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Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mary Ann | @crissma | Jun 16 11:07am

Has anyone experienced gut problems and constipation? I have chemo induced peripheral neuropathy and have had these
other problems since I was diagnosed. I’m thinking there has to be a connection.
Thanks
Mary Ann C

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indyjo | @indyjo | Jun 21 6:43pm
In reply to @gabe4223 "Hi, I have not been diagnosed but have been to several doctors and had blood work..." + (show)
@gabe4223

Hi, I have not been diagnosed but have been to several doctors and had blood work up and MRI on my brain and spine. It started out small sensation tingling on all of my body face legs arms and went away than came back with feet and hands tingling burning and small spots on face tingling. than now my arms falling asleep at night. I am having anxiety and would like to know where to start finding help? thank you

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I would see a neurosurgeon especially concern numbness on face I ended up have 5 level fusion in my cervical area because I was about to be paralyzed & not be able to breathe on my own, it affected my bslance & gait please look into it soon.

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indyjo | @indyjo | Jun 21 6:46pm

I hav weird numbness under my toes zero pain just feels like some under them, snyone else have this numbness with no pain ?

REPLY
1 reply
sheilahartnell | @sheilahartnell | Jun 22 12:21pm
In reply to @indyjo "I hav weird numbness under my toes zero pain just feels like some under them, snyone..." + (show)
@indyjo

I hav weird numbness under my toes zero pain just feels like some under them, snyone else have this numbness with no pain ?

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this was my diagnosis when neuropathy started many years ago.
it now affects my feet and ankles.

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golferxx1 | @golferxx1 | Jun 23 10:04am

I crushed m spinal cord 14 months ago. I am now able to do most things but the nerve pain in my shoulders and upper arm is still present and sometimes even severe. I am on 360mg of gabapentin daily but that only helps a little. Any suggestions on how to stop this pain?

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1 reply
Mary Ann | @crissma | Jun 23 7:17pm
In reply to @golferxx1 "I crushed m spinal cord 14 months ago. I am now able to do most things..." + (show)
@golferxx1

I crushed m spinal cord 14 months ago. I am now able to do most things but the nerve pain in my shoulders and upper arm is still present and sometimes even severe. I am on 360mg of gabapentin daily but that only helps a little. Any suggestions on how to stop this pain?

Jump to this post

I was on 900mg of gabapentin daily. I have been able to cut it to 600mg I guess I’m saying 360mg doesn’t sound like a lot I also use frankincense- it helps.

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