Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

Sorry, folks. That should be 2000ml daily.

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@jolinda

Prior to kidney transplant I had the same type of cramping you've described. I would wake up with excruciating cramps in my calves or feet, just terrible! The next day my legs would ache like they were bruised. I tried eating more bananas to get my potassium up but never had great results. Sorry to hear it's happening. If you find a solution please share it with the whole community.

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I too suffered from tremendous cramps both before and after kidney transplant. 25 days after my transplant I had to be taken over to the Mayp Phx ER for crippling cramps moving all over my body. I was told low magnesium level was the problem and could not tolerate it on its own and advised by a transplant team member to try over the counter SloMag which, taken daily, has solved the problem for 5+ years now.

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@twocatmama

He also has hand cramps more frequently than leg cramps. 15 minutes is about right, but it is a tough 15 minutes.

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I also had my worst cramping in my hands. I couldn't hold cutlery or even a pen. It was really debilitating.

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@jolinda

Prior to kidney transplant I had the same type of cramping you've described. I would wake up with excruciating cramps in my calves or feet, just terrible! The next day my legs would ache like they were bruised. I tried eating more bananas to get my potassium up but never had great results. Sorry to hear it's happening. If you find a solution please share it with the whole community.

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Prior to my liver transplant I also had severe cramping in my hands, feet and legs. I also tried the banana route with no results. I was also told to drink tonic water but that didn't work either. If you do find a solution there are many who would appreciate your findings.

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@twocatmama

He also has hand cramps more frequently than leg cramps. 15 minutes is about right, but it is a tough 15 minutes.

Jump to this post

Prior to kidney transplant I had the same type of cramping you've described. I would wake up with excruciating cramps in my calves or feet, just terrible! The next day my legs would ache like they were bruised. I tried eating more bananas to get my potassium up but never had great results. Sorry to hear it's happening. If you find a solution please share it with the whole community.

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He also has hand cramps more frequently than leg cramps. 15 minutes is about right, but it is a tough 15 minutes.

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Thank you. We’ll need to get permission for the magnesium, but can try the topical and warm water.

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@twocatmama

My husband had terrible cramps during the night. We put a heating pad for relief. His diruetics have been increased due to pleural effusion, so I suspect that had something to do with the cause. His fluid intake has been limited to 200 ml daily. Does anyone have suggestions?

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@twocatmama I know that diuretics can cause cramps due to dehydration. Have you spoken to his doctor about this? They may have some suggestions.
Are his cramps in his body or in his legs? I had excruciating cramps in my thighs some nights. Fortunately, they were not frequent but when I had them they were unbearable. After a while I was able to tolerate them because I knew they would get better in about 15 minutes or so, so I just held on. I also had cramps in my hands. They were more frequent but not as bad.
JK

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Pre-transplant I took magnesium for leg and arm cramps. Locally I used arnica gell by the tube. I found a steaming hot shower helped.

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