Living with lung cancer - Introduce yourself & come say hi

The scans showed no response to treatment (meaning tumor growth) but continued inflammation. We have thought possibly a visit to infectious disease doctor, after the final elimination of a fungus infection that takes 6 more weeks to return. The oncologist actually left the decision to have infusion #6 up to him. He said yes and received it yesterday. Doing nothing seemed to be giving up.

My goodness, you and he are traveling the same path. He is now on just keytruda and pemetrexid, yesterday was his #6 infusion after taking 8 weeks off to try to determine cause of inflammation. Still unknown, but chose to have infusion. Scheduling oxygen and cardiologist appointment to determine if he has edema. I send you positive thoughts, prayers and support also. Thank you for responding.

I was diagnosed September 2022 with same as your husband, nsc, stage iv, only in lungs. Was in clinical trial all winter but the trial drug showed no positive effect. Currently am on same three drugs as your husband, third infusion tomorrow. Hopefully will get through this third and fourth infusion. After it’s supposed to be keytruda and pemetrexid on maintenance basis. I also was in good health before last year. My p c p kept treating me for pneumonia all last summer. I wish your husband better health and a good recovery.

Hi @millie5737, It sounds like you and your husband have had some fabulous adventures! I'm glad that you were able to do that when everyone was feeling well.
I'm sorry to hear that he's struggling. Have there been any scans after the 8 week hiatus; is there tumor growth, or is the inflammation just not getting better? It can be so hard to know what the cause is, and then hard to know what to treat. What a circle of confusion we live in sometimes! It's never fun or easy. Wishing you both the best, Lisa

Hi Kira @kiraleesingleton43, Welcome to Connect. Each case of lung cancer can be a bit different, so her doctors may be able to offer the best information on the extent of her treatment. It sounds like they identified the cancer at an early stage, and that's a great first step! There are many people with early (and late) stage lung cancer that can recover well, enjoy life, and smile again. There have been many advances over the past decade, and there is much hope. Take care of yourself too, she needs your support, but don't be afraid to be vulnerable along with her too. It's a difficult time, but there is light and hope. Take care, Lisa

My husband of almost 50 years (omg, we are old, lol) was diagnosed with stage 4a (both lungs, nowhere else) in Sept., began treatment in Nov for NSCL adenocarcinoma with carboplatin, pemetrexed and keytruda. Those he received for 3 rounds. Then just the pemetrexed & keytruda. After an undiagnosed inflammation ( that was thought to be caused by keytruda) that did not respond to massive steroids and an 8 week hiatus from infusions he has declined physically in that his breathing is labored and his fatigue forces him to sleep up to 15 hours a day. Today, he begins back on chem & immunotherapy, has ordered an oxygen evaluation and there you have it.
Before diagnosis he was an active sailor, we traveled the world, rehabbed our home etc. We considered going to PHX where we lived at one time )and son #1 is still there) for treatment at Mayo. There’s also a Mayo clinic about 5-6 hours away from us currently. He receives treatment locally and Moffitt Cancer Hospital in Tampa is also monitoring his “progress”.

Sorry my name is Kira and my partner has cancer and i am trying to be the strong one

Hello my partner has small cell lung cancer and she had surgery. She is going through the healing process. It was told to us that the tumor and the one lymph node was removed. Now she has to go through Chemo, about how long will she possibly have therapy considering it did not spread to any other lymph node. Will she even have a chance to enjoy life again? i miss her smile i think i need the counseling more than she does. Please I hope someone can help with these questions.

Hi @selin, what type of lung cancer do you have? How are you doing with chemotherapy and radiation?

Facing an incurable diagnosis is hard, many of us are fortunate enough to go on living a full life for many years. It seems you have a good outlook, and are looking forward, which is so important. Hopefully your family and support system sees that too. You are in good hands, and doing everything that you can right now. Wishing you the best with the treatment, keep us posted, Lisa