1. < Transplants

Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

Mentor
Ginger, Volunteer Mentor | @gingerw | Sep 29, 2019
In reply to @rodney9999 "I am 6 months post transplant and am scheduled to see a dermatologist next week. I..." + (show)
@rodney9999

I am 6 months post transplant and am scheduled to see a dermatologist next week. I use sunscreen regularly but not sure what to expect.

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@rodney9999 Because organ recipients are on immunosupressants, there seems to be a higher incident of them developing skin cancer. A visit to the dermatologist will include a visual check by that person, to check for any signs of skin cancer. They will advise you to have a yearly or even semi-annual check. Congratulations on your successful transplant! How are you feeling these days?
Ginger

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2 replies
rodney9999 | @rodney9999 | Sep 29, 2019

I am 6 months post transplant and am scheduled to see a dermatologist next week. I use sunscreen regularly but not sure what to expect.

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1 reply
gaylea1 | @gaylea1 | Sep 29, 2019
In reply to @livertrex "I just had a liver transplant in August at the Mayo Clinic in Arizona everything went..." + (show)
@livertrex

I just had a liver transplant in August at the Mayo Clinic in Arizona everything went well it's taking a little longer to get back on my feet and I thought ,I guess I had great expectations I'll have the great expectations for you too so congratulations on your liver transplant and the doctor had me go ahead and get a dermatologist in my local community look at Maya dark spots all over my body and give me a plan to move forward with him to make sure that I wore sunscreen. Thank you

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@livertrex I am just seeing a dermatologist now. Some of my brown sun spots have turned cancerous and a biopsy has been taken on the largest one. I am waiting for results and am sure they will be removed in office. This has happened post transplant. I'm not sure if this relates to your conversation or not but thought I'd share anyway. I am now 9 months post transplant.

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livertrex | @livertrex | Sep 29, 2019
In reply to @contentandwell "@racing212 When you go back for more tests will they determine if the “spots” are benign..." + (show)
@contentandwell

@racing212 When you go back for more tests will they determine if the “spots” are benign or malignant? I had malignant lesions and they did an ablation to get rid of them. That was more than a year before my transplant which occurred in September 2016.
JK

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I just had a liver transplant in August at the Mayo Clinic in Arizona everything went well it's taking a little longer to get back on my feet and I thought ,I guess I had great expectations I'll have the great expectations for you too so congratulations on your liver transplant and the doctor had me go ahead and get a dermatologist in my local community look at Maya dark spots all over my body and give me a plan to move forward with him to make sure that I wore sunscreen. Thank you

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1 reply
JK | @contentandwell | Sep 28, 2019
In reply to @racing212 "Im on the list for liver transplant...went to Rochester last week for more tests and found..." + (show)
@racing212

Im on the list for liver transplant...went to Rochester last week for more tests and found out there's 3 spots that could turn into a tumor. My meld score also went up from 3 months ago. I go back in December for more tests..... Chuck

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@racing212 When you go back for more tests will they determine if the “spots” are benign or malignant? I had malignant lesions and they did an ablation to get rid of them. That was more than a year before my transplant which occurred in September 2016.
JK

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1 reply
racing212 | @racing212 | Sep 28, 2019
In reply to @rosemarya "@racing212, It is good to hear that you are being monitored for this while it is..." + (show)
@rosemarya

@racing212, It is good to hear that you are being monitored for this while it is a 'could be' tumor. My Mayo experience is that they will keep a close watch on it for you. I know that this is not a comfortable position to be in. I was believed to have cancer tumors in my bile ducts and my local transplant hospital was unable to get tissue samples so they had to inactivate me from the transplant list until they could get me to the Mayo team in Rochester for the tests. I did not have cancer and was able to be activated again. Rodney, I will be thinking of you during this time.
When you return in December, do you know what kind of tests they will do?
With an increased score, have your symptoms changed any?

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I go back for another ct scan blood work and an ultra sound....

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Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 28, 2019
In reply to @benlam11 "This site is almost like SPAM !!!! If you register and forget your password - you..." + (show)
@benlam11

This site is almost like SPAM !!!! If you register and forget your
password - you cannot retrieve it , if you try to Unsubscribe - you need
your password. So your stuck with endless emails.

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Hi @benlam11, I can help. Please send me an email using this form https://connect.mayoclinic.org/contact-a-community-moderator/

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benlam11 | @benlam11 | Sep 28, 2019
In reply to @rosemarya "@contentandwell - Happy Transplant Anniversary! You and your husband look wonderfully happy. I firmly believe in..." + (show)
@rosemarya

@contentandwell - Happy Transplant Anniversary! You and your husband look wonderfully happy.
I firmly believe in celebrating our successes and especially our transplant! Thanks for sharing.

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This site is almost like SPAM !!!! If you register and forget your
password - you cannot retrieve it , if you try to Unsubscribe - you need
your password. So your stuck with endless emails.

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1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Sep 28, 2019
In reply to @jeanne5009 "@jk I am not on the official list but Mayo evaluated me and said I was..." + (show)
@jeanne5009

@jk
I am not on the official list but Mayo evaluated me and said I was a good candidate but too early. I go up every 6 mo to be checked out. I'm stage 4 decompensated but low meld. Go figure...

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@jeanne5009,
I have always been told that by taking good care of ourselves that we will be better prepared for the transplant surgery and recovery when it is time. I had my diagnosed liver disease for nearly 9 years before I had to be listed? And I was closely monitored by my GI during that time with a low score.
Has it ever been decided what has caused your liver condition?

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