Living with lung cancer - Introduce yourself & come say hi

@reibur- That's wonderful. However if you get immunotherapy you have to have a certain gene for it, don't you? Have they found a treatment for all types of cancer? There are a lot of them.
Some families are pretty tough to understand. It's certainly difficult to say who should be treated well and who shouldn't by other family members. You are a good person to stick with this family. They certainly have had a horrible year.

We were told in April this was to be the standard care now for Lung Cancer - I am assuming that because he was a part of the clinical study - they still have to keep it classified as that for him and do follow ups on him as long as he want to remain getting the treatments etc. He is on the
immunology only now he has done genetic testing to have foot in door if the immunology fails, growth begins again or immunology stops workign or a better treatment/study becomes available. He can give up any time he wants - and this could be a very likely possibility now he lost his dad on June 28th, his mother yesterday and his 2 sisters, and step sister could give a rats as in hell but them selves the one brother is in a half-way house since 2004 and has health problems himself - so its only me left to make share he is properly cared for - and I have only been family friend, caregiver and lived with the mother/father since may 1994

We were told in April this was to be the standard care now for Lung Cancer - I am assuming that because he was a part of the clinical study - they still have to keep it classified as that for him and do follow ups on him as long as he want to remain getting the treatments etc. Not my husband - his mother, father and him were/are just good friends - mother has been in nursing home since Dec 3 2004 at 7 p.m. fter 2+ weeks in hospital in Indy - she just died yesterday morning at 6:24 a.m. from new complication; his father died on Jun 28th 2018 after fighting not making red blood cells since diagnosed Nov 2016 , the son was diagnosed with lung cancer in Oct 2017 I am just the caregiver, friend, Pain-in-the-Ass (PIA), the bitch on wheels whatever else they call me sis 2 sisters and step sister could give a dam I was joint P.O.A. for the mother - I was P.O.A. & Medical P.O.A. and I did put a what If in that it would transfer to a daughter. Like I told others this week i have "Sucker" written across my forehead - I stayed with the mother 2/4 and the most the daughter showed up to be with her mother was 2 hours for 4 of the days she did not even come in on christmas day to see her mom. I promised the dad i would stick around for the son and he made provision that it could be done.

Merry post Christmas! We have been at our daughter's house and our son came over also. I opted not to say anything so we could enjoy a nice Christmas. I had eantes to talk to them face to face but he had to leave. I did tell my daughter last night and we had a good cry. While I have been gone, I saw two messages come through from Goukd that said test results. Hard to believe they have OET scan results up. I still haven't read them. I did see that, in addition to a lung biopsy, the doctor has orders in for a liver biopsy and brain MRI. This can't be good. We are actually in the car now on the way home and I still don't want to read that. I don't want to go home. Still not sure what to do. I am sure they will refer to one of their Oncologist's but I do want a second opinion and husband, or myself, are not anxious to travel. What a hassle and I suffer from some a nudity issues. I guess that leaves me with Stanford or UCSF. I am petrified. Pulmonologist gave me the impression I have the aggressive form, forget what it is called. Is a lung biopsy painful? They won't knock you out.

@reibur1951- Am so happy that the CT scan is good! I don't think that the study that your husband is in is yet being used by the public- that's why it's called a clinical study. But they aren't options for the public as yet. There are many many clinical trials around but they have a specific population and so far not much has been done as far as multifocal adenocarcinoma of the lung. How much further does he have to finish the trial?

By way made it through another CT-Scan and his immunology and Stable.

Yes there is different options, there are clinical studies... my friend who i am caregiver, P.O.A. etc. etc has been under a clinical study since Dec. 2017 and it will or is now the norm of treatment 1 week of chemo/immunology 2 weeks chemo X 4 times 4 to equal 12 weeks and then immunology or 1-2 or plus years as long as tolerated or working - he had labs each chemo/immunology session and same with the immunology - CT-scans every 6 weeks to keep tabs on progress or non-progress or new problems cropping up - this is being done through I.U. Medical/Simon Cancer Center. Check into the college/University in your state that have Medical schools as a part of their programs - also there are numerous Cancer Centers all over the US. contact the American Lung Cancer society - GOOGLE and read their is a lot of very good info out there Just BE INFORMED and ask questions if you don't like the answer keep asking

Merry. I don’t think anyone can go by the number of years. It all depends on us and God. I had gotten about the 5 year thing until today. I thought I was going to end up with breast cancer and die like my mom when she was 52 and here I am 74. Then my dad had a heart attack when he was 52 and lived 10 years after that. I had mine when I was 62 and survived. I don’t dwell on what happens. We just keep taking one day one step at a time. But. There is a day every once in awhile when things come crashing down. Ok. Onward and forward. Cheers. My copd has went from
Mild to moderate. And I know that’s going to keep getting worse. If stem cell can be proven to work in the near future and I’m a candidate I’m going for it

@merpreb I agree with you about the life prognosis. It's awful. It' s like a bomb ticking over your head. You are the living example of not giving up hope. I guess no doctor told you about 21 years...My pulmonologist told me that my husband has 1 to 3 years to live. He never asked, I never told him. The oncologists in the hospital said nothing and I was relieved that they didn' t steal the hope from us. We keep going....

Ah ha, I get it. After having so many I think that I just plod along until I can't anymore. Those survival time thingies tend to petrify rather than help I think.
I have never heard of cell therapy for COPD. I think though it is for very severe cases. Is this your problem too?
As for your heart- I think that you need to see your heart doctor once a year. I think that this is a conservative guess but a wise one.
Other than adenocarcinoma what other type of cell has been found?
A special happy holiday to you too sakota. take care and keep in touch