Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for 1952healthyneuro @1952healthyneuro

I am fortunate that I don’t have a lot of pain. I do have some pain in my left ankle and heal at night when I am in bed. My podiatrist prescribed gabapentin for me, and I was not able to tolerate that at all. Made me feel out of it and also dizzy. I will be starting physical therapy next week for help with balancing exercises and also dry needling. Any suggestions?

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Welcome @1952healthyneuro, Hoping you get lots of good information from your physical therapist next week that's tailored to your specific needs. The Foundation for Peripheral Neuropathy has a lot of great information including these two that I found this morning:
-- Tailored workouts or PT sessions may help:
https://www.foundationforpn.org/lifestyles/exercise-physical-therapy/
-- Brain-Based Balance Exercises:
https://www.foundationforpn.org/brain-based-balance-exercises/
Have you had any injuries to the left ankle?

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Profile picture for 1952healthyneuro @1952healthyneuro

My neuropathy has recently gotten worse. My walking has become unsteady and I am having problems with balance. I’m not picking up my feet the way I should. I am starting physical therapy soon. They will be working with me on balancing exercises and dry needling. I also recently ordered Alphalipoic acid which I should be receiving very soon. I’m hoping I can tolerate that and then it will help me. I would really appreciate any thing you can share about remedies you have tried that are working. Also, does anyone have any positive results from grounding mats or grounding sheets?

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There is a discussion from earlier this year on grounding mats that if you want to read through it - https://connect.mayoclinic.org/discussion/grounding-well-mats/

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Alpha Lipoid Acid from Amazon, or wherever. Don't cost much. I take 600mg twice a day. It has helped greatly with the burning. Don't have any pain

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