Living with lung cancer - Introduce yourself & come say hi

Oh he does ride his bike almost daily 8.6 miles round trip to a country store to have coffee and BS with the local farmers etc. and it is most generally in all types of weather he has missed very few days - only one or two when we had that very bitter extreme sub-zero weather the end of Jan.

His involves a rather larger upper right lobe tumor with multiple lymph nodes in the chest cavity; one prominent swollen one in the axillary armpit these all have shrank with the chemo/immunology and the Supraclavicular all these were visible on the PET scan in Oct. 2017 - the surgery /radiation was ruled out because of the multiple locations and was to great of a risk with so much area to cover.
this put in in Stage IVB.

All were shrinking and remaining stable until Jan. 2019 when the Supraclavicular started to re-grow - and still growing - he was on immunology from Apr - Feb 4 - - Feb 25 he started a new round of chemo with immunology but the lymph node is still growing - it is on or near the jugular vein - radiation is next option to see if it can be stopped from growing - and then if necessary surgery.

Can only hope and pray that radiation will help -

the prembo/immunology remain as treatment because of it results on the chest cavity and they are hoping it will have some effect on the Supraclavicular tho at present it seems not to be since it is continuing to grow. thus he was licked off of the 2nd clinical study because the Supraclavicular lymph node is still growing and not responding to the chemo/immunology

Radiologist appointment Monday after noon - got the appointment for the biopsy/Geonmics on Thursday at 9 am means a wake up call and on the road at 5 a.m. this is to help to find if there is treatments after radiation and clinical studies he can participate in but all rests on how he and the lymph node responds to the radiation.

I do not look for radiation to start until after Easter since Good friday is right after the biopsy and they wanted this done before any radiation treatments began.

Don’t have a definitive answer for you. Had a lobectomy 3/19 and like you recovering well. From what I can tell from my doctors is that the remaining part of the lung does it’s best to compensate for that part removed. My oncologist suggested breathing as deeply as possible and then blowing out that breath as forcefully as able. He suggests doing this several times daily. Am going to start doing this—did today and coughed, but Inthink it might help. Good luck to you.

I had surgery in November 2017 for Stage 1B non small cell lung cancer. I recovered very well from the surgery but wonder if my lung capacity will ever become “normal” again.

Not so much overwhelmed as frustrated so much to do bumps in the road occur but must be God's plan or would not happen... things will come together and work out somehow.... Thanks

@reibur1951- I hear you, I hear you. I think that ranting is fine here and so many of us feel the way you do. But politics and policies is a no no on Connect. You are doing a very special job and I know that it is tiring and difficult and sometimes thankless but you are very special to so what you are doing. It sounds that you are overwhelmed, are you feeling like that?

I go till I can not hack it any longer.... the last couple of weeks been sleeping a lot but a got a half-ass throat cold and have said the hell with a lot of things only done what I have had to do. Yep eating need to loose weight really... COme in here and work on genealogy and loose the reality or try to... but that is hard... I am a "black & white" person when it comes to money, etc. so i do a lot of overthinking on things... reminds me of the A-hole dr's statement "All you care about is the money not him" but medical care, prescriptions etc all boil down to the almighty dollar and if you don't have it the person especially the elderly suffer because the conglomerate health care systems and "big pharm" gives a rast ass in hell whether the common person whether young or old can afford reasonable care and the so called "Affordable health care act" is a laugh - with the medicare summaries I have seen where they have cut paying for thing entirely such as most blood work, x-ray's etc or its such a pitiful small amount to the providers... the co-pay/deductibles are so high that one's out of pocket expense cuts into others things... that's another full rant better stop...

@reibur1951- Kind of a mixed blessing- some good, not so. I'm with @alamogal635 please take care of yourself. You are going above and beyond your scope of care. Hope, if I need a caretaker one day that it will be someone like you! Are you getting enough rest? Eating well? All functions are a go? lol

@rebur 1951 Sounds as if you've been doing all that you can. I think there are no atheist where cancer of any kind is concerned. You've just been through so darned much. I feel for you. I truly hope and pray that one way, or another the doctors will get it. as you say with God all things are possible. It is true. Like the impossible--I'm possible. God bless you and yours.

Thanks been going with the flow... its been one day at a time... things have been put off that should not of been because of all this and a lot has went to "hell in a hand basket" so to speak... sitting out some things till October holding my breath all will fall into place if does a lot of things will be easier hopefully...

We knew from start surgery was not an option - in fact he was still in biopsy when Dr. came out and told his dad and I it was cancer we did not even have to wait for a dr/office visit for results ast the CT-Scans and PET scans still had to be done ... but the whamy came when the PET Scan showed the involvement with lymph nodes within chest The Surgeon immediately ruled out surgery or radiation because of the scattered sites... and then found a swollen one in arm pit they biopsied it first and showed cancer so did not move on to the Supraclavicular - arm pit one by the end of 12 weeks of 1 week 2 chemos/immunology followed by 2 weeks of 1 chemo it had shrunk down became stable as all the rest That 12 weeks was fun It was Dec-Apr. all good Indiana winter - Tuesday's was his dads dr/possible blood transfusion and then Friday was his day for dr/infusion and his Ct's were scheduled on Monday's so his dad would have Wed/Thurs to recover fro the dr/transfusion

They just do not want this breaking through the skin if at all possible and afraid of going at this moment and a possibility of not getting it all if it boils down to having to have the Supraclavicular lymph node surgically removed... says ins between "a rock and a hard place"

All will work out one way or the other - just got to trust in God to provide and care but its all in God's hands and he knows what he is doing... Nothing is Impossible through him Impossible = I'm possible