Liver disease itching: What helps?

Posted by jeanne5009 @jeanne5009, Nov 26, 2018

Does anyone have info or treatments for itching? My scalp and lower back have a very itchy rash. Tried ointment shampoo, antihistamine and steroids...wont go away. I am Stage 4 liver cirrhosis. Dermatologist and PVP are stumped.

Interested in more discussions like this? Go to the Liver Diseases Support Group.

My wife, Rhonda, has severe skin itching from a liver disorder, does anyone have any suggestions as to relieving her discomfort? Ty

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@rosemarya

@sarah82 - I apologize for the confusion.
Mayo Connect is an on-line patient community. The support group that I referred to is a discussion group that I shared earlier.
Here it is again: Liver transplant – Let's support each other
https://connect.mayoclinic.org/discussion/liver-support-group/
Sarah, click on the link and you will be taken to the discussion where you can enter a comment, ask a question, and read the previous liver patient experiences. Note: If you want to ask a question, or make a comment to a particular individual be sure to include their @name.

Here are instructions for Starting a New Discussion.
https://connect.mayoclinic.org/help-center/#start-new-discussion
Let me know if I can be of further assistance.

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Thanks for your help, Rosemary. It appears I am unable to successfully access the support group, albeit I did add one long post to what I thought was a general chat area for liver support. Perhaps it is best for me just to read other posts, and not add a post myself. You know the story about old dogs.
Sarah.

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@adlttl123

So so sorry. Have you tried Benadryl it’s a life saver for me with any itching. Prayers. Diane.

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You’re allergic to Benadryl?

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So so sorry. Have you tried Benadryl it’s a life saver for me with any itching. Prayers. Diane.

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@sarah82

Where is the Liver Support Group....I want to start a new discussion as I have just been diagnosed with liver disease.
Sarah.

Jump to this post

@sarah82 - I apologize for the confusion.
Mayo Connect is an on-line patient community. The support group that I referred to is a discussion group that I shared earlier.
Here it is again: Liver transplant – Let's support each other
https://connect.mayoclinic.org/discussion/liver-support-group/
Sarah, click on the link and you will be taken to the discussion where you can enter a comment, ask a question, and read the previous liver patient experiences. Note: If you want to ask a question, or make a comment to a particular individual be sure to include their @name.

Here are instructions for Starting a New Discussion.
https://connect.mayoclinic.org/help-center/#start-new-discussion
Let me know if I can be of further assistance.

REPLY

Where is the Liver Support Group....I want to start a new discussion as I have just been diagnosed with liver disease.
Sarah.

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@sarah82

Thanks, Rosemary. I read the material you suggested as well as other articles on-line. I would appreciate comments from members of the group. My primary diagnosis is alcohol liver disease, with an initial diagnosis of macronodular cirrhosis. I have never been a heavy alcohol drinker, but my doctor said drinking even moderate amounts of alcohol for many years could lead to alcohol liver disease. To reach this diagnosis, I had lab work, and a sonogram of my liver. My doctor also commented during our first visit I did not look like a typical liver disease patient (not over-weight or having signs of yellow skin discoloration, I guess). He has now prescribed hepatitis A&B vaccines; MRI evaluation of cirrhosis; additional lab work; and an endoscopy. My only symptom, although not directly related to liver disease, is GERD. Well, I do have general symptoms (tired, loss of appetite, weight loss during past six month), but I initially attributed those symptoms to my mitral valve insufficiency and being at a higher elevation during the summer. I modified my diet in mid-June after my Colorado PCP's nurse mentioned I had fatty liver disease; my PCP said I did not have fatty liver disease. Questions: What to expect symptom-wise? Does a strictly-modified diet improve the status of the liver cirrhosis? What symptoms are normal when a patient needs a liver transplant? Should I get a second opinion?
Thanks, Sarah.

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Sarah @sarah82 - I have sent you a PM (Private Message).

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@rosemarya

It's been a while - and I am wondering if anyone has any updates related to your itching?
@gerryp, @btg, @ugadawg1067, @crystalfaye, @katebw, -Have you found any relief? What is working for you?

@patrickski98 - What is your experience with itching? Is it new or ongoing?

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Good morning. My itching was very intense pre-transplant, but has thankfully mostly gone away post-transplant. I tried everything to relieve it. I found Sarna lotion helped and ice packs - especially for my back overnight. My wife purchased large ice packs on Amazon and we would wrap a towel around them to diffuse the cold somewhat and make it tolerable. I also found that witch hazel would provide temporary relief. I also would wear cotton gloves at night to prevent breaking my skin. My wife also got these on Amazon. Benadryl and other anti-histamines did not really work for me.

REPLY

Thanks, Rosemary. I read the material you suggested as well as other articles on-line. I would appreciate comments from members of the group. My primary diagnosis is alcohol liver disease, with an initial diagnosis of macronodular cirrhosis. I have never been a heavy alcohol drinker, but my doctor said drinking even moderate amounts of alcohol for many years could lead to alcohol liver disease. To reach this diagnosis, I had lab work, and a sonogram of my liver. My doctor also commented during our first visit I did not look like a typical liver disease patient (not over-weight or having signs of yellow skin discoloration, I guess). He has now prescribed hepatitis A&B vaccines; MRI evaluation of cirrhosis; additional lab work; and an endoscopy. My only symptom, although not directly related to liver disease, is GERD. Well, I do have general symptoms (tired, loss of appetite, weight loss during past six month), but I initially attributed those symptoms to my mitral valve insufficiency and being at a higher elevation during the summer. I modified my diet in mid-June after my Colorado PCP's nurse mentioned I had fatty liver disease; my PCP said I did not have fatty liver disease. Questions: What to expect symptom-wise? Does a strictly-modified diet improve the status of the liver cirrhosis? What symptoms are normal when a patient needs a liver transplant? Should I get a second opinion?
Thanks, Sarah.

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@sarah82

I received a diagnosis of alcohol liver disease, and want to learn more on the subject. Can you please direct me to the appropriate group.
Sarah.

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@sarah82 - Hi, Sarah, and Welcome to Connect.
I am sorry to learn of your recent diagnosis. I can easily remember when I was diagnosed with a liver disease and how helpless I felt. I commend you for reaching out to find information and to meet others who share a similar diagnosis.

Cirrhosis of the liver can have many causes, with one of them being chronic alcoholism. Here is Information about Cirrhosis:
-Cirrhosis
https://www.mayoclinic.org/diseases-conditions/cirrhosis/symptoms-causes/syc-20351487
Sarah, After you have viewed the Information about cirrhosis, you will see that all of us, who have of have had cirrhosis or liver disease, share many common symptoms. I want to invite you to introduce yourself in the following discussion where other liver patients can see it.
-Liver transplant - Let's support each other
https://connect.mayoclinic.org/discussion/liver-support-group/
Sarah, I will be looking for you in the Liver Support group.

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