IBS: How to Live with It (and C Diff)?

Posted by rr1967 @rr1967, Jul 4, 2023

Hello.
I am a male, lifelong vegetarian, and 55 years old. Last July, I was diagnosed with diverticulitis, for the third time in 19 years. I was put on Augmentin to treat it. Within two days the diarrhea started and I ended up in the ER about 4 days later. The ER doc thought that I may have developed CDIFF because of the Augmentin. I was taken off this med right away and tested for cdiff, then sent home. The following morning, I got the results that I had cdiff and went back to the ER. They then gave me Vancomyacin. It worked and my diarrhea stopped.

However, a week after I finished the vanco treatment, the diarrhea started again and I went to urgent care. Again, tested positive for Cdiff and I went back on Vancomyacin. This worked, but for two more weeks, I had nausea, off and on diarrhea, and severe acid reflux. The reflux was so awful I thought my chest was on fire and I had to take an ambulance to the ER. They gave me esophagus coating medication which took a few days to work. I could not take a real acid reflux medication because that could increase the chances of Cdiff coming back. I also then had an upper GI and all was normal.

I did see several times an outstanding GI specialist who reassured me that I am okay and that it would take months for my gut to heal from the cdiff. I was also diagnosed with chronic IBS-D and this will never go away. There are certain foods I can never eat again and I am trying to go full vegan with the exception of lactose free yogurt and lactose free cheese. He also recommended a probiotic called Florastor that has real clinical research behind it. It is expensive but I started taking it and I really felt better. I did have the occasional bout with diarrhea if I was not careful with my diet.

In March of this year, I had a really bad bout of IBS D and this time they ran a Fecal Calprotectin test to check inflammation in my gut. Test results were normal.

Last Thursday and Friday morning, I had 6 very dark, watery bowel movements between 10pm and 7am. This freaked me out and I ran to urgent care. They ran very detailed stool panel. All results were normal except that they detected cdiff again. I went back in and they told me that I will probably always test positive for Cdiff going forward but as long as I don't have massive, watery diarrhea, the infection is not present...just the germ.

This is what the CDC site also says. People who get a formal diagnosis of Cdiff will always carry the bacteria though have no formal symptoms. Since last Friday, I have have not had any massive watery diarrhea and deal with my "normal" bouts of IBS. No fever, some random pains here and the in my abdomen which I have had for many years.

Finally, I can tell you that I may have anywhere from 2-4 bowel movements a day. At least 2-3 before noon and maybe one in the afternoon. During flare up weeks, I can have up 5-6 movements. My GI doc, who I really like and trust ( very patient, knowledgeable, and a great communicator) states that this is basically my IBS flaring up randomly. During my bout with diverticulitis and Cdiff last summer, I lost over 15 pounds in two months. All blood tests were normal and my doctors told me that I was at my healthy weight and should try to maintain it instead of gaining at all back.

Very frustrating and depressing. I literally avoid going out anywhere in the morning as I need to be near a clean toilet...which is basically my home.

Any thoughts or similar experiences?

Thank you for reading.

Interested in more discussions like this? Go to the Digestive Health Support Group.

IF you get it again demand Dificid. Vanco makes you relapse, does nerve damage and other things. Long story but had it 6 times then Dificid. Idiots gave you Vanco!!! Going to take years to heal! Years!

Infectious med doc told me, cup of kefir and banana in morning. Plus afternoon at first year. Then went down to just morning. Forget the pills. Nothing is live in a pill.

IBS but now I eat black beans, raw apples, popcorn, real corn, red meat, salads. That’s slow healing. I thank my infectious doc, my old GI who is retired and said the guys in scrubs ruined me. Now shaking, tachycardia, Bp problems. Weak. But heck, still here and alive. Much is stress and having knee replacement which I took antibiotics and nothing happened. They gave me Ancef. .

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