Liver transplant - Let's support each other

Hello 🤗
Thank you for asking. I enjoy camping, photography and going for walks. My energy level is pretty good. I still have tough days but they are fewer and farther between. My biggest concern now is lack of sleep. I really struggle with uninterrupted sleep. I keep myself busy with work at my church and when the weather permits my garden.

@footballmum, I have to admit that I can't be still. My hand have always got to be doing something like a puzzle or knitting, or crocheting. I believe I got it from my mom because she was that way.
I hear what you are saying about your kidneys taking a hit. That is what i see from a lot of our members. I'm crossing my fingers about not needing diaysis and send my hopes that all remains stable. I know that you are dedicated to taking care of yourself, and this is to your benefit.
How is your energy? What are some things that you enjoy doing in your extra time?

Congratulations 🎉👏. Wow you are one active young lady. I'm so happy to hear that your liver and kidneys are doing so well. My new liver is doing amazing. My kidneys however are another story. They really took a wallop during my pre-transplant struggles and unfortunately have never recovered. So far no dialysis, so that's a win. Thank you for listening. 💚

@susanrmnp @footballmum
Thank you for your replies! As it turns out, I was not reading my appointment instructions carefully. Can you imagine that? after 15 years!
Anyway, the general instructions stated that 'some patients will need to follow dietary restrictions". When I made a phone call to inquire, I learned that MY specific instructions would be listed on my daily appointment plan. To my surprise, I was able to grab a light snack during my break before my ultrasound! This is yet another example of how we each have similarities and differences!
I am now home after my annual evaluation in Rochester. I am thrilled to know that my liver and kidney remain happy. As I begin another year of blessing with these beautiful organs, I am looking forward to healing from a wrist fracture and returning to my sewing, violin, and hiking with my hiking poles! Oh, and also looking forward to 2-handed keyboarding 😉

I am looking forward to hearing your updates. Anybody have anything - question or news - to share?

Good morning
I've had to stop eating after midnight on all my ultrasounds. Especially the Doppler ones. 😊

I'm due for an ultrasound in about 6 weeks, the lab orders say to stop eating solid food 6 hours before the procedure, but I can continue to drink water, clear tea or black coffee (no creamer or milk) up until the procedure.

Thank you

Note there are several online zoom support groups for transplant patients. Mayo Jacksonville, Mayo Rochester and Mayo Phoenix all have zoom meetings. If interested I can email you info on those meetings. There is also an online zoom meeting sponsored by the Transplant Community Alliance which meets weekly on Thursday at 7 pm Arizona time. Most patients are kidney and liver transplant patients (pre and post) but all transplant patients and their caregivers are welcome.

TCA
https://www.transplantaz.org/

TCA Zoom Meeting
Meeting ID: 873 0014 4780
Passcode: 599315

Zoom meeting.

Hi, liver transplant recipients, does anyone know whether you had to fast from food or water before a routine annual abdominal ultrasound?
I’m scheduled for one and don’ t remember what I did last year. The only instruction that I see related to eating beforehand is that you might need to avoid eating and that it depends on the area being scanned. My appointment is not until 1 PM during my annual visit.
What were you instructed to do?

@007hafid, I can understand your interest about your future health after a living liver donation. You are absolutely correct to seek answers because the decision to become a living donor requires time and consideration. Before making a decision you need to know what it involves.

Most living liver donors are related to the recipient, During the living liver donor surgery the surgeon removes part of your liver and places it into the recipient after their liver is removed. It ususlly takes several weeks to several months for the liver to recover and return to normal size. During that time you will be limited on your physical activities.There are risks and you will need to be screened and tested to see if you can be a donor.

Do you have a loved one or a relative who needs a liver transplant? Does he/she qualify for a living donor?