Lobular Breast Cancer: Let's share and support each other

Posted by mjay @mjay, Jul 28, 2022

Since lobular breast cancer is only 10-15% of all breast cancer diagnoses and now understood to be a unique subset of breast cancer as a whole with different characteristics than ductal breast cancer necessitating different treatments and inherently different risks, I would like to see a separate category under the breast cancer forum so that the most appropriate info is being disseminated for this specific subset of BC. Just a thought.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

I also want to list other lobular breast cancer-related discussions in the Breast Cancer group:
- Metastatic lobular breast cancer in stomach https://connect.mayoclinic.org/discussion/metastatic-lobular-breast-cancer-in-stomach/

- Ductal carcinoma in situ in one breast, lobular hyperplasia in other https://connect.mayoclinic.org/discussion/ducal-carcinoma-in-situ-in-left-breast-and-lobular-hyperplasia-in-othe/

- I have LCIS, anyone else? https://connect.mayoclinic.org/discussion/lcis/

- LCIS: should I take Tamoxifen? LCIS: should I take Tamoxifen? https://connect.mayoclinic.org/discussion/lcis-should-i-take-tamoxifen/

- The math of invasive breast cancer risk for LCIS https://connect.mayoclinic.org/discussion/the-math-of-invasive-breast-cancer-risk-for-lcis/

- LCIS-Age 61 (post menopause) diagnosis- AI’s a good idea? https://connect.mayoclinic.org/discussion/lcis-age-61-post-menopause-diagnosis-ais-a-good-idea/

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I'm interested. I am almost 9 years from my first Stage o diagnosis and 7 years from my Stage 1, bi lateral mastectomy for Lobular Breast Cancer.....it's a tricky one and does present differently. This group is a great idea. Thank you!

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@mjay, great idea to bring women with lobular breast cancer together. @jackiestack and @ssalget, can you share more about your diagnoses?

I think @claudiamaria @ja5747 @marybe and @bowhunt1969 @cindylb @kszilvia @varalax @rarelybees2889 @nycoceans @lisman1408 @elsie37 @nobody may also want to join in.

What's you lobular breast cancer diagnosis? How are you today?

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Definitely interested in others experiences.

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