Living with Neuropathy - Welcome to the group

Has anyone experienced gut problems and constipation? I have chemo induced peripheral neuropathy and have had these
other problems since I was diagnosed. I’m thinking there has to be a connection.
Thanks
Mary Ann C

I would see a neurosurgeon especially concern numbness on face I ended up have 5 level fusion in my cervical area because I was about to be paralyzed & not be able to breathe on my own, it affected my bslance & gait please look into it soon.

I hav weird numbness under my toes zero pain just feels like some under them, snyone else have this numbness with no pain ?

this was my diagnosis when neuropathy started many years ago.
it now affects my feet and ankles.

I crushed m spinal cord 14 months ago. I am now able to do most things but the nerve pain in my shoulders and upper arm is still present and sometimes even severe. I am on 360mg of gabapentin daily but that only helps a little. Any suggestions on how to stop this pain?

I was on 900mg of gabapentin daily. I have been able to cut it to 600mg I guess I’m saying 360mg doesn’t sound like a lot I also use frankincense- it helps.

I did try DMSO and it is the best of the many lotions and potions I have used. I use a roll-on with Aloe Vera. However, I now have the neuropathy in a larger area, so it's best if it's contained in a smaller area, and, of course, the efficacy wears off after a few hours so it's only a relief, no sort of cure.

On another note, practically overnight I have noticed I now have the neuro in my hands and my entire lower leg below the knee. Might as well have come on me overnight. I guess how it may go, no? I had been stable for years, so, of course, it is agitating and frustrating to have this happen so quickly. Pain level has also increased; tough to sleep. Well, that's my story if anyone has had similar or can relate. Maybe it's just something I ate that set me off on the downward slope?

Have you been a candidate for a spinal cord stimulator? It helps a lot of people with chronic pain. The trial is minimally invasive and is a good indicator as to whether it can help you. At the same time, be aware that not everyone who has a successful trial will have success with the permanent implant. Kind of a coin toss for some. I wish you well.

I can agree that it really spins you around. I was just hoping that folks would share their stories about finding some type of relief. Any relief would be helpful.

Simply that’s how it started with me felt like I was spongy when I walked then it proceeded to my hands then it proceeded to every part of my autonomic nervous system and now I have autonomic neuropathy going on 2 1/2 years and plainly put it is no fun