1. < Transplants

Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

countryg1 | @countryg1 | 3 days ago
In reply to @rosemarya "@rrichardparker, I want to re-welcome you to Connect. It has been a while since I have..." + (show)
@rosemarya

@rrichardparker, I want to re-welcome you to Connect. It has been a while since I have seen you in the transplant group. I am also a transplant recipient. I joined Mayo Connect because I wanted to meet and to learn from other transplant patients. I learned that as a recipient, I can share my own experiences to help others along their own journey. I have a feeling that you have learned a lot from your transplant, as well as how to manage your self care for 6 post transplant years.

Are you interested in supporting others who are like yourself?
I invite you to look thru the transplant discussions that are happening because there have been a lot of new members and conversations. You are always welcome to join in anywhere, with your own comments, questions, and helpful suggestions.
How can I help you get started?

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I was just diagnosed with decompensated liver cirrhosis n I'm gonna b going thru liver evaluation test to get on transplant list, I gotta quit drinking, (lil hard) I get fluids drained off my stomach every week, it's scary news getting diagnosed n don't know what to expect or do.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | May 14 1:43pm
In reply to @brenda62 "I entered the hospital on 3/10/25 on deaths door. I was listed for liver transplant on..." + (show)
@brenda62

I entered the hospital on 3/10/25 on deaths door. I was listed for liver transplant on 4/7/25 , by the grace of god A liver was found for me on 4/8/25 and I had a transplant on 4/9/25 . I thank the wonderful doctors and nurses at westchester medical center in valhalla, NY that helped save my life

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@brenda62 - Welcome to Connect. and Congratulations on your new liver transplant! I am so happy that you were blessed to be able to receive your transplant in time to return to a renewed life.
Will you share more about ypour journey: How is your recovery coming along? Was your liver failure sudden? What was it like to be whisked from death's doot to a successful liver transplant?

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | May 14 1:33pm
In reply to @tjenna1963 "~by Rama Krishna Rao~: "So, enjoy the journey, and make the most of each day, And..." + (show)
@tjenna1963

~by Rama Krishna Rao~:
"So, enjoy the journey, and make the most of each day,
And keep moving forward, with laughter and play.
For life is a gift, to be lived to the fullest,
With love in our hearts, and dreams to be multiplied."

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This is beautiful, @tjenna1963. Thank you for sharing it with us - and Welcome to Connect.
Are you a recipient or are you a caregiver?

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melmc18 | @melmc18 | May 14 12:13pm
In reply to @brenda62 "I entered the hospital on 3/10/25 on deaths door. I was listed for liver transplant on..." + (show)
@brenda62

I entered the hospital on 3/10/25 on deaths door. I was listed for liver transplant on 4/7/25 , by the grace of god A liver was found for me on 4/8/25 and I had a transplant on 4/9/25 . I thank the wonderful doctors and nurses at westchester medical center in valhalla, NY that helped save my life

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Beautiful! All of us will have our time. God Blessed You!

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pgruetz | @pgruetz | May 12 1:23pm
In reply to @brenda62 "I entered the hospital on 3/10/25 on deaths door. I was listed for liver transplant on..." + (show)
@brenda62

I entered the hospital on 3/10/25 on deaths door. I was listed for liver transplant on 4/7/25 , by the grace of god A liver was found for me on 4/8/25 and I had a transplant on 4/9/25 . I thank the wonderful doctors and nurses at westchester medical center in valhalla, NY that helped save my life

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From the time I was on the list to transplant was about 3 months deaths door also I’m glad you got a new gift of life, it’s been over 2 years ago for me and I’m very grateful everyday, I hope you’re recovering goes well it takes awhile

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tjenna1963 | @tjenna1963 | May 10 10:31pm

~by Rama Krishna Rao~:
"So, enjoy the journey, and make the most of each day,
And keep moving forward, with laughter and play.
For life is a gift, to be lived to the fullest,
With love in our hearts, and dreams to be multiplied."

REPLY
1 reply
brenda62 | @brenda62 | May 10 7:02pm

I entered the hospital on 3/10/25 on deaths door. I was listed for liver transplant on 4/7/25 , by the grace of god A liver was found for me on 4/8/25 and I had a transplant on 4/9/25 . I thank the wonderful doctors and nurses at westchester medical center in valhalla, NY that helped save my life

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3 replies
margui70 | @margui70 | May 6 12:23pm
In reply to @melmc18 "I have been on a life long journey with my liver. Confirmed I had HepC at..." + (show)
@melmc18

I have been on a life long journey with my liver. Confirmed I had HepC at age 17 due to blood transfusions at birth. Went through 3 different experimental treatments, finally cured in 2013. Now because of all of the damage taken onto my liver I begin my journey of a transplant. I am very optimistic and hope my evaluation goes well. I am glad to have a place now to connect with others like me and who have already had the transplant. It will be helpful to learn from others. Blessings to All

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God bless you, you will receive your miracle soon. Don’t let anyone or anything to weaken your faith; do your part to keep your health and let the doctors do theirs!

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | May 5 4:04pm
In reply to @carecare "I have Hepatopulmonary Syndrome. My oxygen levels have been awful, but I guess not awful enough...." + (show)
@carecare

I have Hepatopulmonary Syndrome. My oxygen levels have been awful, but I guess not awful enough. I hope they don’t wait to help me until I’m deathly ill.
I’m patient at Tampa General Hospital.

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@carecare, Welcome to Connect. I’m sorry to read about the delay in being listed. I know how hard the unknowing can be.
I’m hoping that your results will lead you closer to a transplant. ❤️

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | May 5 3:55pm
In reply to @melmc18 "I have been on a life long journey with my liver. Confirmed I had HepC at..." + (show)
@melmc18

I have been on a life long journey with my liver. Confirmed I had HepC at age 17 due to blood transfusions at birth. Went through 3 different experimental treatments, finally cured in 2013. Now because of all of the damage taken onto my liver I begin my journey of a transplant. I am very optimistic and hope my evaluation goes well. I am glad to have a place now to connect with others like me and who have already had the transplant. It will be helpful to learn from others. Blessings to All

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Hi, @melmc18, and Welcome to Connect. I want to add myself to your growing list of supporters. My experience is as a recipient.
I’m glad you found Connect.

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