Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

@gaylea1

@fyrehoose Hello Michael. I had my liver transplant Nov 28 2018. I also am experiencing depression and anxiety. I believe most of it stems from all the complications I am experiencing post transplant. Ive had surgery twice and three procedures that have not worked leading me to severe pancreatitis and more time in the hospital than out. I keep hoping this will be over soon and I can start living again. Please talk to your doctors. They are there to help. Also support grom thus great Mayo Connect team will help keep you motivated. My thoughts are with you.

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Hello, Gaylea. You remain in my thoughts as I hope for your condition to improve and lead you to a comfortable state of recovery. Stay warm and get some good rest.
When you feel up to it, send us an update.
Hugs.

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@banzai

Liver n other organ caused gall stones which said no problem now had tests here's n said it wasn't fluid to drain but bowel blocked
Have try organ surgery in am
5 days fluids only got eat jello n some beef tips nnrice
On antibiotics n diuretic
Cold in here but have sweats n blankets
I try move but bed rest too
Ttyl
Jim.

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@banzai I’m glad you are getting some care for your swollen and painful belly. You mention surgery. I presume that is gallbladder surgery. I’m sure all will go well and you will be feeling much better in a couple of days. Let us know how it goes.
JK

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@banzai

Liver n other organ caused gall stones which said no problem now had tests here's n said it wasn't fluid to drain but bowel blocked
Have try organ surgery in am
5 days fluids only got eat jello n some beef tips nnrice
On antibiotics n diuretic
Cold in here but have sweats n blankets
I try move but bed rest too
Ttyl
Jim.

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Jim, I am sorry to hear about this. I am happy that you are getting some treatment, though. It's not very pleasant sounding, but it does sound like you are getting some good care. I remember liquid diets, and they are not any fun - even when you probably don't feel like eating anything. I hope you get some rest tonight and that the belly pain is getting better. I send my hopes and a prayer that your surgery goes well and that you will soon be in recovery.

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Liver n other organ caused gall stones which said no problem now had tests here's n said it wasn't fluid to drain but bowel blocked
Have try organ surgery in am
5 days fluids only got eat jello n some beef tips nnrice
On antibiotics n diuretic
Cold in here but have sweats n blankets
I try move but bed rest too
Ttyl
Jim.

REPLY
@contentandwell

@fyrehoose Hi Michael and welcome to Connect.
Congratulations on your transplant. I had a liver transplant in September 2016 in Boston.
I’m sorry to hear you’re suffering from depression. Can you identify what may be causing it at all? As Rosemary commented, perhaps medications could cause it. I did not have depression but medications can affect each person differently. I do often feel sadness that a family is grieving, but I cannot change that, I can only pray for them. The article in the link that Rosemary sent is very good. I just re-read it to refresh my mind. I hope you can find some worthwhile strategies in it.
If your depression continues you should seek some help. I know many people find great success in counseling.
I will be thinking of you, and hoping that you will feel better soon.
JK

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@fyrehoose
Realizing you are depressed is half the battle
Understanding what makes you depressed is the puzzle.
My problem is I have so many things to be depressed about...Im overwhelmed. So since I cant figure it out...I let it all go and focus on one little thing I can do to make someone feel happy each day. Every night I think about that one thing I did.
It helps me...
When that doesnt work...get on this Connect line..we are here for each other.
Xoxo

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Powerful stuff coming from you to someone who desperately needs it.
Keep good thoughts in ypur minds. HIGS TO YOU BOTH!

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@gaylea1

@fyrehoose Hello Michael. I had my liver transplant Nov 28 2018. I also am experiencing depression and anxiety. I believe most of it stems from all the complications I am experiencing post transplant. Ive had surgery twice and three procedures that have not worked leading me to severe pancreatitis and more time in the hospital than out. I keep hoping this will be over soon and I can start living again. Please talk to your doctors. They are there to help. Also support grom thus great Mayo Connect team will help keep you motivated. My thoughts are with you.

Jump to this post

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@fyrehoose

Hi I am 18 months post liver transplant and struggling to keep it all together. I am physically fine, just emotional, anxiety, and depressed.
no drive left it seems.

michael

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Hi @fyrehoose
It hurts to know you are hurting. Our whole community is here online to support you and listen. Your are brave to share your struggles and I have no doubt your bravery will help someone else who comes along in the future with your same concerns. I felt so bad at one point after transplant that I went in to my primary care dr. and told her how tired I was all of the time she was very understanding and referred me to physical therapy and it made a huge difference. Looking back it seems silly that I felt so guilty complaining to her, I guess I knew how lucky I was to have gotten a transplant and I didn't think I had the right to feel bad. You deserve good things, your deserve to feel good, who knows maybe your Dr. will find an easy fix like mine did something small like a change of meds, some PT, a few counseling sessions can make a world of difference. You deserve to feel good.

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@fyrehoose

Hi I am 18 months post liver transplant and struggling to keep it all together. I am physically fine, just emotional, anxiety, and depressed.
no drive left it seems.

michael

Jump to this post

@fyrehoose Hello Michael. I had my liver transplant Nov 28 2018. I also am experiencing depression and anxiety. I believe most of it stems from all the complications I am experiencing post transplant. Ive had surgery twice and three procedures that have not worked leading me to severe pancreatitis and more time in the hospital than out. I keep hoping this will be over soon and I can start living again. Please talk to your doctors. They are there to help. Also support grom thus great Mayo Connect team will help keep you motivated. My thoughts are with you.

REPLY
@fyrehoose

Hi I am 18 months post liver transplant and struggling to keep it all together. I am physically fine, just emotional, anxiety, and depressed.
no drive left it seems.

michael

Jump to this post

@fyrehoose Hi Michael and welcome to Connect.
Congratulations on your transplant. I had a liver transplant in September 2016 in Boston.
I’m sorry to hear you’re suffering from depression. Can you identify what may be causing it at all? As Rosemary commented, perhaps medications could cause it. I did not have depression but medications can affect each person differently. I do often feel sadness that a family is grieving, but I cannot change that, I can only pray for them. The article in the link that Rosemary sent is very good. I just re-read it to refresh my mind. I hope you can find some worthwhile strategies in it.
If your depression continues you should seek some help. I know many people find great success in counseling.
I will be thinking of you, and hoping that you will feel better soon.
JK

REPLY
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