1. < Breast Cancer

Lobular Breast Cancer: Let's share and support each other

Posted by mjay @mjay, Jul 28, 2022

Since lobular breast cancer is only 10-15% of all breast cancer diagnoses and now understood to be a unique subset of breast cancer as a whole with different characteristics than ductal breast cancer necessitating different treatments and inherently different risks, I would like to see a separate category under the breast cancer forum so that the most appropriate info is being disseminated for this specific subset of BC. Just a thought.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

llthomson | @llthomson | 4 days ago
In reply to @sharonandkathy "I have ILC. Had lumpectomy 2 weeks ago. Saw an oncologist and she want to put..." + (show)
@sharonandkathy

I have ILC. Had lumpectomy 2 weeks ago. Saw an oncologist and she want to put me on Anastrozole. Anybody experiences are helpful.

Jump to this post

I have ILC stage 3. I had lumpectomy and finished radiation last September. I started Anastrozole last January so I have been on it for 1.5 years. I have arthritis and osteoporosis. Anastrozole makes both worse. My joints are very stiff when I wake. I found that walking 30 minutes a day helps a lot. I am trying to hold my osteoporosis in check by exercising and taking supplements. My numbers are stable with slight improvements. I am still active and can do most of what I was doing before. Good luck to you. Keep active and eat healthy.

REPLY
1 reply
sharonandkathy | @sharonandkathy | 3 days ago

I'm surprised they put you on that drug. I was told if I have osteoporosis they would not give it to me. They did a bone density test, but my results are not in yet. I do have arthritis. I'm not sure if I will take it. Thanks for sharing

REPLY
marshgirl24 | @marshgirl24 | 3 days ago
In reply to @sharonandkathy "I have ILC. Had lumpectomy 2 weeks ago. Saw an oncologist and she want to put..." + (show)
@sharonandkathy

I have ILC. Had lumpectomy 2 weeks ago. Saw an oncologist and she want to put me on Anastrozole. Anybody experiences are helpful.

Jump to this post

Hi,I too have had ILC. Lumpectomy in October. Radiation 3 wks in Dec. I've been on anastrozole for five months. Only recently have I had stiffness and pain in my legs. Really weird because I've never had that before. I'm 79 and I ride my bike some mornings. On other days I work out...rowing machine, etc. I think staying active helps along with a topical called Icy Hot. I'd like to work with this med as long as I can. Good luck to you! I have taken supplements for years, including glucosamine. We kind of have to dial things in as we go along, I think.

REPLY
buckokey | @buckokey | 2 days ago
In reply to @callalloo "1.5 to 2 mm is so tiny that it's impressive that it was detected. The cancer..." + (show)
@callalloo

1.5 to 2 mm is so tiny that it's impressive that it was detected. The cancer I had was estimated at 5 mm by mammo and ultrasound. And totally undetectable by physical exam. Thanks to the increases in precision technology that are saving lives.

Jump to this post

Yes I’m also told hard to detect—but I had an egg-sized lump and was told “nothing to worry about”—until 15 months later when I was diagnosed! Just beginning long journey…letrozole, to shrink tumor then surgery. Hoping for lumpectomy instead of mastectomy. Angry that no one followed up sooner on this lump since I had lumpectomy on opposite breast 24 years ago! Healthcare is broken…

REPLY
1 reply
luckbme | @luckbme | 1 day ago
In reply to @buckokey "Yes I’m also told hard to detect—but I had an egg-sized lump and was told “nothing..." + (show)
@buckokey

Yes I’m also told hard to detect—but I had an egg-sized lump and was told “nothing to worry about”—until 15 months later when I was diagnosed! Just beginning long journey…letrozole, to shrink tumor then surgery. Hoping for lumpectomy instead of mastectomy. Angry that no one followed up sooner on this lump since I had lumpectomy on opposite breast 24 years ago! Healthcare is broken…

Jump to this post

I'm so sorry to hear your story. Ignoring an egg-sized lump? That doctor should have his license taken away.

REPLY
sharonandkathy | @sharonandkathy | 6 hours ago
In reply to @llthomson "I have ILC stage 3. I had lumpectomy and finished radiation last September. I started Anastrozole..." + (show)
@llthomson

I have ILC stage 3. I had lumpectomy and finished radiation last September. I started Anastrozole last January so I have been on it for 1.5 years. I have arthritis and osteoporosis. Anastrozole makes both worse. My joints are very stiff when I wake. I found that walking 30 minutes a day helps a lot. I am trying to hold my osteoporosis in check by exercising and taking supplements. My numbers are stable with slight improvements. I am still active and can do most of what I was doing before. Good luck to you. Keep active and eat healthy.

Jump to this post

Thank you for your support

REPLY
View MoreView Less
Please sign in or register to post a reply.