Living with MDS (Myelodyplastic Syndromes)

Hello @jrwilli1,

I would like to join Lori, @loribmt, in congratulating you on your husband's progress. How wonderful! That is great that his sodium is leveling out and the confusion from the infection is subsiding.

Enjoy your holiday visits with your family.

Good morning, @jrwilli1 This is really encouraging news about your husband! ☺️ I’m so happy to hear he’s doing much better now! That has to be an enormous relief for both of you. Those daily walks will do wonders for his stamina and to help gain strength! Hah, tell him not to show off too much without that walker, but I know that feeling of freedom when you get to ditch those wheels. Congratulations are in order.
Yep, masking definitely helps and you’re doing all the right things to keep you and your husband safe. You know what you’ve both gone through to get him to this point. ☺️
I have to forgo some larger events where there are a lot of people, but we still get together with family and friends. Masking up is the key. It’s just the way it is and no one in our family or circle of friends balks at the idea of my wearing a mask.
Have a Happy Thanksgiving! And give your husband a High Five from me. 🦃

He is doing very well now. The confusion from the infection is subsiding and the sodium is leveling out but he continues to go several times during the night. But he is able to walk around our block now without his walker. So I hope we are on a steady coarse now. Will continue to limit our interactions outside of family but will mask up and go see family.

Thank You so very much for doing that!!!!

Brenda, I moved your recent post to your existing discussion about living with MDS (myelodysplastic syndromes). You're asking great questions. I'm tagging members @lorieafoote @smetzing @jrwilli1 @nbadry @rrivory @honeymae who can share their experience with treatments and what tests or symptom changes led to their needing a change in treatment or how long they've been on watch and wait.

I'm sure you've read this already, but just in case, here is info from Mayo Clinic about diagnostic testing and treatment https://www.mayoclinic.org/diseases-conditions/myelodysplastic-syndrome/diagnosis-treatment/drc-20366980

His being up so many times yea probably due to old man prostrate but currently on urea sodium packets to help increase his sodium and these cause him to go more. Hopefully won’t have to take these forever. Just 4 x last night. 👏🏻

Probably an "old man's" prostate... I will be getting an ultrasound in elarly November.

What causes the 5-6 times getting up at night?

That is so wonderful, although it takes a lot of courage. But hopefully being close to familly will make it well worthwhile. I kid about the fact that my not abnormal 5-6 get up at nights, are a great "excercise". But being tired as you are, makes it all difficult. Enjoy the day tomorrow.

Thank you for your encouragement. Well after him being up 8+ times last night I decided we were still going to drive the 2 1/2 hours to see our grandsons soccer game. Yes I’m worn out and going to sleep now to see what tonight brings. But I have to keep him hoping to do things and keep up his spirits. The grandson didn’t know we were coming and he was excited to see us. 😘