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Moderator

Living with Prostate Cancer: Meet others & introduce yourself

Posted by Colleen Young, Connect Director @colleenyoung, Mar 19, 2019

Welcome to the Prostate Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with prostate cancer or caring for someone with prostate cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.

Follow the group. Browse the topics or start a new one.

Let's start with introductions. When were you diagnosed with prostate cancer? What treatments did you have? Tips to share?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

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ecurb | @ecurb | Aug 19, 2024
In reply to @johnernest "Just joined this group. Diagnosed with prostate cancer 2 weeks ago,. Starting hormone therapy this Friday...." + (show)
Profile picture for johnernest @johnernest

Just joined this group. Diagnosed with prostate cancer 2 weeks ago,. Starting hormone therapy this Friday. Hoping to learn how others have dealt with their diagnosis and treatments.

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Get used to fatigue and crepe skin and a bigger belly. Not fun, but no choice

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stevecando54 | @stevecando54 | Aug 19, 2024

Welcome to the group, good luck on your journey, keep posting updates, lots of people on here who will share their experiences of different treatments. I would say a big thing to remember, you are not alone, this personally helps me a lot. I wish you the best on your journey.

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johnernest | @johnernest | Aug 19, 2024

Just joined this group. Diagnosed with prostate cancer 2 weeks ago,. Starting hormone therapy this Friday. Hoping to learn how others have dealt with their diagnosis and treatments.

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3 replies
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phl6953 | @phl6953 | Aug 19, 2024
In reply to @1jmccurry "I was diagnosed in about 2000 with a PSA of 2, but nodules on perimeter of..." + (show)
Profile picture for 1jmccurry @1jmccurry

I was diagnosed in about 2000 with a PSA of 2, but nodules on perimeter of the prostate suggested surgery. So,
I selected the seed implant to avoid incontinence and impotentance. 20 years later my PSA is up to 14, and then in 2 more years up to 16.7. Recently, we did a PET scan and discovered cancer migrating throughout my body.
So now we are on Lupron therapy and wondering what will happen next? It is difficult adjusting to certain facts
about my cancer. Is it really cancer? Seems after the first diagnosis we just waited for the next PSA reading to decide what next. It was always lets see what the next reading will be. Now it has spread throughout my body and
we are treating with hormone therapy and still waiting to see the next PSA reading. Compared to many readings,
a 16.7 is not tremendous. But, it is greater than 0, and that is a concern to me, along with not knowing what is next. Jim McCurry

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You selected the seed implant to avoid incontinence and impotentance.
What is seed implant ?

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stevecando54 | @stevecando54 | Aug 18, 2024
In reply to @beluga "I was diagnosed with Prostate cancer over a year ago and went through radiation treatment. I..." + (show)
Profile picture for beluga @beluga

I was diagnosed with Prostate cancer over a year ago and went through radiation treatment. I have found this forum to be very helpful in understanding the different issues, treatments and feelings of those who share this disease. I also assumed that this forum was secular and science based and not a place for one to promote their individual religious beliefs. Please explain why this is allowed before I unsubscribe from this group.

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First, I'm not really good putting thoughts on paper. From reading your posts, you seem to be upset, that happens to us as we go through our journey. I hope you find peace with your diagnosis. I hope you keep using this site. We are all in the same boat, having good days and not so good days. Just remember, as one smart woman reminded us,, It's not the Titanic. Best to all.

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melcanada | @melcanada | Aug 17, 2024
In reply to @beluga "I was diagnosed with Prostate cancer over a year ago and went through radiation treatment. I..." + (show)
Profile picture for beluga @beluga

I was diagnosed with Prostate cancer over a year ago and went through radiation treatment. I have found this forum to be very helpful in understanding the different issues, treatments and feelings of those who share this disease. I also assumed that this forum was secular and science based and not a place for one to promote their individual religious beliefs. Please explain why this is allowed before I unsubscribe from this group.

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If you leave you will miss good advice, info and helpful idea and survivor stores

Prayer always welcome

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beluga | @beluga | Aug 16, 2024

I was diagnosed with Prostate cancer over a year ago and went through radiation treatment. I have found this forum to be very helpful in understanding the different issues, treatments and feelings of those who share this disease. I also assumed that this forum was secular and science based and not a place for one to promote their individual religious beliefs. Please explain why this is allowed before I unsubscribe from this group.

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2 replies
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gkm | @gkm | Mar 16, 2024
In reply to @stantallusa "I had my Prostate removed in 2000. Robotic. Not sure what went wrong but I am..." + (show)
Profile picture for stantallusa @stantallusa

I had my Prostate removed in 2000. Robotic. Not sure what went wrong but I am now a cripple.
Talked to my GP about doing a bone scan. Seems like my knees and joints are getting very bad. He explained time that if it came back and showed cancer, I would spend whatever life I have left treating it. Is that what I want to do? I am almost 76 now. I think not.

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You haven't provided much information but it doesn't sound like your prostate cancer has come back after 23 years. Therefore I am not sure if anything went wrong. Sounds like it might be an arthritis issue.

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stantallusa | @stantallusa | Mar 16, 2024

I had my Prostate removed in 2000. Robotic. Not sure what went wrong but I am now a cripple.
Talked to my GP about doing a bone scan. Seems like my knees and joints are getting very bad. He explained time that if it came back and showed cancer, I would spend whatever life I have left treating it. Is that what I want to do? I am almost 76 now. I think not.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 15, 2024
In reply to @pinotwinelover "I don't know anything about Dr. David woodroom but I'm meeting him on the 12th for..." + (show)
Profile picture for pinotwinelover @pinotwinelover

I don't know anything about Dr. David woodroom but I'm meeting him on the 12th for a Tulsa consultation. I visited with the best surgeon. I could find Dr. Edward Schaeffer several other focal treatment clinics and radiation expert and I'm leaning toward the least invasive procedure if anybody can vouch for Dr. Woodrum one way or another I would appreciate it.

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@pinotwinelover (I love pinot too), I believe that @bjroc @cupman @ronan2011 have all worked with Dr. Woodrum at Mayo Clinic.
Did you meet with Dr. Woodrum this week? Have you made your treatment choice?

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