1. < Prostate Cancer
Moderator

Living with Prostate Cancer: Meet others & introduce yourself

Posted by Colleen Young, Connect Director @colleenyoung, Mar 19, 2019

Welcome to the Prostate Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet others living with prostate cancer or caring for someone with prostate cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Mentors on Connect.

Follow the group. Browse the topics or start a new one.

Let's start with introductions. When were you diagnosed with prostate cancer? What treatments did you have? Tips to share?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

whudup1 | @whudup1 | Apr 23, 2023

Theirs is No direct evidence been confirmed!!!

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alanine | @alanine | Apr 23, 2023
In reply to @whudup1 "But look at all the Moderate to Heavy alcohol drinkers that don’t have it I don’t..." + (show)
@whudup1

But look at all the Moderate to Heavy alcohol drinkers that don’t have it
I don’t feel any correlation
Non-Exercise and eating out all the time prolly is more of a issue

Jump to this post

I think for me moderate alcohol and a lot of long distance bike riding ignited prostatitis which in turned lead to cancer. Must be a correlation between prostatitis and cancer? I am a fairly healthy eater and don’t live in the USA. I do think you are correct that most food in restaurants in the USA is poison. Why else do they predict that 60% of adults will have tule two diabetes by 2050. These health agencies like the FDA or a joke.

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whudup1 | @whudup1 | Apr 23, 2023
In reply to @alanine "Hello just recently diagnosed with stage 1 Gleason score 6. Doctors recommended active surveillance. I am..." + (show)
@alanine

Hello just recently diagnosed with stage 1 Gleason score 6. Doctors recommended active surveillance. I am wondering the association of alcohol and prostate cancer. Seems like everyone I speak to that has prostate cancer drank at least a moderate amount of alcohol. Any thoughts? Also Mayo recommended pomegranate juice. Any thought on diet and exercise?

Jump to this post

But look at all the Moderate to Heavy alcohol drinkers that don’t have it
I don’t feel any correlation
Non-Exercise and eating out all the time prolly is more of a issue

REPLY
1 reply
southgeorgia | @southgeorgia | Apr 22, 2023
In reply to @alanine "Hello just recently diagnosed with stage 1 Gleason score 6. Doctors recommended active surveillance. I am..." + (show)
@alanine

Hello just recently diagnosed with stage 1 Gleason score 6. Doctors recommended active surveillance. I am wondering the association of alcohol and prostate cancer. Seems like everyone I speak to that has prostate cancer drank at least a moderate amount of alcohol. Any thoughts? Also Mayo recommended pomegranate juice. Any thought on diet and exercise?

Jump to this post

Hi, Alanine - I am 61, just had a biopsy resulting in a Gleason of 3/3. I was thinking removal, but have been recommended for active surveillance and to schedule an MRI for July. In regard to the alcohol question, I do not drink. But, I could very well just be an exception. I plan to look into the pomegranate juice - thanks for the tip.

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Tracy | @fwintracy | Apr 22, 2023
In reply to @mikewo "I have one or two drinks a week and still got PC. How about having a..." + (show)
@mikewo

I have one or two drinks a week and still got PC. How about having a vasectomy? Does that contribute to PC? I was told there was no link but here I am.

Jump to this post

Just found this…
https://pubmed.ncbi.nlm.nih.gov/31119294/

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Tracy | @fwintracy | Apr 22, 2023
In reply to @mikewo "I have one or two drinks a week and still got PC. How about having a..." + (show)
@mikewo

I have one or two drinks a week and still got PC. How about having a vasectomy? Does that contribute to PC? I was told there was no link but here I am.

Jump to this post

I too had a vasectomy about 30 yrs ago. I’ve not read anything indicating a verifiable connection although I understand that’s still being studied.

There’s a good bit of discussion about what causes (they think) PCa in Patrick Walsh’s book as I recall. Spoiler alert….there hasn’t been an abundance of success in determining what triggers our cells to go cancerous on the prostate. I honestly didn’t read that chapter too carefully beyond that take as my focus is forward.

Good luck to you all!

REPLY
mikewo | @mikewo | Apr 22, 2023
In reply to @fwintracy "Hello, alanine. I too was diagnosed w Stage 1 / Gleason 6 PCa earlier this year..." + (show)
@fwintracy

Hello, alanine. I too was diagnosed w Stage 1 / Gleason 6 PCa earlier this year at the age of 66. After the initial fears, etc. I’ve settled into reading all I can and talking with those walking the same path ahead of us while I await my MRI. I expect to have Active Surveillance recommended as well. Initially I was of a much more aggressive posture but have learned so much since that is softening my position in that regard.

