Living with Prostate Cancer: Meet others & introduce yourself

Hello Marko, I was in a very similar situation in Sept 2018. There is no rush to do any treatment, do your research and explore all the options. Does your urology group offer anything except surgery or radiation? If you ask and they dismiss anything else as experimental I would recommend you get a second opinion from a group that does offer optional treatments such as HIFU, you could very well qualify for a focal (not whole gland) treatment that would greatly decrease your chances of side effects. Bill

In June I was diagnosed with low stage prostate cancer I had mostly Gleason scores of six and one of seven I chose to do the optimum surveillance as well at that time I also did some genetic testing that showed that I was low risk I had an MRI done three months ago .
The MRI showed I had two lesions in the lower half of each lobe of the prostate I Promptly had another biopsy That told me one of the lesions was cancerous and the other one was not the biopsy was direct and they took more samples the second time I am now considered a stage 2 intermediate.
II saw that before you have your biopsy consult with your physician about an MRI before I am struggling with the options still looking for trials at this point but I’m told I should move quickly

I just came across this interesting study on Active Surveillance in low risk prostate cancer for anyone with Prostate Cancer lucky enough to have low risk.
https://www.practiceupdate.com/c/96039/1/3/

Thanks for the advice. Alot to think about.

Hello welcome to the club no man wants to join. I was diagnosed with Prostate cancer Sept 2018 (Gleason 3+4) and had HIFU treatment Dec 2018. Doing very well, absolutely no side effects which is the reason I chose that treatment. If all you have is Gleason 6 (3+3) you should be a good candidate for Active Surveillance. Your rise in PSA could be coming from the Prostatitis. Treatments for prostate cancer cancer are changing rapidly to types that do not effect your sex life or incontinence that is so common with surgery or radiation. If I had my treatment to do over I would now choose a new form of HIFU called TULSA-PRO That other test you mentioned, was it Prolaris, Decipher, or Oncotype? If so it should help in your decision on what to do. I would also recommend you get a prostate mp-MPI as it is becoming the gold standard in diagnosing cancer. Good luck to you Bill

If you are concerned about your thyroid talk with a Endocrinologist. My thyroid number is 1.54. It did not change during my year of treatment and is still 1.54. So personally I would not worry.

Thanks. I'll check it out.

I would not wait. One thing worth doing is to get a genetic assessment of the aggressiveness of your cancer. it is based on outcomes and genetic profiles of thousands of prior cases. It is called Prolaris and you can find details on the Myriad Genetics web site. The read-out is on a scale of 1 to 10, with 1 being benign. My number was 5 which accelerated my surgery decision. Good luck!

I have used a number of ED medicine and viagara and other things with limited success. have done caverject which is expensive and now use prosta glanden which is a compound and very inexpensive. know more, let me know...

That's what I'm thinking as well. My wife and kids also think I should get it taken care of. It is frwaking them out that I was told I should wait a bit.