Living with lung cancer - Introduce yourself & come say hi
Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Lung Cancer Support Group.
Connect

Don’t have a definitive answer for you. Had a lobectomy 3/19 and like you recovering well. From what I can tell from my doctors is that the remaining part of the lung does it’s best to compensate for that part removed. My oncologist suggested breathing as deeply as possible and then blowing out that breath as forcefully as able. He suggests doing this several times daily. Am going to start doing this—did today and coughed, but Inthink it might help. Good luck to you.
-
Like -
Helpful -
Hug
2 ReactionsI had surgery in November 2017 for Stage 1B non small cell lung cancer. I recovered very well from the surgery but wonder if my lung capacity will ever become “normal” again.
-
Like -
Helpful -
Hug
3 ReactionsNot so much overwhelmed as frustrated so much to do bumps in the road occur but must be God's plan or would not happen... things will come together and work out somehow.... Thanks
-
Like -
Helpful -
Hug
5 Reactions@reibur1951- I hear you, I hear you. I think that ranting is fine here and so many of us feel the way you do. But politics and policies is a no no on Connect. You are doing a very special job and I know that it is tiring and difficult and sometimes thankless but you are very special to so what you are doing. It sounds that you are overwhelmed, are you feeling like that?
-
Like -
Helpful -
Hug
4 ReactionsI go till I can not hack it any longer.... the last couple of weeks been sleeping a lot but a got a half-ass throat cold and have said the hell with a lot of things only done what I have had to do. Yep eating need to loose weight really... COme in here and work on genealogy and loose the reality or try to... but that is hard... I am a "black & white" person when it comes to money, etc. so i do a lot of overthinking on things... reminds me of the A-hole dr's statement "All you care about is the money not him" but medical care, prescriptions etc all boil down to the almighty dollar and if you don't have it the person especially the elderly suffer because the conglomerate health care systems and "big pharm" gives a rast ass in hell whether the common person whether young or old can afford reasonable care and the so called "Affordable health care act" is a laugh - with the medicare summaries I have seen where they have cut paying for thing entirely such as most blood work, x-ray's etc or its such a pitiful small amount to the providers... the co-pay/deductibles are so high that one's out of pocket expense cuts into others things... that's another full rant better stop...
-
Like -
Helpful -
Hug
1 Reaction@reibur1951- Kind of a mixed blessing- some good, not so. I'm with @alamogal635 please take care of yourself. You are going above and beyond your scope of care. Hope, if I need a caretaker one day that it will be someone like you! Are you getting enough rest? Eating well? All functions are a go? lol
-
Like -
Helpful -
Hug
2 Reactions@rebur 1951 Sounds as if you've been doing all that you can. I think there are no atheist where cancer of any kind is concerned. You've just been through so darned much. I feel for you. I truly hope and pray that one way, or another the doctors will get it. as you say with God all things are possible. It is true. Like the impossible--I'm possible. God bless you and yours.
-
Like -
Helpful -
Hug
1 ReactionThanks been going with the flow... its been one day at a time... things have been put off that should not of been because of all this and a lot has went to "hell in a hand basket" so to speak... sitting out some things till October holding my breath all will fall into place if does a lot of things will be easier hopefully...
We knew from start surgery was not an option - in fact he was still in biopsy when Dr. came out and told his dad and I it was cancer we did not even have to wait for a dr/office visit for results ast the CT-Scans and PET scans still had to be done ... but the whamy came when the PET Scan showed the involvement with lymph nodes within chest The Surgeon immediately ruled out surgery or radiation because of the scattered sites... and then found a swollen one in arm pit they biopsied it first and showed cancer so did not move on to the Supraclavicular - arm pit one by the end of 12 weeks of 1 week 2 chemos/immunology followed by 2 weeks of 1 chemo it had shrunk down became stable as all the rest That 12 weeks was fun It was Dec-Apr. all good Indiana winter - Tuesday's was his dads dr/possible blood transfusion and then Friday was his day for dr/infusion and his Ct's were scheduled on Monday's so his dad would have Wed/Thurs to recover fro the dr/transfusion
They just do not want this breaking through the skin if at all possible and afraid of going at this moment and a possibility of not getting it all if it boils down to having to have the Supraclavicular lymph node surgically removed... says ins between "a rock and a hard place"
All will work out one way or the other - just got to trust in God to provide and care but its all in God's hands and he knows what he is doing... Nothing is Impossible through him Impossible = I'm possible
-
Like -
Helpful -
Hug
2 Reactions@rebur1951. Gosh, you and he have really gone through a lot. All I can tell you is to slow down--especially mentally and emotionally and do what is most important right now--whatever that is. Have been through similar situations in the past and learned that the more you can right now go with the flow, the better you will cope. Kind of like not swimming against a rip tide. Swim with it and you do come out better than if you fight it. Will be keeping you in my thoughts and prayers. I'm hear because of a lobectomy in my right lower lung to remove a cancerous tumor. Mercifully it had NOT spread to lymph nodes, or surrounding tissue. There is just me and four rescue dogs now, but when I had a family, I recall ho it seemed at times the entire structure of my life was falling to pieces., but it didn't and eventually worked out okay.
Not sure if stressful just mind-blowing in way - its been a very rough 2 years - his dad was not making red blood cells and died June 28 - then his mother who was in nursing home going on her 15th year died on Dec. 26th... was hoping things was settling down for while... need to get some tohings accomplished around here but all plans have flew out the window for that today...
-
Like -
Helpful -
Hug
2 Reactions