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Lobular Breast Cancer: Let's share and support each other
Since lobular breast cancer is only 10-15% of all breast cancer diagnoses and now understood to be a unique subset of breast cancer as a whole with different characteristics than ductal breast cancer necessitating different treatments and inherently different risks, I would like to see a separate category under the breast cancer forum so that the most appropriate info is being disseminated for this specific subset of BC. Just a thought.
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I wonder how this will differ from or add to the recommendations just published here: (https://www.uspreventiveservicestaskforce.org/uspstf/recommendation/breast-cancer-screening). These recommendations seem to decrease the frequency of mammogram and discourage use of MRI. Am I reading that wrong? It's a losing battle to get anything more than the lousy mammo that apparently missed my cancer for probably a few years, though religiously obtained them. No source of consolation for me 🙁 .
When it comes to the Find It Early Act, I would love to know what qualifies a person for additional screening such as MRI. Seems to me there will be all sorts of caveats one must meet and those, like me, with early stage ILC and smallish tumor will be SOL. Not optimistic any of this will help those with true early stage.
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1 ReactionI, too, had good results with this cancer--radiation with zero ill effects. Took Letrozole for 5 years and am doing great. I wish you the same good luck.
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4 ReactionsThanks for sharing as my tech didn’t mention the flush at my Breast MRI last month!
Yes it is protical to flush. But ask the radiologist and facility and tech to make sure they flush at conclusion of mri of breasts with dye.
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1 ReactionSuper helpful! Is it current protocol to flush?
I just got off phone with radiologist and my breast surgeon office. I am having mri in July and told them I want a flush after mri concluded of my breasts in July to get rid of gadilinium in system. They assured me that they will bolous flush gadilinium out at conclusion of my breast mri. Yay! You all need to make sure at conclusion of your breast mri that the facility is bolousing flushing the gadilinium out as much as possible. I will remind them when they do my mri of my breasts in July.
Scheduled my mri of breasts July 29th. I spoke to hospital and radiologist and they said after mri with dye gadilinium, they bolous dye out of system. Make sure when you have mri of breasts that your facility flushes dye out at conclusion of mri.
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1 ReactionIf you read the dye paper that you sign read when you have dye with mri it says you should only have the dye 4 times in life. Apparently it goes in brain and other places in body. Drinking water and Gatorade after exam only flushes so far. I am requesting a IV flush after mri. I just want to connect with people that have had the IV flush. Who out therehas? Thanks
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1 ReactionI read fine print on the gadilinium(sp) dye used with the mri of breast and it says not to use more than 4 times in life time. Unfortunately, I have used it in other studies as well in other parts of my body. I am requesting the flush IV after my breast mri in July and requesting Medicare to pay. Has anyone out there had Flush IV after mri with dye procedure? Thanks
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1 ReactionMy onco fought me on MRI at Dana Farber even though lobular and very dense breasts still at 58 yrs old! She finally put in order and my insurance did cover! Congress has The Find it Early Act but no action so far but this will make ins companies cover breast MRI for those at higher risk! I’ve also read that while the contrast has been found to stay in some areas of body no ill effects have been proven. Early detection is all we have!
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