Living with Neuropathy - Welcome to the group

@jimminnesota Also from MN w neuropathy, which I had before with pre-diabetes. Now in full diabetes. I switch out my shoes and socks during the day and I think that helps. Hokas are a God-send for me during the day but late afternoon, I switch out to a Keen shoe with a smaller sole. Just that one shoe helps me - it's more flexible than the Hoka. Can't wear either shoe all day and I need the arch support and stability, but I went to podiatrist who fitted me for orthodonics and diabetic shoes and they don't help me nearly as much. Try to exercise the feet to keep the circulation going: walk, foot flexes, try tip-toes (with support), stationery bike. Had friend who went through all kinds of "treatments" that didn't work. I would say the neuropathy has plateaued BUT, for me, consumption of sugar makes it worse. Doc suggested I look into CBD. 70 years old. I did gabapentin for two years several years ago and had no side effects other than to be happier. Still, trying to keep off off prescription drugs as much as possible.

Thank you for the greeting and I am grateful for all the information I am receiving from this group. I am 83 and have multiple health issues that I am dealing with. I have mitral and aortic valve stenosis, and was recently diagnosed with psoriatic arthritis and now neuropathy in my feet. My balance has been a problem over the past 3 years with several falls and my last injury resulted in a brain bleed. I am using a cane and find it very helpful. I remain as active as I can with friends and family. Please share any information concerning balance and I will continue to follow this support group.

@mfobrien36
This is worth a try…thanks Kay

I cured my neuropathy or controlled it by taking magnesium pills and tart cherry juice twice a day. If you are taking proton pump med for digestive issues your mag sulph is not absorbed and then you get neuropathy

Hi Everyone, I am very glad to have found this group. I was diagnosed with neuropathy when I started developing numbness in my hands and feet about 10 days after COVID J&J vaccine in 2021. And since then the neuropathy just comes and goes like a chronic condition. I am not even 40 years old and it is hard to explain to people about my neuropathy. I am looking into alternative treatment options for neuropathy and looking to hear if anyone had any good or bad experience with them. Thank you.

Hello @sron1904, I did a search of Connect using "neuropathy alternative treatments" and thought you might like to scan through the related discussions and comments to learn what others have shared helped them - https://connect.mayoclinic.org/search/discussions/

@johnbishop

I have neuropathy in both feet. I am a type 2 diabetic and suffer from PAD peripheral artery disease. I’ve had both femoral arteries rotorooted. I’m taking pregablain for my feet I 79 years old. No improvement in my feet. Procedures relieved leg pains.

I keep seeing clams on social media that there are supplements that will heal my foot nerves. Is there truth to these claims? I am taking vitamin B12 also.

Bob

Welcome @bobrar, There are a lot of different so called neuropathy cures and supplements on the market. I'm not a doctor or medical expert but I do think supplements can help but may or may not work for everyone depending on the different factors involved with the specific neuropathy. The Foundation for Peripheral Neuropathy has a list of supplements that have been shown to help nerve health that may be a good place to start to learn more - https://www.foundationforpn.org/vitamins-and-supplements-for-nerve-health/.

There are quite a few discussions here on Connect where members have asked questions and shared experiences with supplements for neuropathy if you want to scan through them - https://connect.mayoclinic.org/search/discussions/.

You also might find it helpful to connect with other members who have peripheral artery disease to learn what they have shared. Here's a search of Connect listing the discussions and member comments - https://connect.mayoclinic.org/search/.

Hi. I was diagnosed with idiopathic peripheral neuropathy after falling down flight of stairs. I had never had any numbness in feet before that. After being diagnosed with pre-diabetes, my diagnosis was all of a sudden changed to diabetic neuropathy. My A1C has been 6.3 only 4 times in 13 years, remaining time at pre-diabetic or even normal values, without diabetic meds or diet. I just don't believe it is diabetic. Anyway, it has worsened over the years to the point now my feet are almost completely numb but still painful, some numbness up to knees. Beginning to have some difficulty driving, have many falls, trip over a string in the floor! Medications ate becoming more and more ineffective. I fear augmentation. Has anyone heard of that? Anyway, I am at my wits end.