1. < Transplants

Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

pgruetz | @pgruetz | 1 day ago
In reply to @brenda62 "I entered the hospital on 3/10/25 on deaths door. I was listed for liver transplant on..." + (show)
@brenda62

I entered the hospital on 3/10/25 on deaths door. I was listed for liver transplant on 4/7/25 , by the grace of god A liver was found for me on 4/8/25 and I had a transplant on 4/9/25 . I thank the wonderful doctors and nurses at westchester medical center in valhalla, NY that helped save my life

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From the time I was on the list to transplant was about 3 months deaths door also I’m glad you got a new gift of life, it’s been over 2 years ago for me and I’m very grateful everyday, I hope you’re recovering goes well it takes awhile

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tjenna1963 | @tjenna1963 | 3 days ago

~by Rama Krishna Rao~:
"So, enjoy the journey, and make the most of each day,
And keep moving forward, with laughter and play.
For life is a gift, to be lived to the fullest,
With love in our hearts, and dreams to be multiplied."

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brenda62 | @brenda62 | 3 days ago

I entered the hospital on 3/10/25 on deaths door. I was listed for liver transplant on 4/7/25 , by the grace of god A liver was found for me on 4/8/25 and I had a transplant on 4/9/25 . I thank the wonderful doctors and nurses at westchester medical center in valhalla, NY that helped save my life

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1 reply
margui70 | @margui70 | May 6 12:23pm
In reply to @melmc18 "I have been on a life long journey with my liver. Confirmed I had HepC at..." + (show)
@melmc18

I have been on a life long journey with my liver. Confirmed I had HepC at age 17 due to blood transfusions at birth. Went through 3 different experimental treatments, finally cured in 2013. Now because of all of the damage taken onto my liver I begin my journey of a transplant. I am very optimistic and hope my evaluation goes well. I am glad to have a place now to connect with others like me and who have already had the transplant. It will be helpful to learn from others. Blessings to All

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God bless you, you will receive your miracle soon. Don’t let anyone or anything to weaken your faith; do your part to keep your health and let the doctors do theirs!

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | May 5 4:04pm
In reply to @carecare "I have Hepatopulmonary Syndrome. My oxygen levels have been awful, but I guess not awful enough...." + (show)
@carecare

I have Hepatopulmonary Syndrome. My oxygen levels have been awful, but I guess not awful enough. I hope they don’t wait to help me until I’m deathly ill.
I’m patient at Tampa General Hospital.

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@carecare, Welcome to Connect. I’m sorry to read about the delay in being listed. I know how hard the unknowing can be.
I’m hoping that your results will lead you closer to a transplant. ❤️

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | May 5 3:55pm
In reply to @melmc18 "I have been on a life long journey with my liver. Confirmed I had HepC at..." + (show)
@melmc18

I have been on a life long journey with my liver. Confirmed I had HepC at age 17 due to blood transfusions at birth. Went through 3 different experimental treatments, finally cured in 2013. Now because of all of the damage taken onto my liver I begin my journey of a transplant. I am very optimistic and hope my evaluation goes well. I am glad to have a place now to connect with others like me and who have already had the transplant. It will be helpful to learn from others. Blessings to All

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Hi, @melmc18, and Welcome to Connect. I want to add myself to your growing list of supporters. My experience is as a recipient.
I’m glad you found Connect.

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carecare | @carecare | May 5 2:55pm
In reply to @melmc18 "I am just starting the evaluation process. So I’m not on the list yet. I have..." + (show)
@melmc18

I am just starting the evaluation process. So I’m not on the list yet. I have a MELD score of 15 and just diagnosed w HPS. No O2 needed yet

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Ok, so your liver must be in worse shape than mine. Im on oxygen 24/7.
I hope your evaluation goes smoothly.

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melmc18 | @melmc18 | May 5 2:20pm
In reply to @carecare "Hi, yes, I have HPS. Are you on transplant list. How is your oxygen? I’ve been..." + (show)
@carecare

Hi, yes, I have HPS. Are you on transplant list. How is your oxygen? I’ve been on oxygen for 8 months.

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I am just starting the evaluation process. So I’m not on the list yet. I have a MELD score of 15 and just diagnosed w HPS. No O2 needed yet

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1 reply
carecare | @carecare | May 5 12:13pm
In reply to @melmc18 "I it’s probably Hepapulminary Syndrome. it can influence getting put on the list and how high...." + (show)
@melmc18

I it’s probably Hepapulminary Syndrome. it can influence getting put on the list and how high. I also have HPS.

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Hi, yes, I have HPS. Are you on transplant list. How is your oxygen? I’ve been on oxygen for 8 months.

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1 reply
carecare | @carecare | May 5 12:11pm
In reply to @kmlowe "Hope the blood gas procedures has the outcomes you need - it does seem that you’ve..." + (show)
@kmlowe

Hope the blood gas procedures has the outcomes you need - it does seem that you’ve a lot going on. I’m surprised that you’ve actually been put on the list at 9 - I thought MELD had to be at least 15 to be listed, unless there’s a qualified exception (I don’t know what conditions this includes). Which location is your transplant hospital? I’m assuming it’s one of the Mayos 😁.

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I have Hepatopulmonary Syndrome. My oxygen levels have been awful, but I guess not awful enough. I hope they don’t wait to help me until I’m deathly ill.
I’m patient at Tampa General Hospital.

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