Living with Prostate Cancer: Meet others & introduce yourself

Vp3: I have had experience with the Viewray Mridian Machine. I just completed my five treatments with it in February. The 2mm margins are tighter than other Radiation machines And the automatic gating gave me extra comfort. I had 10.2 psa and 3+4 Gleason. I narrowed my radiation choices down to Proton Therapy and the Mridian machine. I would make that same decision again. Side effects were some restriction of urine flow but I took flomax after 3 sessions and it helped. Happy to answer any questions.

Has anyone had experience with MRI LINAC?
Thx
Victor

Hi Lee, you have successfully joined the Prostate Cancer support group discussions here.

You can also email Dr. Vetter at rvetter@mayo.edu to be added to the monthly invite for the Zoom prostate cancer meetings.

Lee, can you share a bit more about yourself? When were you diagnosed with prostate cancer? Have you had treatment?

I'll keep gabapentin in mind for hormone therapy...interesting. I have been on it for about 6 months for neuropathy and it is working, sort of. better than it was.
My prostate cancer was discovered about 2 months ago and is staged at t2c. I had an MRI before biopsies; they found a PI-RDS 5 lesion in the MRI and 12 of 20 cores were positive 3+4. There were no indications outside the prostate so I selected radiation. My radiologist sent my biopsies to a genetics for to check for 'high risk' of spreading. I said I would have to be convinced to do the hormone thing and should have that info back next week. We'll see. Radiation will likely start in about 10 days; have had the simulation appointment this past week.

My husband was just diagnosed 1 week ago with stage 4 advanced prostrate cancer. His PSA was 225, and the cancer has spread to his spine, ribs, pelvis and lymph nodes. I have sent in a referral to Mayo along with his test results. My question is typically how long does it take to get an appointment at Mayo?

Check out todays Event Update (April 11, 2023) that refers to a Prostate Cancer Support Group that meets on the 2nd Wednesday of each month with a guest speaker from noon to 1:30 Central Time.

Good morning. Is there a group site or a regular zoom meeting. I'd like to join.

I agree with the other comments. Definitely get the biopsy done (not just lesion area but entire prostate, especially peripheral regions). If you catch prostate cancer early, side effects can be minimal for the rest of your life. If you let prostate cancer develop too long and then address it, side effects will be significant for the rest of your life.

FYI - Just had a friend go through same situation and biopsies came back negative.

Good luck and I pray the biopsy come back negative!!

Jim

Hello, Is there a site that list Drs at Mayo that do Robotic Prostechtomies?
And How many they have done?
Thks,
Doug

Any one else dealing with multiple diseases I am a recovering alcoholic//addict 20 + Years clean and sober being treated for stage 4 metastatic prostate cancer , Parkinson’s disease, depression and I have anxiety With both shoulders having had surgery on them one really painful now i do my best for one moment at a time in one day at a time