Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

@tjgisewhite

@athenalee, I would like to congratulate you too on your recent liver transplant. I had my liver transplant in Dec of 2019 here in Jacksonville. Where did you have yours?

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I had mine at Lahey Hospital and Medical Center. Their team approach is excellent. I was in the hospital for a month and a week due to a reaction to prednisone and had to be sent home on a dreadful feeding tube to get more protein in me.

How is your recovery going? Are you home and able to get around some? Take your drugs as directed! I’ve done lots of research on when and how to take the anti rejection meds and what other meds and herbs, such as echinacea, interfere with the metabolism of our anti rejection meds. Until my disease I had only taken natural supplements and homeopathics, So, it’s been a tough adjustment!

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@rosemarya

@athenalee, I would like to congratulate you on your recent liver transplant. I want to invite you to meet other liver transplant recipients in this liver support group.

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@athenalee, I would like to congratulate you too on your recent liver transplant. I had my liver transplant in Dec of 2019 here in Jacksonville. Where did you have yours?

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I go there every 6 months for follow ups. I'm in stage 4 liver disease and have a tumor on one of my kidneys

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@racing212

I'm going to Rochester Mayo super bowl Sunday for 3 days of tests

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It will be busy....you will be amazed and will learn a lot!

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@sue6175

I would like to become acquainted with other liver transplant patients also. Had mine in 2013.

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I'm going to Rochester Mayo super bowl Sunday for 3 days of tests

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@rosemarya

@athenalee, I would like to congratulate you on your recent liver transplant. I want to invite you to meet other liver transplant recipients in this liver support group.

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I would like to become acquainted with other liver transplant patients also. Had mine in 2013.

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@athenalee, I would like to congratulate you on your recent liver transplant. I want to invite you to meet other liver transplant recipients in this liver support group.

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@kimestes

I just got a message this morning that my meld score is not high enough. If course they want me to quit smoking and gain more weight and muscle mass. Smoking is going to be the worst to quit by far!

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@kimestes, I just want to drop in and let you know that I am thinking about you. I don't remember if you have any follow up appointments, but I know that life can be complicated and worrisome when living with a liver condition.

When you get a free moment, would you drop in and let me know how you are doing with your effort to add additional weight and to increase your muscle mass? What is something that is helping you to maintain your effort to do this?

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@sue6175

I had a liver transplant 9/2013 at Mayo. Would be willing to share my experiences with others. I am doing well presently and working as an RN part time.

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@sue6175, I add my welcome and encourage you to tell your story here:
- Organ Donation and Transplant: What is Your story? https://connect.mayoclinic.org/discussion/organ-donation-and-transplant-what-is-your-story/

What challenges did you experience with post-transplant meds and how did you overcome the problems you experienced? And how's your husband doing LOL?

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@kimestes

I just got a message this morning that my meld score is not high enough. If course they want me to quit smoking and gain more weight and muscle mass. Smoking is going to be the worst to quit by far!

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@kimestes, quitting smoking is a challenge that you don't have to face alone. You can join Connect members in these discussions to get encouragement:
- Ways to curb your cravings for nicotine https://connect.mayoclinic.org/discussion/ways-to-curb-your-cravings-for-nicotene/
- Stop smoking panic attacks. https://connect.mayoclinic.org/discussion/stop-smoking-panic-attacks/

There is also help from the Truth Initiative® and Mayo Clinic through the BecomeAnEX program https://connect.mayoclinic.org/group/smoking-quitting/ It's FREE and proven to work.

We're all here to support you during your milestones and when the going gets tough. No judgement.

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