Living with Prostate Cancer: Meet others & introduce yourself

Agree with web265.
And, Kegel technique is important and if you have not had direction from an experienced PT, that night be helpful.

Hey @hbnapu
Sorry to hear about the persistence of this issue. If you had RP just about a month ago, you likely had your catheter out a little over two weeks ago, I remember how much I disliked the issues, but, I'd suggest it might be a little early to be overly concerned yet.

At the risk of being a "Capt. Obvious" have you discussed this with your surgeon or asked for a prescription for Physical Therapy for that issue? Some on here have gone to formal PT and found out that they weren't doing the kegels quite correctly and possibly there may be other exercises.
Hopefully this is only temporary!
Mike

Hello,
I'm Rudy and had my biopsy on 10/22 and received my diagnosis of prostate cancer on 12/23/22. I had a Gleason score of 3/4 on 2 of 16 samples from my biopsy. Doctors recommended surgery because I'm 58. My PET scan were negative and I had RP on 3/15/23. During RP doctors removed lymph nodes on one side of my groin area, which tested positive for cancer.

Luckily, some of the nerves around my prostate were spared. Today is the 5th week since my surgery. Recovery has been going well with the exception of my incontinence.

I feel slight improvement with my incontinence. I have the normal leakage upon standing up, which I'm fine with.
What drives me nuts is when I get periods of slow leakage that I can't control, which is everyday. I do the kegel exercises but I don't feel they are working. I am using pads and depends underwear. I use at least 12 pads a day and use the depends to guarantee I stay dry.

I have been walking and moving around since surgery. I read and happy for others who did not get incontinent or had for a short time. The last 2 days I've been keeping my water limiting my liquid intake to around 64 ounces with slight improvement.

Any suggestions to what I'm not doing or doing wrong so I can improve my level of incontinence.

Thanks Rudy

Vp3: I have had experience with the Viewray Mridian Machine. I just completed my five treatments with it in February. The 2mm margins are tighter than other Radiation machines And the automatic gating gave me extra comfort. I had 10.2 psa and 3+4 Gleason. I narrowed my radiation choices down to Proton Therapy and the Mridian machine. I would make that same decision again. Side effects were some restriction of urine flow but I took flomax after 3 sessions and it helped. Happy to answer any questions.

Has anyone had experience with MRI LINAC?
Thx
Victor

Hi Lee, you have successfully joined the Prostate Cancer support group discussions here.

You can also email Dr. Vetter at rvetter@mayo.edu to be added to the monthly invite for the Zoom prostate cancer meetings.

Lee, can you share a bit more about yourself? When were you diagnosed with prostate cancer? Have you had treatment?

I'll keep gabapentin in mind for hormone therapy...interesting. I have been on it for about 6 months for neuropathy and it is working, sort of. better than it was.
My prostate cancer was discovered about 2 months ago and is staged at t2c. I had an MRI before biopsies; they found a PI-RDS 5 lesion in the MRI and 12 of 20 cores were positive 3+4. There were no indications outside the prostate so I selected radiation. My radiologist sent my biopsies to a genetics for to check for 'high risk' of spreading. I said I would have to be convinced to do the hormone thing and should have that info back next week. We'll see. Radiation will likely start in about 10 days; have had the simulation appointment this past week.

My husband was just diagnosed 1 week ago with stage 4 advanced prostrate cancer. His PSA was 225, and the cancer has spread to his spine, ribs, pelvis and lymph nodes. I have sent in a referral to Mayo along with his test results. My question is typically how long does it take to get an appointment at Mayo?

Check out todays Event Update (April 11, 2023) that refers to a Prostate Cancer Support Group that meets on the 2nd Wednesday of each month with a guest speaker from noon to 1:30 Central Time.

Good morning. Is there a group site or a regular zoom meeting. I'd like to join.