Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Also you can choose Choice care of no appt within 30days are available. You can always ask for another opinion.

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Profile picture for meka @meka

Hi everyone, I am a 65 year old woman Disabled Veteran who has just been diagnosed with andenocarcinoma in right lung, not deep and about the size of a pea. My only care since retired has been the VA. Apparently someone has seen two other spots, one lower left and somewhere in my right. I was first told by a retired oncologist, now with VA, little radiation, curable. Next thing I know a referral to a local surgeon. He said remove right lobe. I asked about the other spots, too small to biopsy, but if they are cancer then it metastatic, stage iv and all they could do is palliative care and should get six months to a year. I have mental health issues with PTSD, MST and assorted other that follow up.. Have asked for a second opinion, but that's difficult in Rapid City, SD. Been through too much in life to give up now. Want to get to Mayo for second opinion even if I have to pay for it and could be there next week. Sorry for being so long on, but I need some hope and people going through this to share with. Thanks for any encouragement and support. Terrified, but stubborn!!!

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Hugs fellow disabled Vet here. Also recovering from tumors on liver and diaphragm and have more in liver and ovaries. I too am now being cared for through VA, if you feel they are not doing enough for you or fast enough you can always call Veterans Crisis Line 18002738255 press 1. I too have PTSD MST and other stuff. Please reach out and get help. Do Not Give Up!! I called snd within a day my local VA called me and have me appt by the 2nd day.
Please feel to message me.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @llwortman @burrkay @alicantina1 @merilee @alvinw @shortshot80 @mryzuch @amws @pearlgee @cheris @annette1 @cheris @windwalker @lesbatts @major @bestcare and @sistergoldenhair

I'd like to invite you to the new group dedicated to discussions about lung cancer. It's a space where we can ask questions, share tips and learn from each other. Whether you in treatment or caring for someone with lung cancer, or you're a lung cancer survivor, please join us.

Pull up a chair and tell us a bit about yourself.

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Hi everyone, I am a 65 year old woman Disabled Veteran who has just been diagnosed with andenocarcinoma in right lung, not deep and about the size of a pea. My only care since retired has been the VA. Apparently someone has seen two other spots, one lower left and somewhere in my right. I was first told by a retired oncologist, now with VA, little radiation, curable. Next thing I know a referral to a local surgeon. He said remove right lobe. I asked about the other spots, too small to biopsy, but if they are cancer then it metastatic, stage iv and all they could do is palliative care and should get six months to a year. I have mental health issues with PTSD, MST and assorted other that follow up.. Have asked for a second opinion, but that's difficult in Rapid City, SD. Been through too much in life to give up now. Want to get to Mayo for second opinion even if I have to pay for it and could be there next week. Sorry for being so long on, but I need some hope and people going through this to share with. Thanks for any encouragement and support. Terrified, but stubborn!!!

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Sakota- lol, we are twins-

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Ask your pulmonologist or try it!

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Profile picture for Merry, Alumni Mentor @merpreb

Sakota- How many cancers have you had? I've had 4. I also have the same number of inhalers. But in pulmonary rehab we were told to inhale the rescue inhaler every morning before the other 2. It opens up your "pipes" for the others. Than wait 1 minute and do the others. I always seem to have something brewing in my lower left lung. Do you have any symptoms?

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Merry. I have had four also. Three in my right lung and one in my left. As for symptoms. Can’t tell if it’s all from copd or not. Haven’t heard about using the one inhaler first. I also did the pulmonary rehab. Helps a lot.

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Profile picture for sakota9 (Joan) @sakota

I was first diagnosed in 2011. For the past year have been stable but go for ct scans of my lungs every 3 or 6 months. I go again next week. Something has been changing in my lower left lung that the have been watching. I come back to mayo in february to see pulmonologist. For my copd am on 2 inhalers daily and one for emergencies Will post how the next scan turns out.

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Sakota- How many cancers have you had? I've had 4. I also have the same number of inhalers. But in pulmonary rehab we were told to inhale the rescue inhaler every morning before the other 2. It opens up your "pipes" for the others. Than wait 1 minute and do the others. I always seem to have something brewing in my lower left lung. Do you have any symptoms?

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Profile picture for Merry, Alumni Mentor @merpreb

Good morning and a warm welcome @sakota! I can't believe that I have finally "met" someone else with multifocal adenocarcinoma. Is it of the lung? I have had it for 21 years. Please tell me where you stand in your history. Do you have a new lesion?

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I was first diagnosed in 2011. For the past year have been stable but go for ct scans of my lungs every 3 or 6 months. I go again next week. Something has been changing in my lower left lung that the have been watching. I come back to mayo in february to see pulmonologist. For my copd am on 2 inhalers daily and one for emergencies Will post how the next scan turns out.

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Good morning and a warm welcome @sakota! I can't believe that I have finally "met" someone else with multifocal adenocarcinoma. Is it of the lung? I have had it for 21 years. Please tell me where you stand in your history. Do you have a new lesion?

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Good morning. My name is sakota and am dealing with multifocal andecarcinoma since 2011 and copd

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