1. < Liver Cancer

Living with Stage 4 Liver Cancer

Posted by cu2 @cu2, May 17, 2022

Has anyone been diagnosed with Liver Cancer, I'm just seeking knowledge and my emotions are all over the place. Everyday is a gift and I will forever be Grateful, Thankful and Blessed 🙌

Interested in more discussions like this? Go to the Liver Cancer Support Group.

jshirley | @jshirley | Jun 27, 2023
In reply to @lynwarn "Dear Heart, Emotions are good and bad in any situation. I have stage 4 liver cirrhosis..." + (show)
@lynwarn

Dear Heart,
Emotions are good and bad in any situation. I have stage 4 liver cirrhosis with a 1.8 size cancer tumor. I gave to wait until the tumor grows to a size 2, then they will add radiation beads in the tumor, treat the diseased blood and plan on a liver transplant. I'm 66. When I first heard, I remember being overwhelmed, living in chaos and overthinking. My resolution for emotion is sharing with only those I trusted or here. It helped me to get it out, and find support groups. It's okay to cry. Crying relieves stress. Stress can be devastating to the healing process. I'm open to talk more. I've found I need support with others who have experience. I've been in this process since November and have improved emotionally. It's still on the surface daily.

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Hi @ lynwarn,
I am new to this and wondering what type Cancer do you have. Is it strictly HCC or a Mets from somewhere else??
I also have cirrhosis but diagnosed with CCA (Bile duct cancer). I had stable liver disease and just monitor by the Charlotte Transplant team. But all that changed in Fall 2022.
I have been septic with E. Coli and they couldn’t figure out the source. Long story short… I have since had 4 ERCPs, they found the duct tumor on the Third procedure and therefore had to repeat trying to get better biopsies. My liver team immediately sent me to an instate transplant center and Mayo.
Mayo has done many scans and labs. But I’m waiting on next step.

So are you on the LTP list?? Is Mayo treating the cancer? Are you local to the facility you go to?

I am a 7-8 hr. Drive each way to JAX. They mentioned on my consultation the protocol for my situation would 5 wks. Chemo and Radiation then if I am accepted, they keep me on oral chemo until transplant. But my cancer is not well treated without transplant as the cirrhosis disqualifies me a resection.
I’m sorry for lengthy response but when I read you have cirrhosis and liver Ca. I had to reach out.

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alfonso22 | @alfonso22 | Mar 13, 2023
In reply to @colleenyoung "I'm tagging @cu2 to make sure she sees your lovely post, @dbamos1945. I agree that her..." + (show)
@colleenyoung

I'm tagging @cu2 to make sure she sees your lovely post, @dbamos1945. I agree that her posts and spirit are uplifting and her offers of help and hope inspiring.

How are you both doing?

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Cancer is not the end, It is just the beginning of a new story, A story of courage, strength and hope, A story of never giving up, A story of struggle until the end, This is the story of cancer, The story of us, who fight against cancer.

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gilbertre2 | @gilbertre2 | Feb 9, 2023

No I never thought I would have this terrible disease. God bless all of you and prayers for all !!!

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dbamos1945 | @dbamos1945 | Feb 9, 2023
In reply to @gilbertre2 "Thank you very much. I have to keep positive. Sometimes I have it rough thou. Prayers..." + (show)
@gilbertre2

Thank you very much. I have to keep positive. Sometimes I have it rough thou. Prayers for all of us !!!

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Sending y’all love and peace each day. It sure has helped me accept this funky liver being reminded I am not alone fighting this battle!

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gilbertre2 | @gilbertre2 | Feb 8, 2023
In reply to @1mgd5700 "Gilbert: So glad you have positive attitude. It makes a big difference in beating that “beast”...." + (show)
@1mgd5700

Gilbert: So glad you have positive attitude. It makes a big difference in beating that “beast”. I had breast cancer in 2009; opted for bilateral mastectomies plus chemo. Chemo frightened me more than surgery but it was not as bad as I had imagined. Prayers & keep the faith!

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Thank you very much. I have to keep positive. Sometimes I have it rough thou. Prayers for all of us !!!

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1 reply
1mgd5700 | @1mgd5700 | Feb 8, 2023
In reply to @gilbertre2 "I have liver cancer and pancreas cancer. I’ve been getting better with chemotherapy. My last mri..." + (show)
@gilbertre2

I have liver cancer and pancreas cancer. I’ve been getting better with chemotherapy. My last mri showed it has reduced its size. We pray a lot. I drink a lemon water a day and some guana bana to kill cancer. I’m going to kill this disease

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Gilbert: So glad you have positive attitude. It makes a big difference in beating that “beast”. I had breast cancer in 2009; opted for bilateral mastectomies plus chemo. Chemo frightened me more than surgery but it was not as bad as I had imagined. Prayers & keep the faith!

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1 reply
gilbertre2 | @gilbertre2 | Feb 8, 2023

I have liver cancer and pancreas cancer. I’ve been getting better with chemotherapy. My last mri showed it has reduced its size. We pray a lot. I drink a lemon water a day and some guana bana to kill cancer. I’m going to kill this disease

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1 reply
alfonso22 | @alfonso22 | Feb 8, 2023
In reply to @dbamos1945 "Thank you… reading your words were just what I need to give me prospective. Liver metastases..." + (show)
@dbamos1945

Thank you… reading your words were just what I need to give me prospective. Liver metastases is a tough pill to swallow.
Thanks again for sharing with me!

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No need to thank we all are here to support each other yes it’s hard sometimes but life is a Gods gift we need to enjoy it no matter what ❤️❤️🙏🏻🙏🏻❤️❤️

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dbamos1945 | @dbamos1945 | Feb 8, 2023

Thank you… reading your words were just what I need to give me prospective. Liver metastases is a tough pill to swallow.
Thanks again for sharing with me!

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1 reply
mncwg | @mncwg | Feb 8, 2023
In reply to @alfonso22 "Stay positive our liver cancer is just a phase in our life. Let’s hope we all..." + (show)
@alfonso22

Stay positive our liver cancer is just a phase in our life. Let’s hope we all get better from this cancer. My last MRI does not show tumor on my liver but we all know we can’t cure cancer ☹️ I will have another MRI and blood work on April 3 🙏🏻🙏🏻 let’s live life God has plans for us hugs

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thank you for sharing this thought ! God always in control !

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