Liver disease itching: What helps?

Oh, Crystal. I'm so sorry that you are still dealing with the chronic itching and that nothing seems to help.

I moved your message to this existing discussion about liver disease, transplant and itching where members have offered helpful tips and ideas.
- Liver disease itching: What helps? https://connect.mayoclinic.org/discussion/liver-disease-itching/

Crystal, I guess Sarna did help enough. I hope by reading through the previous posts you may discover some suggestions that you and your doctors haven't tried yet.

I am in agony!!! My doctor has me on several different meds but nothing has helped

How did your annual visit go?

Hi @crystalfaye
I am happy to hear the Sarna worked a little. If you are allowed, maybe try a dose of Benedryl (but be prepared for a nap if you take it).
I am doing well. Next week I go to Mayo for my annual visit and I will hear about the treatment for my positive BK virus blood test. It sounds like the answer is a reduction of immune suppression.

A little bit. I’m being sent for an MRI to rule out a stricture. Thank you so much for checking in! How are you doing?

Hi @crystalfaye 😊
I am just checking in! ....Did the Sarna help a little bit?

I purchased some Sarna today. Praying it helps!

Hi @crystalfaye 😊
Congrats on your new liver transplant! I am a two year post kidney transplant patient and I remember having itching for the first couple of months. (I had no itching pre-transplant but I needed a kidney not a liver.)
The itching was especially pronounced the first month when I was living in the rental close to the hospital. When I called my transplant nurse back then, she told me it was common and I could take some Benedryl to calm it down. I know you are a liver transplant patient and I am a kidney transplant patient, so I am not sure if we are on the same immune suppression meds, prophylactic meds, etc but it may be just the body adjusting to the new meds because the itching did go away. The Benedryl helped, but you would have to discuss this solution with your transplant nurse since I don't know if it's safe for a liver transplant patient.
Again Congratulations! ❤

I had some intense itching before my transplant but it was localized to specific areas of my body. What I am experiencing now is more of an all over skin irritation. Like my skin is crawling if that makes since. They put me on a multi-vitamin but I haven't seen any difference as of yet. It has only been a week. I am also diabetic and take insulin which complicates things a bit. All in all I am feeling pretty good. My strength and appetite are returning by leaps and bounds. It was so nice to walk around a store yesterday, with my mask on of course, and not have to use a walker or cane.

@crystalfaye I had terrible, terrible itching both pre and post transplant. I used Sarna anti itch cream extra strength with menthol. And of course, friends hands, door jams, spoons. It was torture and mostly on my back. Post transplant it lasted a month then began to fade. I still put moisturizer all over, except my scar, each morning after showering. Itching is no longer a worry after a year of relentless itching. It is very common.