This is a great spot for research. For example, Mayo has this article re: Pomegranate juice…. https://www.mayoclinic.org/diseases-conditions/prostate-cancer/expert-answers/pomegranate-juice/faq-20058204

Other sources I’ve found helpful include PCF.org and the book Surviving Prostate Cancer by Patrick Walsh as mentioned by an earlier poster. There is an abundance of information but you do have to actively research.

As to the alcohol question, I have maybe 10 drinks a week with rarely more than 2 a day. That said, I’ve found little data on alcohol consumption but will watch for better information from others.

I wish you the best of luck while confronting your new reality. Lots of good research is taking place and, with a bit of luck, we can all weather this proverbial bump in the road and enjoy our lives with a bit of modification.

Jump to this post

I have one or two drinks a week and still got PC. How about having a vasectomy? Does that contribute to PC? I was told there was no link but here I am.

REPLY
2 replies
alanine | @alanine | Apr 22, 2023
In reply to @fwintracy "Hello, alanine. I too was diagnosed w Stage 1 / Gleason 6 PCa earlier this year..." + (show)
@fwintracy

Hello, alanine. I too was diagnosed w Stage 1 / Gleason 6 PCa earlier this year at the age of 66. After the initial fears, etc. I’ve settled into reading all I can and talking with those walking the same path ahead of us while I await my MRI. I expect to have Active Surveillance recommended as well. Initially I was of a much more aggressive posture but have learned so much since that is softening my position in that regard.

This is a great spot for research. For example, Mayo has this article re: Pomegranate juice…. https://www.mayoclinic.org/diseases-conditions/prostate-cancer/expert-answers/pomegranate-juice/faq-20058204

Other sources I’ve found helpful include PCF.org and the book Surviving Prostate Cancer by Patrick Walsh as mentioned by an earlier poster. There is an abundance of information but you do have to actively research.

As to the alcohol question, I have maybe 10 drinks a week with rarely more than 2 a day. That said, I’ve found little data on alcohol consumption but will watch for better information from others.

I wish you the best of luck while confronting your new reality. Lots of good research is taking place and, with a bit of luck, we can all weather this proverbial bump in the road and enjoy our lives with a bit of modification.

Jump to this post

Thank you Fwintracy for replying, it just seems every person I speak to with prostate cancer drank at least a moderate amount of alcohol. Anyways I’ll read the above book and check the website let’s hope a new treatment comes along. Keep in touch

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Tracy | @fwintracy | Apr 22, 2023
In reply to @alanine "Hello just recently diagnosed with stage 1 Gleason score 6. Doctors recommended active surveillance. I am..." + (show)
@alanine

Hello just recently diagnosed with stage 1 Gleason score 6. Doctors recommended active surveillance. I am wondering the association of alcohol and prostate cancer. Seems like everyone I speak to that has prostate cancer drank at least a moderate amount of alcohol. Any thoughts? Also Mayo recommended pomegranate juice. Any thought on diet and exercise?

Jump to this post

Hello, alanine. I too was diagnosed w Stage 1 / Gleason 6 PCa earlier this year at the age of 66. After the initial fears, etc. I’ve settled into reading all I can and talking with those walking the same path ahead of us while I await my MRI. I expect to have Active Surveillance recommended as well. Initially I was of a much more aggressive posture but have learned so much since that is softening my position in that regard.

This is a great spot for research. For example, Mayo has this article re: Pomegranate juice…. https://www.mayoclinic.org/diseases-conditions/prostate-cancer/expert-answers/pomegranate-juice/faq-20058204

Other sources I’ve found helpful include PCF.org and the book Surviving Prostate Cancer by Patrick Walsh as mentioned by an earlier poster. There is an abundance of information but you do have to actively research.

As to the alcohol question, I have maybe 10 drinks a week with rarely more than 2 a day. That said, I’ve found little data on alcohol consumption but will watch for better information from others.

I wish you the best of luck while confronting your new reality. Lots of good research is taking place and, with a bit of luck, we can all weather this proverbial bump in the road and enjoy our lives with a bit of modification.

REPLY
2 replies
gkm | @gkm | Apr 22, 2023
In reply to @rdc61 "New to the group I’ve been diagnosed with prostate cancer I have a low high risk..." + (show)
@rdc61

New to the group I’ve been diagnosed with prostate cancer I have a low high risk treatment has been suggested removal or radiation. I’m up in the air like to hear from a few people that I’ve had both I’m 61 years old. I have an active sex life besides the obvious yes I want to get rid of the cancer, but I also want to know what this is gonna do to my girlfriend

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You say you have a low high risk; which is it? What is your Gleason score? Active surveillance may be an option. Erectile Dysfunction is a real possibility. Read the literature; go to reliable websites like pcf.org

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