? Be careful. ESP in long haul: this isn’t measles, where one fix fixes us all. We have completely diff symptoms: some fatigue, some insomnia; some gain weight for no reason, some are losing weight, are at dangerous places—and don’t know why.
Just know that I get it…I hate this sweating ( and hate most other symptoms worse !). Just.. I’m so sorry.

REPLY

Yeah... definitely don't get anymore of the vaccines... Sorry to hear that. There are PLENTY of people who end up with Covid/long haul symptoms from simply getting the boosters etc.

There are answers though. You must balance your nervous system. Have you tried cold plunges or ice baths? This tends to be a "reset" for every system in the body. I never had profuse sweating so I can't speak directly to that, but I did heal 90% from all my other long haul symptoms. I wish you all the very best!

REPLY

Thanks for the advice. Sounds like you have been through a lot.

I think I am getting closer to some help. It appears I may have Long Post Covid Vaccination Syndrome or
LPCVS. More and more doctors are recognizing this. All my problems started after I got my first 2 covid shots over 2 years ago. I also have a terrible problem with chills so the cold plunges might be difficult but I may give it a try.

Thanks again. Much appreciated.

REPLY

Yes, profuse night sweats, changing pjs (more than once per night) and sheets in the middle of the night but freezing cold at the same time. Vaccinated 1/21 and 2/21. I would never get another vaccine. Good for some but not others.

Because of the constant chills (all summer),I have not tried the cold plunge but I do take as cool of a shower as I can tolerate and try to end it with a minute or two of colder water. I’m trying to build my way up to colder. Maybe you could start there? They do say this is very beneficial to your health. I have not found anything yet to combat the debilitating fatigue. And Thank you Car0 I will check out the thread on sweating as well!
So glad I found you guys ❤️

REPLY
@car0

I’m so sorry. This is a world that you do NOT want to enter, I’m sure! But— you can get help thru this chat. I sure did. My drs had said: “ that’s not a symptom of long haul” or “your labs look great!”— (which means nothing is wrong.) Have you had drs not help you yet?
I’m sure you have.
It’s validating to hear others say I’ve changed my pj’s 4x a night because of sweating… no, it doesn’t help, I know. But now you KNOW you’re not crazy! There’s a chat thread talking about sweating. You should read it. And I’m warning you now: people will SWEAR by this fix or this drug? Be careful. ESP in long haul: this isn’t measles, where one fix fixes us all. We have completely diff symptoms: some fatigue, some insomnia; some gain weight for no reason, some are losing weight, are at dangerous places—and don’t know why.
Just know that I get it…I hate this sweating ( and hate most other symptoms worse !). Just.. I’m so sorry.

Jump to this post

Ohmygosh! Can’t believe I am reading this. Wow! I am pretty certain my long covid and autoimmune disease stemmed from my covid vaccinations, as well. The first 2 shots and the last one seemed to have really made me ill. I’m am recovering from 10 days in hospital and 5 weeks in a skilled nursing facility or SNF because I needed iv antibiotics daily for a rare bacterial infection in my spine. I’m so thankful to see recognition for these reactions to the vaccines

REPLY

Bless the doctors who actually hear and believe what their patients are saying. My doctor diagnosed me with vaccine induced neuropathy at my first appointment with her. She had seen several patients presenting with the same symptoms after vaccination. Having her validation was key in how I moved forward and her belief that that type of neuropathy could heal gave me the hope and patience I needed to deal with my diagnosis. Completely healed. Extremely grateful.

REPLY

Glad you have a good doctor

REPLY
@carmelbythesea

Just google the following article in the Wall Street Journal :

"Think you've never had Covid 19 ? Think again."

This is a real eye opener.

Jump to this post

I would love to read this, unfortunately, you need a subscription. Can you highlight some of the main points?
Thank you

REPLY

Will send you the free link later today.

REPLY
Please sign in or register to post a reply.