Liver transplant - Let's support each other
What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?
Interested in more discussions like this? Go to the Transplants Support Group.
@markslivertransplant, I don't remember whether or not I extended a 'Welcome to Connect' to you. I had my liver and kidney transplant at Mayo Rochester in 2009, and I can still remember the anxiety as waited to hear that I was eligible to receive a liver and kidney transplant.
I am thinking of you, and I hope that you will soon get the message that you are looking forward to. Please send an update, and know that I am here and available to help you with any questions you might have.
@jaxpilot, Welcome to Connect! And Congratulations on your approaching 1st year with your new liver and for the co0mpliments of "looking good' . As a recipient, I know that the "You looking good" compliments are accompanied by your feeling good! Isn't it great to be healthy again?
Will you be doing anything to celebrate/honor your donor? Here is where members have shared their ideas. I invite you to join us there!Happy "Transplantiversary"!
https://connect.mayoclinic.org/discussion/happy-transplantiversary/
Congrats markslivertransplant. I wish you the very best. ajdo129 aka Barbara
Mine took 7 days, 1 week plus 2 days the next week.
Then I had a million things to accomplish before it went before the Mayo Jax board. This whole process took close to 4 months. I almost got put on the list during ICU stay but got better and got deferred for counseling. I've completed everything and got a phone call this morning 6/26/23 that my file was going back to committee this Wednesday and likely will be approved.
@klm3 I don’t know about liver transplants. I had a pancreas transplant. I have also gone through pretransplant evaluation for kidney transplant at Mayo Transplant Center in Rochester, MN. The initial evaluation was outpatient and took about a week. It was 5 days full of appointments to check me out head to toe. It was impressively thorough. There were a bunch of staff / disciplines involved to address everything including insurance coverage. I received an itinerary before I went and help with lodging and transportation issues. In the years since then I’ve returned for a few days to review and update some of the tests to keep current. I suspect procedures are similar at the AZ and FL campuses.
@klm3, The evaluation is typically done as an out-patient. And it seems to be a normal Mayo/Rochester pattern to schedule a 5 day period of time. I honestly don't know whether it takes the full 5 days for the evaluation, but I feel confident to say that it depends on the patient and the particular liver disease and underlying medical needs of the patient.
I had a unique situation: I was already in the hospital at Mayo Rochester when I was determined to be strong enough to undergo evaluation. Out of necessity, some of the evaluation was completed as inpatient and some after release to outpatient, as I needed a liver and a kidney evaluation.
So to answer your question - The outpatient scheduled evaluation procedures could take 5 days. You should get a schedule of the appointments prior to your visit.
I'll be looking forward to hearing about your schedule when you get it. ❤
Hi!
My husband had his evaluation done at Tampa General and he was admitted. He was there about 9 days.
Hi again @rosemarya,
I was referred to Mayo Phoenix and Mayo is going through the process of working with my insurance which should be finished in the next couple of weeks. Anyway, I would like to take you up on a question about the evaluation process. I was unable to find the answer myself. So... When going through the evaluation it seems that it could take up to a week. Do you know if I'll be admitted to the hospital for the evaluations?
@arqui02000, If you click on the blue In reply tp at the beginning of this message, you can read about @jinja320 and her 2nd liver transplant experience.
jackie NEVER drink any alcohol please doctors find out this and if you need second liver transplant you are not a good choice when you even wash your mouth with Listerine
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